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Ursa Major

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Ursa Major

  1. Ursa Major
    I had the same problem, until I resized my picture myself to the required size (I think it was max. 50 kb, and 100 x 100 pixels, but I'm not 100% sure), and then it worked fine.
  2. Ursa Major
    I have awful reactions to bandaids and most skin tapes as well, which take sometimes YEARS to heal! When I had my hysterectomy five years ago, things went very wrong (my bladder tore badly, due to being very stuck to the uterus because of three c-sections), and the surgery went from 45 minutes to three hours. Even though I had told them (the surgeon, the...
  3. Ursa Major
    Um, Tiffany, I hate to tell you this, but you need to eat gluten for several MONTHS in order to maybe get a positive test result. So, don't bother eating gluten now, you'll just get sick for no reason. There is no point in getting tested this week, cancel if you still can. Find a doctor who will give the the note based on your positive enterolab tests...
  4. Ursa Major
    Ugh, those dumb doctors! Just to make sure, of course you aren't just avoiding wheat, right? Have you considered cross contamination, personal care products, vitamins and medications as potential sources of gluten? Have you replaced your toaster (you can't possibly get all the crumbs out), your plastic strainer, wooden cooking spoons, wooden cutting...
  5. Ursa Major
    Splenda is made by taking a sugar molecule and replacing three of its atoms with chlorine atoms! How could that be safe? Here is some info that should scare you (Splenda is no safer than aspartame/equal, meaning pretty deadly): Open Original Shared Link I can find better ways of killing myself if I choose to
  6. Ursa Major
    Exactly what I was going to say. I want to qualify that saturated fats are very important for our bodies (contrary to popular opinion), and also essential fatty acids (especially omega 3s) are needed (preferably from an animal source, like fish oil, flax-seed oil is not nearly as good).
  7. Ursa Major
    It is likely the skin that is the culprit here. I am able to eat PEELED white potatoes occasionally, the skin contains high levels of salicylates (and who knows what else that could be causing a reaction in susceptible individuals). Also, especially baked potatoes, are so starchy, that the body converts them instantly to sugar (faster than white flour...
  8. Ursa Major
    Manja, this is my take on this: Anna can tell that you're very anxious about her eating, and may be playing a power game. As long as you coax her, feed her etc., she is in charge! She WON'T starve if you stop doing that. Don't feed her, just put the food in front of her, and remove it when the family is done eating. She might have to actually get hungry...
  9. Ursa Major
    Well, somehow I seemed to have 'lucked out' on how to identify the problem foods. The gluten was the easy and obvious one. When I was doing celiac disease research, I stumbled upon this amazing board. Two weeks after starting to read here, somebody posted the link to the lectin website, and when reading there, realized that I had always reacted to ALL the...
  10. Ursa Major
    As Tiffany and Rachel already stated, your daughter absolutely needs to be on the gluten-free diet. Dapsone just helps with the symptoms (the rash), but does nothing to fix the cause (not being able to digest gluten). It is a very powerful medication, that is extremely hard on the liver, and may eventually destroy the liver. Mind you, it may take up to...
  11. Ursa Major
    I think the ingredients on personal care products are usually pretty obvious, like barley extract, wheat germ oil or oat bran. Somebody correct me if I'm wrong! The brand I use is Dove shampoo and conditioner, because it doesn't have gluten or anything else I am intolerant to. And I use Ivory soap, for the same reason. But there are other brands that...
  12. Ursa Major
    Hi, and welcome to this board. Maybe you have intolerances other than gluten and dairy? Enterolab can't confirm celiac disease, only gluten intolerance. Meaning, that you may have celiac disease, but are at least gluten intolerant. It doesn't really matter, though, because the treatment is obviously the same. And yes, since you have two gluten intolerance...
  13. Ursa Major
    You know, with me it was starches especially that kept me feeling bad. But it seems that all you're eating now are starches! That is a terrible idea and very unhealthy. How are you supposed to get any vitamins and protein that way? Have you tried eating only meat and well cooked vegetables? That is what I did at first, and those things were all I could...
  14. Ursa Major
    Ashley, I think going to a chiropractor would be an excellent idea as well. It's amazing the things they can fix with a simple adjustment, that leave MDs just stumped. Personally, when I have any problems, my chiro is the first person I consult (I consider him my primary caregiver, I wouldn't know what to do without him, most doctors are so clueless).
  15. Ursa Major
    Kris, underneath each post/reply is a bar with different buttons. The first one on the left says either 'on' or 'off', indicating if the person is online or not. The second one is 'card', and the third one is 'PM'. If you go to Lorka's last reply, just click on the PM button, and a new window will come up to PM Lorka. It is just like posting, but only she...
  16. Ursa Major
    I was swollen everywhere, including my face. And yes, within days on the gluten-free diet, people were commenting on my thinner face, asking if I had lost weight.
  17. Ursa Major
    Bernice, thanks for picking up on this and posting it, but somebody else was faster . Here's the link to that post: Open Original Shared Link
  18. Ursa Major
    Taz, it seems to me that Carla meant, that she forgot about the sea bands being a GOOD idea! While they don't seem to work for everybody, they are a life saver for me. Because I don't just get car sick, but everything-that-moves sick. They are the only thing that works for me (the pills pretty much put me out of my misery, though, I sleep the whole ride,...
  19. Ursa Major
    That looks interesting. Of course, this far they haven't tried it in REAL stomachs with REAL patients, only in the lab under conditions that sort of mimic the stomach and duodenum. We'll see if it still works when they test it on people. It would be nice to have this enzyme when going out, just in case (but I'd still not purposely eat gluten).
  20. Ursa Major
    Dan, I am reading a book called 'The whole Soy story', and apparently, soy protein will turn to glutamate (or something like that, I am too lazy right now to go and check). Anyway, if you use soy protein, you get glutamate, that I remember, because I was quite flabberghasted by that. I've given up finding protein bars. You may want to buy a jerky gun and...
  21. Ursa Major
    I am another one who would say, 'All of the symptoms, plus more', but chose tummy troubles, since I had those for many, many years. But I've had backaches and joint and muscle pains from the age of three. Chelsea, I forgot about your gluten challenge until I saw your response. It may be responsible for your iron deficiency.
  22. Ursa Major
    Chelsea, you may not be feeling too bad yet, because after your iron has plummeted, your hemoglobin takes a while to come down to dangerous levels. Apparently it hasn't yet, but it will! I was unable to take enough iron supplements to keep my iron levels at an acceptable level (eventually, I was in chronic stomach pain so bad, I couldn't walk upright...
  23. Ursa Major
    Eating spinach won't help, as it contains high levels of oxalic acid, which counteracts iron absorption. Meaning, it is useless for getting iron. Red meat is still the best source of iron from food. Chelsea, your levels are alarmingly low, and something a lot more radical needs to be done than just iron supplementation. When my levels were that bad...
  24. Ursa Major
    Hi Ashley, and welcome to this board. I know that many people say that you don't get reactions from lotions and shampoos unless you ingest them. But I have the same problem as you, if I use soap, lotion, shampoo etc. with wheat germ, I will have a skin reaction similar to yours, plus insane itching, without getting any gastrointestinal symptoms at the same...
  25. Ursa Major
    Carla, I plan on seeing my homeopath, who can figure it out for me. She told me after seeing her last summer, that those cleanses you buy in the health food store are way too harsh for many people. She seemed to know what she was talking about (even though she obviously doesn't know everything, as she didn't clue into celiac disease, I figured it out myself...
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