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Ursa Major

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Ursa Major

  1. Ursa Major
    Well, at least now you know.........and really, you obviously knew already. At least you can now get on with healthy, gluten-free living and know your quest for the cause of his illness is over.
  2. Ursa Major
    A few thoughts: I feel (and mind you, this is just my own opinion here), that gluten causes both inflammation with me (my stomach gets inflamed as soon as I consume it), and an intolerance (intestinal damage). When I was so ill last summer, my stomach was very inflamed, and for weeks I had such a terrible stomach ache (right under my breastbone), that I had...
  3. Ursa Major
    Normal ferretin levels are between 50 and 300. Therefore, your level is still considered normal. Mind you, I think it is on the high side. But since it's not likely to stay there for long, I wouldn't worry about it. But the advice of not supplementing with iron right now is sound.
  4. Ursa Major
    I used to eat so very healthy, and made my kids do it too, and still was so very sick, with no energy at all. So, people would say, "Well, look at yourself, you must be doing something wrong, you eat no junk, take all those vitamins and supplements, and you're more unhhealty than I am, I might as well enjoy myself, why should I listen to you?" It was awfully...
  5. Ursa Major
    I get those, sometimes under the skin (and they hurt), or sort of on my skin and visible. If I don't open them and remove the top layer of skin, they become hardened and more painful, and never go away. I get that problem after getting glutened. I KNOW it is connected to gluten, but the dermatologist claimed that I am wrong, and it is just eczema. Whatever...
  6. Ursa Major
    Elizabeth, I used to get debilitating pain in my hands and wrists, often so bad, that I couldn't touch things, was unable to hold a cup with one hand, and felt like screaming. I never get that pain any more now, unless I eat things I shouldn't. Check out this thread, it might be helpful: Open Original Shared Link
  7. Ursa Major
    Hi Cathy. Well, it looks like you are on the right path. It actually sounds like you are intolerant to at least some of the lectin groups. And peanuts fall under legumes (like soy, all beans but green beans, lentils, split peas etc.). If you have problems with peanut butter........and I think I understand your reaction, like just feeling sort of icky...
  8. Ursa Major
    Ah, those fun dreams! I've had dreams where I am eating a cookie, and then think, "Oh no, I can't eat those, I just made myself sick!" It's really weird. You'll be okay, especially because you're so determined to do it right, rather than trying to justify 'little' slips, like some people do at the beginning.
  9. Ursa Major
    Lisa, don't feel like an idiot! I get those moments, too. It really is hard sometimes, and it's good you can come here and vent, because we actually understand and won't say (like my daughter at times) things like, "What a baby you are, crying over food!" Well, since they can eat all the stuff I want, they don't have a clue what it's like! So, I say,...
  10. Ursa Major
    That's an excellent article. I only wished that they wouldn't already have a spelling mistake in the title! It doesn't help in lending credibility to the authors (it should be iceberg, not ice-burg, Berg being German for mountain). They certainly have the right idea, and I agree wholeheartedly with what they say (except for calling it an allergy perhaps...
  11. Ursa Major
    Some experts would like the distinction between celiac disease and gluten intolerance removed, as the only difference is in degree (with celiac disease there is more accumulated damage). So, it doesn't matter what you officially have (or believe to have), you should definitely avoid personal care products with gluten.
  12. Ursa Major
    You may not be getting enough fat in your diet. Fat and protein are what make you feel satisfied, and stop you from being hungry too soon again. Make sure you get enough of both (and make sure your fat is NOT hydrogenated fat, and yes, your body needs saturated fat to function properly).
  13. Ursa Major
    You're NOT stupid, it's not easy to learn all this stuff, it takes quite a while. I have been at this for nine months now, and still make careless mistakes at times. I think it happens to all of us. And the whiny thing.......well, let's just say I am sure you're not the only one who sees all this food that you can't eat, when you didn't think to buy any easy...
  14. Ursa Major
    Hi Jenny, and welcome. I am like you, the doctors were clueless, and I figured it out myself last October. When I told my doctor I have celiac disease, and how much better I felt gluten-free, she agreed with me that it must be celiac disease. She said she knew I had all the symptoms, but she didn't think it could be celiac disease because I was gaining weight...
  15. Ursa Major
    Well, it's okay if you post in the wrong topic, as moderators will fix it if necessary. Just give it some thought beforehand as to where to put your post. For people coming here regularly, it's so much easier to just go to 'new posts' to see what has been happening in their absence. It shows which particular forum the post is in, so you can ignore the...
  16. Ursa Major
    Yes, you're right, if the damage is severe, and the villi are totally flattened, they can see it. But if the damage isn't as severe, they can't by just looking.
  17. Ursa Major
    Yep, explosive watery D that can last for up to two weeks for some people is a very common reaction to being glutened. And of course you're right, it would have been the soy sauce.
  18. Ursa Major
    He may be IgA deficient (I think that is right, somebody correct me otherwise), meaning that it's possible his body won't make the antibodies, even if damage is being done, in which case celiac disease wouldn't show up in the blood test. And a negative biopsy doesn't mean he doesn't have celiac disease. It could easily be a false negative. Can you convince...
  19. Ursa Major
    Angi, have you considered testing them with Enterolab? It is much more sensitive than blood work or endoscopy, and would show if there is damage or not, and if they have active gluten intolerance at this point. Because even though their symptoms may be mild, or absent altogether, doesn't mean that damage isn't slowly accumulating. Why wait until they are...
  20. Ursa Major
    I agree with the others. Forget about testing (other than maybe Enterolab Open Original Shared Link), and just go 100% gluten-free. Mind you, you may want to go to your GP and ask him/her to test you for deficiencies. Vitamin D, K and B12, as well as Ferretin (iron), potassium, magnesium and calcium come to mind. That way you will KNOW where you need to...
  21. Ursa Major
    Well, life is full of risks, right? I would call them and ask them some questions to see how knowledgable they are about celiac disease, and about cc, to see if it's worth the risk of eating there. If they sound like they know what they're doing, it would be worth a try in my opinion. If you get glutened (and I hope you won't, of course), then you won...
  22. Ursa Major
    Linda, you definitely didn't waste your money, at least when you get the results, you'll know one way or the other. They appear to be very reliable and very professional. The stool test is a lot more sensitive than either the blood test or the scope for gluten intolerance.
  23. Ursa Major
    Hi, and welcome to this board. Enterolab Open Original Shared Link is very reliable for young children. Now, if your daughter had a blood test that was positive for celiac disease, then there is absolutely NO DOUBT whatsoever that she has celiac disease! Most doctors are so very clueless on that. The scope is very unreliable in children under five, and there...
  24. Ursa Major
    Christian, have you been tested for deficiencies? Most people with celiac disease are deficient in several vitamins, as well as iron and minerals, because of malabsorption due to damaged villi. You might want to get tested for your levels of vitamin D, potassium, vitamin K, ferretin (iron), calcium and magnesium and vitamin B12. I hope I didn't forget...
  25. Ursa Major
    I think the chance of cc with rice are nil. Rice and wheat don't grow in the same kind of land at all. Rice paddies have to be under water for the rice to grow, while wheat grows on dry soil. There is no way they grow anywhere near each other, ever. I never wash my rice. But of course I can't eat it now anyway, since I am intolerant to it as well (in fact...
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