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Ursa Major

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Everything posted by Ursa Major

  1. Ursa Major
    I am very sorry you lost your baby, you must be heartbroken. I've lost a few, and know what you are going through. Are you dairy free? You may be reacting to something other than gluten. Many foods, if you have an intolerance to them, can produce pretty much the same symptoms as gluten, including dairy, soy, rice, eggs, potatoes, just to name a few. Many...
  2. Ursa Major

    ARCHIVED Dh?

    Ursa Major replied to GravStars's topic in Dermatitis Herpetiformis

    I had been thinking for many years I was getting bites. Even mosquito bites in the winter! I've stopped having them gluten-free. Since I was the only one in my family getting those 'bites', I don't believe they were bites at all. Sometimes they'd look like flea bites, in lines of several on my legs, sometimes like inflamed mosquito bites, and sometimes like...
  3. Ursa Major
    gfp, I saw the post you mentioned, and if I recall correctly, some outsider came in here with nothing on his mind but promoting some quackery. Somebody reported it (rightly so), and I suppose Scott removed it. Since this is Scott's site, he has the right to make the rules, and to enforce them. And I agree that this particular post needed to be removed, as...
  4. Ursa Major
    Hi Harley, and welcome to this board. Especially with severe damage, it can take a while before you see improvement. It is likely that you also need to eliminate all dairy at least for a while, because the tips of the villi (which you don't have right now) are needed to digest milk products. Also, you may not be able to digest raw food very well at this...
  5. Ursa Major
    Yes, it would, but you'd have to test specifically for it. And it isn't likely (even though I think it may be a good idea for older celiacs) that they would do that test along with the ones for celiac disease. I think that blood test for cancer is quite expensive.
  6. Ursa Major
    Lindalee, I wasn't implying Helena HAD cancer already, but rather that now purposely wrecking her villi for a biopsy could be the cause of cancer later on. And as for your question: Since they don't test for cancer when they do the celiac panel, they wouldn't catch it even if it was there. Helena, I read several of the best books on celiac disease (written...
  7. Ursa Major
    Helena, I just read in your signature that you're going to have a biopsy, after being nearly gluten-free for a while. Do you realize that it will likely be a false negative, even if you have celiac disease, unless you eat a LOT of gluten for at least six months? For some people it takes longer to so totally destroy their villi again to have a positive biopsy...
  8. Ursa Major
    I hope you managed to serve something else. I guess that's reason enough to learn to make your own gluten-free cakes, I am sure you NEVER want to repeat that awful experience! I hope you didn't end up paying for the cake. Obviously, those people don't know what they're doing.
  9. Ursa Major
    I self-diagnosed myself last year with celiac disease, at the age of 52. I have been gluten-free for ten months now (with a few big mistakes and a few smaller glutenings). I was very ill before last October, with fibromyalgia pain so bad that I was on codeine 24 hours a day, and often extra strength Tylenol on top of that, and still could hardly function...
  10. Ursa Major
    I find that the longer I am gluten-free, the longer it takes for me to react (while for some people it is the opposite). Last year I'd have awful D within minutes of eating gluten, while now I get a stomach ache pretty soon, but the D won't start until a whole WEEK later! But it always comes, without fail, eventually, and I'll be miserable for a few days...
  11. Ursa Major
    They don't allow any liquids (even semi-liquids, like shampoo, hair gel etc.), but solid food is not a problem. I know, because I had two teenagers go back to Germany this past week, one on Monday with Transat, and one yesterday with British Airways. Even the one with British Airways was fine with solid food.
  12. Ursa Major
    Debbie, tomatoes don't give me digestive problems, but they were the cause of my frequent migraines! Are you sure tomatoes are fine for you? Peppers don't give me intestinal problems either, but after eating them, I'll break out on my face with the most awful, pus-filled pimples by the next day. I have my doubts that anybody intolerant to potatoes is truly...
  13. Ursa Major
    I used Lame Advertisement shampoo as well (which was better than what I used before), but found that first of all, it contained wheat germ oil, and secondly, tea tree oil is high in salicylates, and I am intolerant to those as well. Since I've switched to Dove shampoo and conditioner, my scalp is much better.
  14. Ursa Major
    If you touch something with gluten, you have to absolutely wash your hands before you prepare your food, or eat with your hands. Your nutritionist is an idiot (excuse my language), don't bother going back to him, he knows nothing about celiac disease. If you prepare your kid's pancakes, that is a huge problem. In fact, if you bake with normal flour,...
  15. Ursa Major
    Well, at least it looks like you've figured out why you itch! And of course, since you always get some shampoo in your mouth, and of course you touch your hair and don't always wash your hands after, you likely kept getting glutened by your hair products at least. By the way, I believe that you CAN be tested by Enterolab, as they told me that they'll test...
  16. Ursa Major
    Hi Babe, and welcome to this board. I won't have all the answers for you, but I'll try to give you some tips. The loss in height is not a good sign, it looks like you may have developed osteoporosis, a very common problem with celiac disease, due to malabsorption of Vitamin D, Calcium and Magnesium (and you can't absorb Calcium and Magnesium without Vitamin...
  17. Ursa Major
    Keep up the diet, obviously you've already had a positive response, and a bad reaction to the biscuits you ate only two days after going gluten-free. That almost already confirms it, after such a short time, that you need to be gluten-free. You may want to eliminate dairy as well for the time being, as most celiacs are initially intolerant to dairy. You...
  18. Ursa Major
    Somebody here asked a few months ago, how many of us had their gallbladder removed. It was amazing how many had that problem (including me)! Gallstones and gallbladder disease are so common to people with celiac disease, it really can't be a coincidence. I used to get horrible reflux and heartburn before my gallbladder was removed more than ten years...
  19. Ursa Major
    I believe one teaspoon of full fat soy flour with one tablespoon of water will replace one egg. Years ago I used that for baking a cake for somebody intolerant to eggs, and it worked well.
  20. Ursa Major
    This is the first time I heard of anybody else who has had those itchy pimples/bumps along the hairline on the back of the neck! I've had those forever, and they went away gluten-free, and only come back when glutened. Many years ago I showed them to a doctor, and she just said, "Well, that is just the way your skin is, there is nothing that can be done...
  21. Ursa Major
    Right, that seems very familiar! When I look at my pictures when I was one to three years old, I look happy, healthy, with that spark in my eyes, too! And the pictures after that, I look way too skinny, with sad eyes, pale, and like I have no energy, no spark. And I remember well enough to know that I looked the way I felt. From around ten to maybe ...
  22. Ursa Major
    Don't they care about the children's health at all? Don't they know that somebody with celiac disease usually feels run down, has tummy aches, can't think straight, has gas, bloating, diarrhea or constipation etc. Is it that they feel that kids with Down syndrome aren't worth spending some money on, to improve their health? And it's true, in Italy every...
  23. Ursa Major
    Actually, you wouldn't want to use the bathroom for about an hour after I go when glutened, or you would be gassed and would faint. So, you are right to question your baby's foul smelling poop. It is pretty much a dead giveaway. Not that diapers ever smell pleasant, but there is a limit normally to the bad smell.
  24. Ursa Major
    Well, all these tests mean you're definitely gluten and casein intolerant, have mild malabsorption, and have two celiac genes. Welcome to the club. The bright side is, that now you KNOW what the problem is, and you have the power to change your diet to get better. No more guessing and fooling yourself. It's hard, but you will manage, because you have...
  25. Ursa Major
    Well, I think that shampoo can't CAUSE the DH on the scalp, but it sure isn't helpful, to put it mildly. I used to get those sores on my scalp, too, but mine were insanely itchy. Since I switched to Dove shampoo and conditioner, the itching is usually gone (even though I still get sores at times, but not nearly as bad). So, I encourage you to get rid of...
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