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Ursa Major

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Ursa Major

  1. Ursa Major
    No, reactions to milk aren't always digestive, just as reactions to gluten aren't necessarily digestive, either. If I drink milk, I will get a lot of mucus and get breathing problems. One of my husband's cousins gets awful depression within a day if she drinks milk. My youngest daughter (14) gets incredibly hyper from it (but she will throw up from cheese...
  2. Ursa Major
    Doll, I disagree with you on people without the official celiac disease gene not having a problem with gluten. First of all, the experts believe that not all the genes for celiac disease have been identified yet. Secondly, there are plenty of people without celiac disease, who are gluten sensitive. And those people can, without destroyed villi, have the same...
  3. Ursa Major
    What Nini said really made me think. When I was a kid, I looked like a scarecrow, with stick legs, I was so thin. My mother was constantly trying to fatten me up (with milk and flour products, of course, which made things worse), and always told me I was too skinny and needed to eat more (at 17 I was 5'6" and weighed about 95 lbs). Then, when I started to...
  4. Ursa Major
    Hi Kris, I am happy you found us. You know, the GERD is likely caused by the celiac disease. Once your intestines have healed, the GERD may go away. It will take time, of course. The damage done to your insides over the course of years may also take years to heal. Be patient (I know, easier said than done). If you look at my signature, you would find out...
  5. Ursa Major
    To only have part of the wedding cake be gluten free is asking for trouble. Your caterer apparently doesn't understand about cc. I am afraid you need to explain that concept for them, unless you want other food contaminated as well. I would insist on a completely gluten-free cake. If your guests care about you, they won't care. Besides, they'll not likely...
  6. Ursa Major
    Steph, for the first six months of being gluten-free I was unable to handle anything raw, and starches were (and are, really) a bad idea. Raw foods (even fruit) would give me stomach cramps and diarrhea within minutes. I found that well cooked meat, vegetables and fruit were fine, if eaten in small amounts all through the day. No salad, even. I'm okay now...
  7. Ursa Major
    I am another one here with undiagnosed celiac disease all my life, because the doctors were clueless. I diagnosed myself last October (and my doctor actually agrees with me now) and had immediate positive results going off gluten. I say, "JUST DO IT!" Who cares what the dumb doctors and nurses say. Listen to your smart husband and to your body. I hope you...
  8. Ursa Major
    No, not a good idea at all. If your cutting boards are wood, no amount of washing will get the gluten out of them. Pans are okay if they're stainless steel, because you can scrub them properly. Plastic colanders are impossible to clean properly. Also, I had celiac disease symptoms all my life, but never enough for doctors to clue in. But last year in...
  9. Ursa Major
    I am not sure what you mean when you say DH. Are you talking about Dermatitis Herpetiformis, or diarrhea? If you're talking about dermatitis herpetiformis, it can take up to two years (for some longer) before the outbreaks stop, after going gluten-free. If you're talking about diarrhea, then your doctor is right, it can definitely take at least six months...
  10. Ursa Major
    Hi Jon, and welcome to our board. I've been gluten-free for ten months now, and wonder what it will be like in ten years. It's still hard, especially with all my other intolerances. I am glad you're doing well!
  11. Ursa Major
    Hi Jenn, and welcome to this board. Yes, it does get easier. But with your constant glutenings, your deficiencies can't get better, because your intestine isn't healing, and you're still not able to absorb those essential nutrients. Also, stop cooking two different meals! Just cook a gluten-free dinner, your family won't even know unless you tell them...
  12. Ursa Major
    You know, I didn't suggest cutting out all salicylates (which is what I have to do on top of gluten and lectins), so there is lots and lots left to eat. All fruits, most vegetables, meat and fish, non-grain starches like buckwheat, arrowroot and tapioca, nuts, seeds.................... To stop eating lectins is not nearly as hard as enduring constant stomach...
  13. Ursa Major
    Yes, it is another possible symptom. If he isn't absorbing nutrients because of damaged villi, it makes sense he would be hungry all the time. One of my grandsons is the same way, same symptoms, always, always hungry, but my daughter won't listen to me, either. It is soooooooooooo frustrating! I hope your mother gets through to your sister. It is so hard...
  14. Ursa Major
    Betty, if these were your results AFTER being gluten-free for four whole weeks, they would have been HUGELY positive four weeks earlier! This doctor is an idiot, I'd be upset with you if you even consider seeing this incompetent man again! I get severe stomach cramps within minutes of being glutened. I know it is common. He is an idiot. Don't go back...
  15. Ursa Major
    I'm afraid that perhaps the answer may lie where you'd rather not look (but should). The tipoff is 'any grain or legume'. You may be intolerant to lectins. Meaning, you should try an elimination diet, cutting out all lectin groups, and then testing them one at a time after about a month, to see which groups are a problem. Apparently, you've really identified...
  16. Ursa Major
    Betty, that's inexcusable, you ought to fire that doctor. He is wrong, and doesn't deserve to make any more money off you. Just be on the gluten-free diet and forget about doctors, what do they know! Unless a doctor has celiac disease himself, he can't possibly know what it's like, it's all theory. You know how you feel on and off gluten. Stay off gluten...
  17. Ursa Major
    Karen, I am sorry you are having these problems now, as if you needed anything else to deal with! Thanks, rice guy for posting the link, it explains a lot to me, and may be worth consideration by anybody with joint problems. Karen, I used to get the exact same thing, I've had days where I couldn't walk or use my right hand/arm at all, due to joint...
  18. Ursa Major
    Actually, the parts of the world that don't have a problem with celiac disease are those where the staple food is rice, not a gluten grain. So, Japan, China and other parts of Asia are fine, as well as some island states, where the staples are simply fruits and meat for the most part, and some vegetables. In parts of Africa where other governments are...
  19. Ursa Major
    Actually, my friend and I ARE in Canada, and the healthcare STINKS as far as I am concerned. Doctors think the food pyramid is the way people should eat. Heck, even nutritionists think that! My daughter's nutritionist told her that her children NEED to eat five choices of grain each day to be healthy. She has them eat low fat, little meat/protein, and...
  20. Ursa Major
    Thanks for the reminder! I just wondered today why I have started all those neurological symptoms again (a vibrating feeling all over, hands feel like they're falling asleep)...................I haven't been taking my vitamins for a while, because I was too overwhelmed with everything else! I usually take a good B-vitamin complex, but haven't taken it all...
  21. Ursa Major
    It seems pretty obvious to me that type 2 diabetes is caused by sugar and grains. I bet that there are more diabetic people out there who's reason for getting diabetes is, that they have celiac disease, than anybody would ever guess. And the ones not testing positive for celiac disease would likely be gluten intolerant. If doctors would advocate that ALL...
  22. Ursa Major
    I can see where you're coming from. But this is my take on this: Even though it isn't fair that our food is more expensive, that is just a fact of life. When I thought that only gluten was a problem, I went to a restaurant with my husband (the last time out, that was last December ). He was able to have the buffet, which was, I believe, $10.00 for all you...
  23. Ursa Major
    Yes, me too. I've been gluten-free for ten months now (lectin free for a little less, and salicylate low for seven months), and I have ups and downs. But mostly, I am a whole lot better than I was. I also found out about celiac disease relatively late in life, and may not heal completely. But I expect it will be years before I will know how far the healing...
  24. Ursa Major
    Actually, yes, I have heard from several people about negative test results from Enterolab. Carla had two of her daughters tested by them, one came back positive, the other negative. I remember somebody else, but can't remember who it was. I am not officially diagnosed either, and don't care. I know what I know. Doctors have failed me all my life, I've...
  25. Ursa Major
    I was going to say something similar. I also suspect other food intolerances. I found out that tomatoes caused my migraines, since I stopped eating them I rarely get migraines. I suggest you try an elimination diet.
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