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Ursa Major

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Everything posted by Ursa Major

  1. Ursa Major
    Nikki, that is something I didn't know, that they really let you know if it is actually gluten-free or has codex approved standards. That makes the choice much easier. I know the bread I bought in Germany said gluten-free, and it didn't contain wheat starch. Otherwise I wouldn't have bought it.
  2. Ursa Major
    I just copied the recipe and will try it, I how hope it will help me stop missing my German rye bread so much!
  3. Ursa Major
    Is she still consuming dairy and soy? Those could be the culprit.
  4. Ursa Major
    I was back home in Hamburg, Germany for six weeks last summer, and found it extremely easy to be gluten-free there. In the six weeks I don't think I got glutened once, even though I lived in three different places (an aunt, and two brothers) and traveled quite a lot. You can easily find gluten-free food there (Reformhaus, Budnikowsky, Aldi) and people...
  5. Ursa Major
    Isn't it awful that we get false information from doctors, of all people? You would think they are better informed than that. You are right, almost all gluten-free breads are disgusting. It is better to live without bread than eating that stuff. I like corn tortillas and tacos, you can do so much with them. Mamaw, I wished I would live closer to...
  6. Ursa Major
    Not all people with celiac disease have a reaction to oats.
  7. Ursa Major
    I'm afraid that eating chicken with the fried coating peeled off is not safe. It won't be possible to peel it off without getting some of it onto the meat, even if you can't see it. When you have to attend functions like that, you need to either bring your own food, or make sure they will have something you can safely eat. You can also bring something...
  8. Ursa Major
    I agree with your doctor. It sure sounds like your baby may have celiac disease. Make sure you continue to feed her dairy and soy free, and add gluten-free to that. Failure to thrive is usually the most obvious symptom of celiac disease in babies and toddlers. Cheerios have gluten in them. The carrots probably come out undigested because your daughter...
  9. Ursa Major
    Why don't you just bring in some gluten-free cereal that contains nuts and milk (or rice milk) as well as some fruits? You could get disposable bowls and spoons if the school won't supply them. It won't be cheap, but it would be easy.
  10. Ursa Major
    Unfortunately, that blood test may not tell all. Those blood tests are highly unreliable and will likely give a false negative reading if somebody hasn't been eating lots of gluten for a long period of time. If the blood test is positive, you can be pretty sure it is celiac disease, as false positives are pretty much unheard of. But if you get a negative...
  11. Ursa Major
    Now that is interesting. I realize that I might get dry skin as well when I cheat and eat potatoes! My lips will crack, and I have to keep putting lotion on my arms and legs, and get an itching, burning rash on my shins that can only be controlled by lots of lotion. I've never connected these symptoms with potatoes before, but think there is definitely a...
  12. Ursa Major
    Gluten free rye bread is an oxymoron. The three kinds of gluten grains are wheat, rye and barley. Therefore no bread containing rye is gluten-free. I see you live in Greece. Maybe you can get buckwheat bread where you live. When I was in Germany last summer I ate buckwheat (Buchweizen) bread that looked and tasted just like pumpernickel bread (black...
  13. Ursa Major
    Debbie, personally, I wouldn't eat anything with wheat starch in it. Too many people with celiac disease react to it. It is entirely your choice if you want to take the risk. You may not obviously react to it, but will you know if it won't do internal damage, that will take years to build up to make you really sick? I understand about the bread, though...
  14. Ursa Major
    Hi Kristen and welcome to these boards. IBS is not a valid diagnosis, as something is causing your bowels to be irritated! IBS is a symptom, and any doctor who 'diagnoses' patients with it is either too ignorant or too lazy (or both) to investigate further to find out the cause. Many people here were misdiagnosed with IBS before finally getting the proper...
  15. Ursa Major
    You need to eliminate all dairy at first (at least six months) as well in order to heal, and the same goes for soy. Also, your stomach and intestines appear to be in such bad shape, that you need to be very careful in what you eat for now. Gluten free replacement foods like bread, cakes, cookies, cereal and crackers are very hard to digest and may not...
  16. Ursa Major
    Now that, along with the other symptoms, is a dead giveaway for celiac disease! It is the typical celiac disease shape, especially for little kids and men (women don't have that shape as often).
  17. Ursa Major
    Children won't starve themselves. My suggestion is, that you don't offer those junk food choices he likes any more at all. If he won't eat at mealtime whatever it is you offer, he'll have to leave the table hungry. At all times have little bowls of nutritious foods sitting around, for him to help himself if he so chooses. Like cut-up apples, orange sections...
  18. Ursa Major
    Not another ignorant doctor (sigh)! After being gluten-free for a few months, you would need to eat the equivalent of four slices of bread a day for at least three to six months to even have hope of getting an accurate test. After a week you are almost guaranteed a false negative. Eating that much gluten again for that long will likely make you severely...
  19. Ursa Major
    I will use lard (melted) for a lot of my baking, because of intolerances to most oils. It all comes out tasting great. You may also want to try non-hydrogenated coconut oil. There is a casein free butter out there, I think it is called 'ghee', but have never tried it (I have no idea where to find it).
  20. Ursa Major
    How exciting that everybody had a great time! That is proof that eating gluten-free doesn't have to be so different and is just as good. Did you tell anybody after they commented on the tasty cupcakes that they were gluten-free?
  21. Ursa Major
    I believe that all the treatment she might need is the gluten-free diet, rather than medications. Celiac disease can cause constipation, not just diarrhea. You will need to eliminate dairy as well, at least for a few months, in order for her to heal. Dairy is well known for causing constipation as well. And soy is no good, either. Rice milk is a good substitute...
  22. Ursa Major

    ARCHIVED Ugh

    Ursa Major replied to Oriana's topic in Coping with Celiac Disease

    You may not have been glutened. Rice and beans sometimes (not always, strangely) give me similar symptoms as gluten. Gluten is a lectin, and lectin foods include all grains (rice is a grain) and beans, amongst others.
  23. Ursa Major
    The Enterolab tests will be accurate up to a year after starting the gluten-free diet. So, you don't need to wait until after you get test results to eliminate gluten. Yes, corn chips, tortilla chips, potato chips (make sure they are gluten-free, only plain ones are safe) can be used with hummus. I hope you get it figured out and you both feel better...
  24. Ursa Major
    Congratulations on your diagnosis. Even though having celiac disease isn't fun, it is good to know what to do to feel better. I hope your rashes clear up soon. You do know that it can take one to two years for deposits under the skin to clear, and outbreaks are still possible during that time, right? Mind you, they will likely be milder, and it doesn't...
  25. Ursa Major
    Most doctors are so ignorant when it comes to nutrition. If your bowels are damaged, they don't convert sunshine to vitamin D. It doesn't matter how much sunshine you get, with celiac disease you can be severely vitamin D deficient anyway. Enterolab can't diagnose with celiac disease, as most doctors won't diagnose it without a positive biopsy (even though...
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