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Ursa Major

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Everything posted by Ursa Major

  1. Ursa Major
    You know, there is really no such a thing as IBS as a final diagnosis. The bowel is irritated by SOMETHING, which may or may not be gluten, or it could be gluten plus other intolerances. Or you may even have Lyme Disease. Your father and stepmother are being extremely inconsiderate. Can't you call the hotel and ask to talk to a manager? That is what I...
  2. Ursa Major
    Hi, and welcome to these boards. There is virtually no such a thing as a false positive blood test result. So, even if your biopsy should be negative (really, they are hit and miss), I would assume you have celiac disease and start the gluten-free diet after the biopsy no matter what (without waiting for those results). I think it can be assumed that your...
  3. Ursa Major
    Hi, and welcome to these boards. I don't know how old those kids are. But those blood tests are notoriously unreliable in children under six, and are almost useless for babies and toddlers unless they are at death's door. And in older kids and adults those tests are somewhat more reliable, but still far from perfect. A negative test can absolutely NEVER...
  4. Ursa Major
    Hi Natalija. It must be so upsetting and frustrating to having to deal with these problems, poor little baby! My second daughter had the problems Fiddle Faddle described as well. Her milk let down way too forcefully, and her baby would get very upset and scream in frustration and didn't want to nurse. She is always only letting the baby nurse on one...
  5. Ursa Major
    When my husband's aunt turned seventy (a miracle, because she had cancer for many years) her son and his wife asked everybody in the family as well as friends to send pictures, cards, poems, stories etc. to make a scrapbook for her. She loved it, and whenever people would visit she would bring it out to look through it. I can't imagine that anything...
  6. Ursa Major
    Seizures are a fairly common problem caused by celiac disease. Unfortunately your doctor didn't order the whole celiac blood panel, and therefore celiac disease can't be ruled out. The blood work is not very reliable and yields many false negatives. Stunted growth and digestive problems also point towards celiac disease. Constipation is also a common...
  7. Ursa Major
    I believe that xanthan gum is used as a binder especially if using rice flour. It isn't a thickener. Corn starch can be used for thickening gravy, puddings etc., but also makes flour mixes lighter. You can not use it in place of xanthan gum. I think you can use guar gum and xanthan gum interchangeably.
  8. Ursa Major
    Stacie, the dairy industry with the help of the government has brainwashed the majority of the population into believing that you need dairy for calcium. Nothing could be further from the truth. Because of pasteurization, the calcium in milk is not usable by humans at all. America has the highest consumption of dairy in the world, but also the highest...
  9. Ursa Major
    Unfortunately, you are likely still suffering from being glutened. It is possible to feel the effects of one glutening for up to two weeks. Yes, I developed tinnitus nearly three years ago, when I was so ill all summer with severe D and malnutrition. It still hasn't gone away.
  10. Ursa Major
    Okay, sorry about the misunderstanding. It appears that you have the genes for gluten intolerance. Which you obviously are, and it is every bit as serious as celiac disease. So, keep being gluten-free and be well. Most doctors are extremely ignorant when it comes to gluten intolerance (and only slightly more educated when it comes to celiac disease). ...
  11. Ursa Major
    You get the most calcium out of green leafy vegetables. Not milk, not fortified juice, just dark green veggies. It sounds like you certainly don't have to worry about protein, you are getting plenty. Buckwheat is not a grain, but rather a seed. I don't have any idea what kinds of vitamins you get out of those flours. It might be a good idea to give...
  12. Ursa Major
    Why would you replace the egg if you are dairy intolerant? Eggs are NOT dairy! Dairy are products made from milk only.
  13. Ursa Major
    Did I get that right - you have the DQ2 and DQ8 genes, but your risk of developing celiac disease are very low? Those are the two 'official' (here in America) celiac disease genes. If you have the symptoms and you have the genes, and are getting well on a gluten-free diet, then YOU HAVE celiac disease! Those blood tests are not all that reliable and yield...
  14. Ursa Major
    Well, let's just say if you keep eating gluten, these are your prospects: You'll likely have severe osteoporosis by the time you are 40 (maybe earlier). You are going to die of cancer somewhere in the digestive system (bowel, stomach, liver) at least twenty years earlier than your actual life span would have been. You will probably develop other autoimmune...
  15. Ursa Major
    It is possible that cross contamination occurs because a damaged pot could well be taking on gluten from other dishes. Just wash that particular pot by hand. It doesn't sound enough of an issue to cause you permanent damage. I very much doubt that you will end up dying of a terrible disease like cancer in the future because of living for two more months...
  16. Ursa Major
    It depends on what you want to do. If you just want to know if gluten will indeed make you sick after being gluten-free for a while, a gluten challenge might just be eating one piece of pizza, bread, cake or something else containing gluten, to see if you react. And if you do, you know that gluten is a definite problem and needs to be avoided. On the other...
  17. Ursa Major
    I was going to Mexico, so it was an international flight. I did take a lot of snacks with me in my backpack. Lara bars, nuts, chocolate, gluten-free macaroons etc., which was a good thing, because those are what I usually ate for breakfast, because our hosts had nothing in the house that was safe for me for breakfast. They probably won't take your food...
  18. Ursa Major
    I bring my own food on planes, because I know I can't trust them. I only had one problem, when in the Toronto airport they took away my little can of pears (still sealed, of course, because it had liquid). Well, they took the one I had in my purse, but left the one in my backpack! But they didn't take my nail scissors I had in my purse (forgot to take it...
  19. Ursa Major
    How frustrating! It is quite obvious that insurance companies couldn't care less about people's health, it is all about money. I've had tons of problems with my insurance company as well, when they didn't want to pay for necessary dental work (my dentist had to fight with them a few times, so frustrating). I hope they see the light soon.
  20. Ursa Major
    I am glad your daughter is starting to feel better. Is she still consuming dairy? That could be the cause of her remaining issues (as could soy and/or corn), as well as the eczema. Many nutritionists and dieticians know precious little about a gluten-free diet, but some are helpful. If something doesn't say gluten-free, it doesn't necessarily mean it...
  21. Ursa Major
    Takala, you're right in saying that even in the USA they are not always using corn to make maltodextrin. Two days ago I bought some Terra chips (Sweets and Beets, and Mediterranean Vegetable chips). I thought (falsely) that all the Terra chips are gluten-free and ate one of the Mediterranean ones. I thought something wasn't right and FINALLY read the ingredient...
  22. Ursa Major
    The first thing I would do is eliminate all dairy and soy to see if it makes a difference. If it doesn't, I would eliminate nightshade vegetables, and last do the low carb diet (after you make sure no gluten is sneaking in somewhere, of course).
  23. Ursa Major
    As I said in another thread, I was wrong. My fludrocortisone is Florinef, not Cortef. You are right, Cortef is a weaker form of hydrocortisone. Sorry about that.
  24. Ursa Major
    Yes, it has happened for some people here after being gluten-free for quite a while.
  25. Ursa Major
    Oops, I guess I've had one of those brain fog moments, since I got glutened yesterday. My fludrocortisone is Florinef, not Cortef. You are right, Cortef is a weaker form of hydrocortisone (not strong enough for me). Still, it would be good for you to have your aldosterone level tested.
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