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Latest Celiac Disease News & Research:
Everything posted by Ursa Major
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ARCHIVED Negative Genetic Test After Eighteen Years?
Ursa Major replied to leelee20's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
leelee, you obviously can't eat gluten. You would do well to immediately get back onto a gluten-free diet. Soy is a bad idea as well. Depression is one of the many recognized symptoms of celiac disease/gluten intolerance. I say, get off gluten, and the antidepressant. Your depression is caused by eating gluten again. But don't just quit the antidepressant... -
ARCHIVED How Long For The Gluten Reaction To Show Up?
Ursa Major replied to MELINE's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I never know when my reaction will come. I could run to the bathroom with severe D within twenty minutes, or it could suddenly hit me the next day or the day after. So, just because you haven't reacted yet, you likely still will. On the other hand, some people stop having obvious reactions once they are healed. I guess you'll soon find out which category... -
I believe there is glue on the paper, you lick it and stick it together, right? My father used to roll his own cigarettes, but that is a very long time ago. The name 'glue' comes from 'gluten'. Because it is often used to make glue, since it is very sticky. You shouldn't lick postage stamps, or envelopes for letters, because often the glue contains gluten...
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ARCHIVED Sharing Pots & Pans?
Ursa Major replied to Wakeboarder's topic in Coping with Celiac Disease
Hi, and welcome to these boards. No, you won't have to replace all of your pots. Putting them through the dishwasher is not enough. Glass and stainless steel need to be scrubbed thouroughly, and they should be fine. Any scratched non-stick cookware needs replacing. Anything with tight corners needs replacing, because you aren't able to get in and get all... -
ARCHIVED Non-celiac Sibling Behavior Improvements
Ursa Major replied to OBXMom's topic in Coping with Celiac Disease
I looked at pictures of keratosis pilaris, and they look similar to DH. Many people get misdiagnosed with other skin conditions, when they really have DH. You may want to get a skin biopsy done on her, because if it ends up being positive, she will be diagnosed with celiac disease right there. -
ARCHIVED Non-celiac Sibling Behavior Improvements
Ursa Major replied to OBXMom's topic in Coping with Celiac Disease
Jane, is her skin condition by any chance dermatitis herpetiformis? Because if that is what she has, and she has been positively diagnosed with it, it is an AUTOMATIC firm celiac disease diagnosis as well. Celiac disease is the ONLY thing that causes DH, and the gluten-free diet is the only cure for it (but not all people with celiac disease have DH). -
ARCHIVED Gi Said My Toddler's Biopsy Was Inconclusive?
Ursa Major replied to buckeyenc5's topic in Parents, Friends and Loved Ones of Celiacs
One of my granddaughters had terrible, blow-out diarrhea (coming out of her diaper on all sides, making a gross mess) five times a day, and had awful, horrible temper tantrums from the time she started solids. Her other grandmother has celiac disease as well, but my daughter refused to believe that her baby had celiac disease. When finally she had her... -
ARCHIVED Non-celiac Sibling Behavior Improvements
Ursa Major replied to OBXMom's topic in Coping with Celiac Disease
You know, the blood tests are NOT very reliable. A negative blood test can't rule out celiac disease. There are people here who had a negative blood test, and a positive biopsy with nearly destroyed villi! ADHD is one of the typical symptoms for children with celiac disease. Your daughter sounds like she has celiac disease as well. With some kids it shows... -
ARCHIVED Are There "mental" Symptoms Of Celiac?
Ursa Major replied to horsesjapan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, absolutely! You sound pretty typical for somebody with celiac disease. But you are right, if you want to get officially tested, you need to keep eating gluten until the testing is done. Mind you, negative blood work and even negative biopsies can't rule out celiac disease, as they aren't all that reliable. It is up to you to just go on the gluten... -
ARCHIVED New Here With Questions About My 2yo
Ursa Major replied to EthansMom's topic in Parents, Friends and Loved Ones of Celiacs
Hi Ashley, and welcome to these boards. I don't understand why the doctors claim that he doesn't have malabsorption, when he has iron deficiency anemia? The only way a child has anemia would be malabsorption! (other than losing a lot of blood) Anemia is one of the most common celiac disease symptoms. So is every other symptom you describe. Failure to thrive... -
Thanks, everybody! I took some pictures, here is the link! Open Original Shared Link
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ARCHIVED I'll Be Gone For Two Weeks, Starting Tomorrow
Ursa Major replied to Ursa Major's topic in Introduce Yourself / Share Stuff
Thanks everybody! I am now not leaving until very early tomorrow morning. I was feeling too run down yesterday to get my packing done, I was getting a migraine from exhaustion and ended up going to bed instead of packing. So, today I slept until noon, and will take my time to get my shopping and packing done. It is a 5 1/2 hour drive from here to Ottawa... -
ARCHIVED Could I Be Caseinintolerant?
Ursa Major replied to Blondie's topic in Coping with Celiac Disease
The symptoms you describe could be caused by soy, or nightshades (potatoes, tomatoes, pepper, eggplant) or maybe eggs, or even rice! But the most likely suspects are soy and nightshades. Why don't you take soy out of your diet and see if it makes a difference? If after two weeks you don't notice an improvement, try something else. If you can't figure... -
ARCHIVED Barley Grass Powder?
Ursa Major replied to agentmm's topic in Gluten-Free Foods, Products, Shopping & Medications
It is supposed to be. But there is obviously no guarantee that no gluten got into it. I wouldn't risk it. -
ARCHIVED I'll Be Gone For Two Weeks, Starting Tomorrow
Ursa Major posted a topic in Introduce Yourself / Share Stuff
I haven't seen my Ottawa kids/grandkids since Christmas. Way too long! I was talking to my oldest granddaughter, Emily (she'll be eight in May) a few weeks ago, and she was saying, "You know, Oma, sometimes I wish for some peace and quiet away from my brothers and sisters!" (she has two younger brothers and two younger sisters). When I suggested that... -
Yesterday we had our son, his wife and their babies Abby and Eli for Easter dinner, as well as our second-youngest daughter with her husband (they got married last year in June). When I went to sit down, suddenly there was this large, colourful Easter basket sitting on my plate! I was a little startled, since nobody ever gives me Easter presents. When...
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ARCHIVED Has Anyone Else Tried Humaworm?
Ursa Major replied to Nancym's topic in Related Issues & Disorders
Rachel, that is great information! I will need to learn to explain it that well . I bookmarked those to read when I have the time. Salicylates make my muscles and skin ache terribly. I find that now if I am 'bad' and eat an orange, for instance (I get tempted less and less because of the awful reaction) I will feel like I am on fire by the next day... -
ARCHIVED Not The Best Way To Meet People
Ursa Major replied to curlyfries's topic in Introduce Yourself / Share Stuff
Hi Lisa, good to have you! Have you thought of removing soy from your diet? And yes, you may end up having to take out dairy. See if it makes a positive difference (make sure you give it enough time to before giving up). -
ARCHIVED Spatzle.... Anyone?
Ursa Major replied to jayhawkmom's topic in Gluten-Free Recipes & Cooking Tips
Well, I personally don't like Spaetzle, but I did a google search for you. Here is a promising link Open Original Shared Link Here is a recipe, from this site: Open Original Shared Link -
ARCHIVED Has Anyone Else Tried Humaworm?
Ursa Major replied to Nancym's topic in Related Issues & Disorders
What they say on the site makes sense. Why do people deworm their dogs regularly, but not themselves? And especially if they have pets, it is unlikely that they don't get what the dogs get. Two of my kids have dogs, and they allow those dogs to lick their baby's and toddlers faces! They don't believe me when I say that is a terrible idea. And one little... -
ARCHIVED Has Anyone Else Tried Humaworm?
Ursa Major replied to Nancym's topic in Related Issues & Disorders
Did you visibly pass anything other than the tapeworm? What about this time around? -
ARCHIVED Home Cleaning Products
Ursa Major replied to Puddy's topic in Gluten-Free Foods, Products, Shopping & Medications
It makes sense to have gluten-free cleaning supplies. It would be one less thing to worry about, for sure! First of all, gluten will irritate my skin, so my detergent/softener need to be gluten-free. But if it wouldn't bug me, I'd still use gluten-free detergent. It would drive me nuts to the point of paranoia if I thought my clothing had gluten on it! ... -
ARCHIVED Overwhelmed With 15 Month Old
Ursa Major replied to georgeismyboy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Way to go! I am sure we all know what the results will be. Please post the results when they are in! -
ARCHIVED Enterlab
Ursa Major replied to jmcbride4291's topic in Parents, Friends and Loved Ones of Celiacs
It is Open Original Shared Link, and will diagnose gluten intolerance (if you have it) even if blood work is negative. And the best part is, that you don't have to be eating gluten when using it. It is still accurate up to a year after eliminating gluten from your diet. I used it for my youngest daughter, and after a positive result, she finally agreed... -
ARCHIVED Has Anyone Else Tried Humaworm?
Ursa Major replied to Nancym's topic in Related Issues & Disorders
I know Carla used it, and it really helped her (and if I remember correctly, she passed a huge tapeworm ). I read through their site, and what they say makes great sense. And I am impressed by their reasonable price, too. I am intolerant to salicylates, and of course, since humaworm is all herbs it is very high in salicylates. But I am thinking of...