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Ursa Major

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Everything posted by Ursa Major

  1. Ursa Major
    It is normal for the first baby to be smaller than the next ones. My first daughter was 6 lbs 13 oz The second daughter 8 lbs 2 oz My son 8 lbs 2 oz next daughter 8 lbs 15 1/2 oz last daughter 8 lbs 8 oz The largest daughter is the same height as the smallest (first) one now (5 feet 6 inches), and those two are the skinniest ones, too. ...
  2. Ursa Major
    Yes, that is odd then. I wished I'd have some advice, but I am stumped. Hopefully somebody else has some ideas.
  3. Ursa Major
    Amanda, are you still eating/drinking dairy? It is best to eliminate dairy for at least the first few months on a gluten-free diet, to allow your intestines to heal. Dairy can stop the healing from happening. As can soy. The tips of your villi are supposed to produce the enzyme lactase, which is necessary to digest dairy. If those tips are gone or damaged...
  4. Ursa Major
    Are you still eating dairy and soy? If yes, they could be the culprit.
  5. Ursa Major
    Yes, it is not unusual. On the bright side, a gluten-free diet is known to greatly help Chrohn's disease as well, not just celiac disease. Nancy, your link leads to something completely other than that study!
  6. Ursa Major
    Hippie, don't let ANYBODY tell you it is all in your head! Doctors seem to be especially good at that. Too many of us have heard it for years and years, and many here were on antidepressants and other psychotropic drugs, when really they needed to be on a gluten-free diet. If the doctor you are seeing is another idiot, go to the next one. Your illness...
  7. Ursa Major
    Oops, yes, of course you said that the pain is on the left side. So it really can't be the gallbladder. I hope that your doctor will figure out what causes the pain.
  8. Ursa Major
    This sounds so much like what happened with my youngest daughter! I had her tested last fall by Enterolab just before she turned 16. Two years ago her blood tests were negative (one a high negative, though) and she refused to try the gluten-free diet as a result. As with your son, she was getting more unhealthy all the time. Not dreadfully sick, just...
  9. Ursa Major
    Meline, being lactose free and being dairy (casein) free are not the same thing. In order to be dairy free you would have to stop eating (and drinking) ALL milk, cheese, yogourt, sour cream, milk chocolate, cottage cheese etc. And just taking Lactaid wouldn't work if you are casein intolerant. Soy is in so many things that unless you read labels and avoid...
  10. Ursa Major
    My youngest daughter was doing terrible in highschool. In grade nine she managed to get seven credits, but she failed all but one subject in grade ten, and didn't manage to get any in grade eleven. Towards the end of the first term in grade eleven I finally ordered the Enterolab tests for her, even though we couldn't really afford it. She had a blood test...
  11. Ursa Major
    Any scratched non-stick bake and cookware should be replaced. If it isn't scratched it should be okay after a good washing or two. Anything you can scrub properly (like glass and steel) and that doesn't have sharp corners is fine after you give it a good scrubbing so that it shines and looks completely clean. You absolutely cannot get all the gluten out...
  12. Ursa Major
    Meline, if you have been gluten-free for three months, you would get a negative biopsy even if you eat bread for a few weeks. You would have to eat at least four slices of bread for three to six months (and it might take even longer) to even have a chance of getting a positive biopsy. The same goes for the blood tests. It is very unlikely that they would...
  13. Ursa Major
    I had terrible leg pains as a young child. I remember when I was about four that my mother put a child's chair over my legs and put the blanket over that, because having the blanket on my legs was too painful. All my pains went away (fifty years later) when I removed the foods I am intolerant to. But it could be something other than gluten (even though...
  14. Ursa Major
    That is TERRIBLE! Of course those tests were negative, that showed she was doing a good job of doing the diet. I imagine she will be pretty sick again soon enough. Many teenagers get what is called a 'honeymoon period' of celiac disease, when they show no symptoms, even when eating gluten. But eventually it will backfire big time, and they will get very...
  15. Ursa Major
    Of course you must realize that cc is a very high possibility in a place like that, right? Because how do you guarantee that wheat flour that is in the air won't have settled on the gluten-free pizza, or that the person preparing it has washed his/her hands in between making gluten pizza and your pizza? I understand that you are excited, but it may not...
  16. Ursa Major
    Lisa, that is just unbelievable! It is already bad enough that you had a positive blood test eight years ago, but that your doctor IGNORED four notes from doctors suggesting celiac disease really should be considered malpractice. Actually, that is why I demand to get a copy of every note from specialists I see that are sent to my doctor. I want to know...
  17. Ursa Major
    Congratulations on having one of the few sensible doctors, those are way too rare. Good for you for making your whole house gluten-free, that is the only way to be really safe without constantly having to be so vigilant.
  18. Ursa Major
    Refractory sprue! (slapping my forehead) That might unfortunately be the best explanation (which isn't too reassuring, of course). Did you have another blood test? If it comes out negative, indicating that you are following a strict gluten-free diet along with extensive damage still happening in your intestines, that would likely mean refractory sprue...
  19. Ursa Major
    You are right, false negatives are VERY common, but false positives are practically unheard of. It is a travesty that your doctors didn't tell you to go on the gluten-free diet for eight whole years, just because of a negative biopsy. A positive biopsy will confirm celiac disease, but a negative biopsy can NOT rule out celiac disease. The reason is...
  20. Ursa Major
    It is possible to get celiac disease if it only comes from one side. Boy, does your father's side of the family ever sound like a whole family of undiagnosed celiacs! I did have symptoms of fibromyalgia from the time I was three years old. But I do believe that the cause were food intolerances all along. Because now that I am not eating the foods I am intolerant...
  21. Ursa Major
    First of all, yes, the symptoms can absolutely improve that fast on a gluten-free diet. In May of 2005 I got really sick with horrible diarrhea, terrible stomach cramps and my backache got worse every day. I had no strength and was curled up in bed without it ever letting up for nearly six months. When finally in October I figured out that gluten was...
  22. Ursa Major
    The best way to handle restaurants is to call ahead of going and ask to talk to a manager. You explain the situation, and ask if he/she thinks they could accommodate you, and make sure you can eat there safely. If a manager guarantees your safety ahead of time, he/she will likely look after you themselves, as they can't risk looking bad and maybe losing...
  23. Ursa Major
    Actually, I am not being harsh. I just wanted to sort of shock you into understanding the reality of continuing to eat gluten. The probability of those things is very high, and in fact have happened to a great many people here who weren't diagnosed until later in life (including myself). My mother, who without a doubt had undiagnosed celiac disease is...
  24. Ursa Major
    No, the Enterolab testing is still accurate up to a year after eliminating gluten. Which is one of the great things about it. You know, most people who wouldn't get better on a gluten-free diet found that it wasn't working because dairy kept them from getting better (and often soy as well). When your villi are damaged you can't digest dairy and absolutely...
  25. Ursa Major
    Sara, that must be very frustrating, especially if you know you are following the gluten-free diet. Is your house gluten-free? Is there a chance of cross-contamination? Have you checked all your medicines (if you are taking any) and vitamins to make sure they are gluten-free? Are you sharing a toaster used for gluten bread with somebody else? Or a colander...
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