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Ursa Major

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Ursa Major

  1. Ursa Major
    When I replied last night I was tired and not thinking clearly. I completely agree that the reason you were taking the Aciphex to begin with could very well be celiac disease. I get terrible reflux from gluten. I also went to the hospital before, thinking I had a heart attack because of the awful pain. They sent me home, telling me that my heart was fine...
  2. Ursa Major
    I want to add that even if they take TEN biopsies, a negative biopsy doesn't rule out celiac disease. Exactly because the surface area of the small intestine is huge, it is possible that the damage will be missed entirely. Plus, they never take biopsies any farther down than the upper third. But the damage may be below that. Taking those biopsies is like...
  3. Ursa Major
    I am glad you are getting some answers and that we were of some help. Sometimes coming here to help with brainstorming is a great idea, because somebody might think of something you would never even consider! That is so great about this forum........ many people can figure out things one person alone can't.
  4. Ursa Major
    Peanuts are a legume and hazelnuts are tree nuts. People with a peanut allergy shouldn't have any problem with hazelnuts. One of my daughters is allergic to almonds but fine with hazelnuts, the other is allergic to hazelnuts and is fine with almonds. I think that using hazelnuts should be safe. But hemp seeds might work, too.
  5. Ursa Major
    It can take a while for gluten to build up in his system, before he will have symptoms. Or he might not get any obvious symptoms now, like diarrhea, but rather stop growing. In fact, failure to thrive is the most common symptom in babies and toddlers with celiac disease. Also, since he didn't have gluten since he was a tiny infant, it will likely take...
  6. Ursa Major
    Yes, when I get glutened my joints are terrible. They are also bad when I eat rice or other grains.
  7. Ursa Major
    Yes, I agree. And without an allowance, Karen will end up being just as frustrated, because she would have a whining teenager on her hands. And it isn't possible for me to monitor what Susie eats from here, anyway. I wished I could give her things to read. But I know she wouldn't read them, because she simply doesn't want to know.
  8. Ursa Major
    Is it just almonds he is allergic to, or other nuts as well? If other nuts are fine, I would just use ground hazelnuts. I have substituted ground hazelnuts many times, and it turns out fine.
  9. Ursa Major
    Well, the funny thing is, that Adrian wanted to go on the canoe trip, he was excited about it! But he had never gone canoeing, or wilderness camping in his whole life. He had no clue what he was getting himself into. Plus, the bugs were bad, and I think he is just as paranoid as me when it comes to bugs. There were lots of mosquitoes and blackflies. I...
  10. Ursa Major
    Well, that is what we do when he is home in Germany. Here we both sit in the same room, me on my computer and he on his laptop, and once in a while we talk to each other. It works fine for us. Mind you, it looks weird to other people, they don't understand. Somehow he can't connect to our wireless Internet connection upstairs, somewhere it encounters a...
  11. Ursa Major
    Scientists have evidence that 33% of people have celiac disease, but also that possibly up to 70% of North Americans are gluten intolerant without their villi being affected. So, I believe that most people would benefit from a gluten-free diet. Your wife apparently is one of them. It sounds like you two need to be gluten-free together.
  12. Ursa Major
    Have you had that problem since going gluten-free? If you haven't, then you did have symptoms. You know, only a minority of people with celiac disease have the 'classic' symptoms of diarrhea and weight loss, most of us have other symptoms. Including mental problems. I used to have a sore throat a lot and occasional problems with swallowing, too. I agree...
  13. Ursa Major
    No, one week shouldn't matter, especially since you will start gluten again afterwards. Just make sure you have eaten gluten again for at least a week before doing the blood test. Your villi can't heal that quickly, and it shouldn't effect a biopsy at all. Enterolab testing will be accurate up to a year after starting the gluten-free diet, so that venue...
  14. Ursa Major
    Adrian knows I like him, I don't have to tell him. I fixed his situation at home in Germany last year when I was there for six weeks. I reconnected him with the rest of the family, and he was happy about that. His parents were divorced when he was six, and his dad never lets him know of family events (Adrian lives with his mother and stepfather, and his...
  15. Ursa Major
    Apparently, three days is enough for you to realize that gluten is a problem for you! Because you are already seeing positive changes. If you are on the diet for longer than a week, any testing you will have may turn up false negatives. You may have worse reactions to gluten even after a week. I understand why you would want to have the official diagnosis...
  16. Ursa Major
    Thank you all for your responses. It just seems so ridiculous that Susie insists on having all those expensive gluten-free foods bought for her (which normally I don't have around, because I can't tolerate them) and then cheats when not at home. It seems like an awful waste! And what Karen does to Zoey really gets me. That child was not doing so well...
  17. Ursa Major
    I was also undiagnosed for 49 years (I had obvious symptoms from the age of three, but I guess nobody thought of celiac disease). I finally diagnosed myself. Hooray for the Internet!
  18. Ursa Major
    Okay, this is a vent. Read at your own risk. Some of you may remember that two years ago I had one of my nephews here for five weeks. He obviously has (undiagnosed) Asperger Syndrome and doesn't have a clue on how to interact normally with other people. He turned 17 two summers ago, and is leaving on his 19th birthday to go back to Germany this time...
  19. Ursa Major
    Susie, my sixteen-year-old, has been gluten-free since December 2007....... or so I thought. She was diagnosed by Enterolab with a high malabsorption score. Due to family and school problems, she is living during the school year with my second-oldest daughter, her husband and two children. This daughter is gluten intolerant, too, as is her two-year-old...
  20. Ursa Major
    It is hard for a child that young to understand why he can't eat the foods he sees lying around. It would be better if the baby's food would be gluten-free, too, so if he eats some of it, then it won't be a problem. The same goes for your other foods. Either keep them out of his reach entirely, or make your house gluten-free to keep him safe. You know...
  21. Ursa Major
    I don't understand why the high reaction to gliadin in your stool test was just ignored. That, coupled with all your awful symptoms after eating wheat certainly suggests celiac disease to me. You could just stop eating gluten and get well. But if you want official testing done, you need to keep eating it until after the tests are done. Just be aware that...
  22. Ursa Major
    Yes, that sure sounds like DH. With you and so many other relatives having celiac disease, I think you can be pretty confident that is what it is. You can always have him tested with Open Original Shared Link, even after he starts the gluten-free diet. If you could get him to see a dermatologist really soon to do a skin biopsy (beside an active blister...
  23. Ursa Major
    You think that your daughter only has minor symptoms. But constipation, anemia, some behavior issues and very small for her age are symptoms that show quite severe malnutrition. And my guess is that it is caused by celiac disease. Growth issues, anemia, behaviour problem plus constipation and/or diarrhea (I used to go from one to the other) are typical...
  24. Ursa Major
    You've got an excellent doctor! Yes, ALL those problems could be caused by celiac disease, and his recommendation to try the gluten-free diet is a good one. What have you got to lose? The gluten-free diet is healthy, and it might just be what you need to finally get better. I have a hiatal hernia as well, and it doesn't bother me any more now that I...
  25. Ursa Major
    Your son's personality changes are a very common symptom of celiac disease, not just in children. Those temper tantrums are typical, and so are the other problems. I've heard (and seen) that a lot of kids will turn into absolute little monsters on gluten, while thy are sweet little angels (most of the time) on a gluten-free diet. Six weeks back on gluten...
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