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Ursa Major

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Ursa Major

  1. Ursa Major
    Pretty much everyone who has celiac disease is at least lactose intolerant until the villi heal. The reason is, that the tips of the villi are supposed to be producing the enzyme lactase, which allows people to digest dairy. Having said that, a lot of people with celiac disease are also casein intolerant (me included), meaning that we can't tolerate any...
  2. Ursa Major
    If you have celiac disease, it is never too early. We have members that had osteopenia or osteoporosis already as children or teenagers! Lots of people with celiac disease have osteoporosis already in their twenties. Make sure you have enough calcium, magnesium and vitamin D. They all work together. Without vitamin D you can't use your calcium.
  3. Ursa Major
    So, what was the explanation they gave you for the inflammation? Because something obviously caused it! And the likely culprit is gluten, of course. I am glad you are starting to feel better. Don't let anybody tell you its all in your head, we've all heard that and they are WRONG in saying that! There are so many ignorant, arrogant doctors in this world...
  4. Ursa Major
    It could be that now your body realizes that dairy is a problem, which can definitely cause diarrhea. I would advise you to eliminate it for the time being. The same goes for soy. It could also be the baking going on in your house. It would be advisable if your wife would stop baking with wheat flour in the house, as flour particles will be in the air...
  5. Ursa Major
    Since you can't stop the child touching the cat (the cat eats and then grooms, leaving gluten all over her fur), just removing the cat's dish to where the kid can't get to it is useless. You would do well to put your cat on a gluten-free diet as well (which is MUCH healthier for the cat) and buy gluten-free cat food (yes, it is available) to stop your...
  6. Ursa Major
    You know, I think you have an ignorant doctor. Just because you don't show to be deficient in those few vitamins you have been tested for does NOT prove that you are not deficient in other important nutrients! For your sake and your future baby's sake, I hope you don't manage to get pregnant before you have been on the gluten-free diet for at least six months...
  7. Ursa Major
    I agree with ShayFl. Now is not the time to eat any officially gluten-free replacement products. And you may need to eliminate ALL dairy from your diet, because it may not just be lactose intolerance, but rather casein intolerance. If you are using soy products, take those out of your diet as well. Just eating naturally gluten-free foods like meat, fish...
  8. Ursa Major
    The maltodextrin could be made from barley. Because wheat free doesn't equal gluten-free, it could still contain gluten. I don't trust anything with maltodextrin myself.
  9. Ursa Major
    The problem with any brand of chips is this: If the chips are just plain and are not produced in a facility that also produces wheat, they are safe (or should be, but aren't always). But I read that chips that have coatings (like ketchup, barbecue, sour cream and onion etc.) are never gluten-free. The reason is, that they use gluten to make those flavourings...
  10. Ursa Major
    Tim, she just had her biopsy, and had a blood test, too. The doctor said to wait with starting the diet until after the biopsy results. The only good reason for that is, that he will say she definitely doesn't have celiac disease if the test is negative, and she won't need to be gluten-free. We all know that a biopsy can never rule out celiac disease,...
  11. Ursa Major
    What does he eat for breakfast? It could be something he is sensitive to on an empty stomach, or maybe his digestive system won't function before a certain time. If I would eat a banana first thing in the morning, I would get awful stomach cramps. But if I eat one once in a while in the afternoon, I am fine. I find I can't really eat much early in the...
  12. Ursa Major
    Celiac testing is notoriously unreliable in children under six (and not a whole lot more reliable after that). There is no way that a doctor should say that it can't be celiac disease because the blood test was negative. At your son's age trying the gluten-free diet is the ONLY reliable test for celiac disease. So, my advice is to start the gluten-free...
  13. Ursa Major
    The only reason they have decided to make 20ppm the limit when declaring foods gluten-free is, that they truly think that food is safe for us if it contains less than 20ppm. Whoever 'they' are, they are wrong. Obviously, the claim that you can't test for gluten below that is simply untrue.
  14. Ursa Major
    Those stool tests doctors do for parasites test for very few of them and will overlook most. Meaning, that they are quite meaningless for the most part. When I got really sick, I was tested for parasites, too. Everything was negative. When I eliminated gluten, the D that I had for six months straight without letting up went away the next day! And I...
  15. Ursa Major
    You would do well to not even try getting pregnant for at least six months after going gluten-free, a year is better. The reason is, that until your villi are healed, you will not absorb essential nutrients very well. Meaning that neither you nor the baby would get what you need until you can absorb foods properly again. I have heard of people getting...
  16. Ursa Major
    Testing for celiac disease is extremely unreliable in children under six at the best of times. There is no way your son would test positive, even if you manage to force him to eat wheat for a limited time. Damage needs time to build up, and young children usually don't test positive unless they are pretty much near death. Really, you know that wheat hurts...
  17. Ursa Major
    Peter, what I am saying is, that I wouldn't eat food that has wheat starch in it, as there is no way it is actually really gluten-free. As far as I am concerned, if no wheat, rye, barley (usually in the form of malt) is purposely put into food, and the company is very careful about cc, then I would eat the food. I don't so much care about the testing...
  18. Ursa Major
    I don't see any reason whatsoever for waiting until after you get the results to start the gluten-free diet. Will he tell you that she should keep eating gluten if the biopsies are negative? And what is it, four, five or six samples? Two more can make the difference between a negative and a positive biopsy. Anyway, even if ALL the tests are negative, they...
  19. Ursa Major
    Those gluten-free replacement foods are very hard to digest. For the first six months it is advisable to stay away from them, to allow your intestines to heal. And it is also a good idea to stay away from all dairy and soy for the first few months as well, as they can hinder healing. Yes, naturally gluten-free foods are best at the beginning. I couldn...
  20. Ursa Major
    I tend to think like you. If something says gluten-free, I believe that it should never intentionally contain anything that may have gluten. Like wheat starch or wheat germ oil. In Scandinavia, they have a limit of 200ppm for products aimed at people with celiac disease. I read of a big celiac conference, where people came from all over the world. Gluten...
  21. Ursa Major
    Do you think they will actually bother to do it once they are on their own? Personally, knowing young people in their twenties (four of my five kids fall within that category), mine wouldn't do it. My oldest (who is 28 and getting 'older and wiser') just put herself and her five kids on the gluten-free diet without testing, with great results. But the...
  22. Ursa Major
    The GI doctor should not just do a colonoscopy, as that is looking at the large bowel. For celiac disease he needs to do an endoscopy (small bowel) and do biopsies from that. He doesn't sound like he knows what he is doing.
  23. Ursa Major
    I don't eat fruits other than peeled pears and golden delicious apples, because those are the only two fruits low enough in salicylates to be safe for me. Berries especially will make me ache by the next day. If I eat one regular orange today, I will need painkillers for the awful muscle pain tomorrow. Normally salicylates are good for people. Organic...
  24. Ursa Major
    So, why not have them both tested by Open Original Shared Link? It can't officially diagnose celiac disease, but can diagnose gluten intolerance, and they do the gene test as well. It won't be cheap, but you will never have to worry about any diagnosis in official records. And you will know if they should be on the gluten-free diet or not.
  25. Ursa Major
    Marcia, my blood pressure was 85 over 55 before I started fludrocortisone. The reason was, that my aldosterone level was at a dangerously low level. Within two weeks of taking the fludrocortisone (on top of salt loading, which I had done for a couple of months before that) my bp was normal (still on the low side, but acceptable) and my energy went from completely...
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