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Latest Celiac Disease News & Research:
Everything posted by Ursa Major
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ARCHIVED I Am In Agonizing Pain
Ursa Major replied to Ursa Major's topic in Introduce Yourself / Share Stuff
Okay, here is an update. I might as well let you guys know what is happening while I wait to get tired enough to maybe sleep despite the pain. The oral surgeon is an awesome young man (probably in his thirties) with a great attitude, who takes the time to answer questions graciously (it doesn't hurt that he is very handsome ). I explained about all... -
ARCHIVED Please Help Pregnant And Self Diagnosed
Ursa Major replied to onelildream's topic in Coping with Celiac Disease
You can have the blood work done while you are pregnant. Just not the biopsy. If your celiac disease blood work is positive, and you have a positive response to the gluten-free diet, that is also diagnostic for celiac disease. Also, you could have your rash biopsied by a dermatologist. If it is positive for DH (dermatitis herpetiformis), which is ONLY... -
I have the opposite problem from Bully4You. I cannot handle too many raw foods without problems. In fact, I was unable to eat ANYTHING raw for the first six months of being on the gluten-free diet, or I would get terrible stomach aches and diarrhea. I had to cook all vegetables and fruits to a mushy consistency or it would be a problem. I still can't eat...
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Hi everybody, I would appreciate your prayers. Some of you will remember me having an abscess and being in awful pain with my last left bottom molar a few weeks ago. The antibiotics got rid of the inflammation then, and I saw an oral surgeon who was going to attempt doing a root canal. But his nurse took my blood pressure, and due to doing a parasite cleanse...
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ARCHIVED Does Dh Always Equal Celiac?
Ursa Major replied to GravStars's topic in Dermatitis Herpetiformis
It does say that DH is cured by complete elimination of gluten. Why is that? Apparently because DH is caused by gluten intolerance. Sometimes people with DH have also villi destruction, and sometimes they don't. The fact is, that some people with gluten intolerance have villi destruction, some have DH, some have only neurological symptoms, and some... -
ARCHIVED Coping With Angry Feelings
Ursa Major replied to FoxersArtist's topic in Parents, Friends and Loved Ones of Celiacs
I can understand your anger completely. Something similar happened to me with my youngest daughter, Susie. Susie is 16, and we finally proved that she is gluten intolerant through Enterolab last year in December. I had known that she has a big problem with gluten as soon as I figured out my own gluten intolerance two and a half years ago. She was spaced... -
ARCHIVED Post-partum Celiac?
Ursa Major replied to ut96grad's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Sheri, and welcome to these forums. Yes, unfortunately it is not uncommon for pregnancy to trigger the celiac disease genes and to bring out celiac disease in people. Quite a few members had that happen. I am sure those women (who are most likely sleeping right now, of course) will chime in soon. -
ARCHIVED 6 Year Old Gluten Free And Still In Pain
Ursa Major replied to Julia'sMom's topic in Parents, Friends and Loved Ones of Celiacs
I just finished a parasite cleanse that only costs $29.95 plus shipping (another $3.75 I think) and when I showed it to my naturopathic doctor he told me that it was better (and much less expensive) than what he had been using with his patients, and he was switching! Here is the link: Open Original Shared Link I must have had a million parasites come... -
ARCHIVED Where Is He...?
Ursa Major replied to FoxersArtist's topic in Parents, Friends and Loved Ones of Celiacs
Anna, I am so happy for you, I am sitting here crying! That is just amazing. What a terrible loss it would have been if you wouldn't have figured it out and put him on the gluten-free diet. I wonder what would have happened if my mother would have had a clue with me. She told me (in a resentful voice) when she was still alive many years ago, that I refused... -
That is awesome, and makes your life so much easier! At least you will never have to wonder if the doctor is going to support you when it comes to celiac disease.
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ARCHIVED Wondering If Its Okay.
Ursa Major replied to Ericka's topic in Introduce Yourself / Share Stuff
Hi Ericka, and welcome to these forums. As far as I am concerned it is nobody's business but your own what you eat or don't eat. And it is definitely perfectly safe to determine that gluten makes you ill, and that you are better off without it. Many people here (including myself) are self-diagnosed, mainly because our doctors have failed us and diagnosed... -
I agree that you sound like you have hypothyroidism. Do you remember what your numbers were when you were tested? Check out this website, they have great information. Also, make sure your adrenals get tested as well. Most people have adrenal fatigue when their thyroid has been out of whack for a while. Open Original Shared Link
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ARCHIVED How Important Is Biopsy For Diagnosis?
Ursa Major replied to jasonD2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
As has been said, in order for a biopsy to have any value for diagnosing celiac disease you either should have it BEFORE trying the gluten-free diet, or you have to go back to eating a ton of gluten for months. Which is NOT a good option at all, and quite risky health-wise. And even if you do it right, a positive biopsy would confirm celiac disease, but... -
ARCHIVED Can Low Iron Cause False Results?
Ursa Major replied to sazzie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
First of all, your doctor didn't do the whole celiac disease panel when he did the tests. But your ttg level being so high certainly means something! Anemia is one of the most common celiac disease symptoms. If your celiac disease was just triggered recently, the damage to your villi may not have progressed to where your blood work would be positive, and... -
ARCHIVED Anybody Gone Back On Gluten For Biopsy?
Ursa Major replied to scottyfeelsick's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Even though some people seem to be healing quickly after doing a gluten challenge, others here got extremely sick and developed some permanent damage as a result. It is very risky to go back on gluten after being gluten-free for several months and could even result in developing other autoimmune diseases. After five months gluten-free one month on gluten... -
Hi Lizzie. I am sort of stumped by your question. I think that this forum software allows for stuff like that, but we don't have any forums you subscribe to, or pay for. I did check it out, and when clicking on payment options, it says that there are no options. And that makes sense. This forum is owned by Scott Adams, who owns the Gluten-Free Mall...
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ARCHIVED Guess Who Decided To Go gluten-free!
Ursa Major replied to celiac-mommy's topic in Coping with Celiac Disease
Hooray for your husband! I wished mine would try it as well. I really hope that he will improve quickly so he sees that he needs to stay gluten-free for good. -
ARCHIVED How Long Before I Heal
Ursa Major replied to Froger850's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi, and welcome to this board. Believe me, it will get easier after a while and second nature. No, an accidental glutening, while setting you back somewhat, will NOT put you back to square one. Unfortunately, especially at the beginning while you learn, accidental glutenings are pretty much unavoidable. Try not to freak out when it happens but consider... -
ARCHIVED 21yr Old Female- Newly Self Diagnosed...
Ursa Major replied to kiwi-girl's topic in Coping with Celiac Disease
Now I don't want to burst your bubble, and you really may have celiac disease. But all your symptoms, especially the itchy anus and little bumps sound like it could be parasites, too. Maybe both, in fact. I am most certainly intolerant to gluten, there is absolutely no doubt about that. But I just did a parasite cleanse, and must have had a million parasites... -
ARCHIVED Happy Birthday Ursa Major!
Ursa Major replied to jerseyangel's topic in Introduce Yourself / Share Stuff
Thanks, Steve. Yes, you are right. I think I would have killed somebody if they would have bought me something extremely practical like a vacuum cleaner! But it appears that by now they actually know better. In the meantime I figured out the frame, and put some pictures on (I made a start, anyway) and it looks really neat, with a calendar and time... -
ARCHIVED Happy Birthday Ursa Major!
Ursa Major replied to jerseyangel's topic in Introduce Yourself / Share Stuff
Thank you everybody for the birthday wishes. After some upsets plus obviously getting glutened by something yesterday, I had a sleepless night, with maybe three hours of sleep last night. I woke up early anyway, and decided to clean my house and bake my own cake and cook my own supper, as in the past most years nobody would do a thing for me on my birthday... -
ARCHIVED Find A New Doc/allergist?
Ursa Major replied to slmprofesseur's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It sounds like you and your son both have celiac disease. Since you have been gluten-free for a while now, a new doctor might decide you should go back to eating gluten for testing. Because at this point any celiac disease tests would likely come back negative. You have to actively eat gluten for quite a long time again for tests to come up positive. Really... -
An awful lot of people with celiac disease have had their gallbladder out, many in their twenties. I think gallbladder disease is much more common and hits earlier in life a lot of the time with people with celiac disease. I had my gallbladder out 15 years ago, when I was 40. I was not gluten-free then, as I didn't find out I am gluten intolerant until...
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ARCHIVED Most Common Additives In Restaurants
Ursa Major replied to huevo-no-bueno's topic in Food Intolerance & Leaky Gut
Flour in butter? What a crazy thing to do, I'd never have guessed at that one. But that reminds me that I found out the hard way that some restaurants use flour in mashed potatoes! -
ARCHIVED Most Common Additives In Restaurants
Ursa Major replied to huevo-no-bueno's topic in Food Intolerance & Leaky Gut
Could it be monosodium glutamate? The symptoms you describe fit msg I think. Especially the headache.