Rusla

I had three on my thyroid. Four endocrinologists refused to see me because "they weren't big enough" yet. Then they would take them out. I got my non endocrin and non family doctor to give me synthroid and I got rid of them. Why could the other doctors say, "well let's see if we can get rid of them with synthroid," well, because they would rather do surgery then help you get rid of them.

What age were you diagnosed with celiac's/gluten intolerance?

53

What were your most common symptoms?

DH, cramping, nausea, gas, diarreah, brain fog, extreme fatigue, bloating.pains in lower abdomin.

What are your symptoms when you eat gluten now?

DH, cramping, nausea, gas, diarreah, brain fog, extreme fatigue, bloating, pains in the back, sides and lower abdomin.

Do you consider yourself more sensitive to gluten now that you try to avoid it?

It take a very minute amount of gluten to make me very ill.

Did you or your doctor come up with the celiacs/gluten intolerance diagnosis?

Me, my dentist and an allergy specialist 25 years ago and no one listened to any of us. I had to force them by having a tantrum of sorts to do a skin biopsy.

Do you have any other food allergies/intolerances?

Yes

If yes what?

Dyes and hormones injected into red meat, casein, dairy, no organic poultry

Does anyone else in your family have celiacs/gluten intolerance?

Do you consider the world celiac/gluten free friendly? No!

Explain.

People don't take it seriously unless you tell them it is a severe allergy to which you can die. Doctors don't look outside the box and think you are neurotic. You have to drive all over the place to get food that costs double and triple of normal foods. You have to go to health food stores to get morst of your foods. You are afraid to eat out at a friends place in case you are glutened, many restaurants are not very accomodating. It is getting slightly better by the fact there are becoming more good tasting Celiac foods out there but still not enough.

Do you think we need better food labelling laws?Yes!

Explain. First; all countries need to bring in a "full disclosure law," meaning that that they have to disclose the smallest amount of anything that is used in their product. Including the facility and machines they are made with, in case they use the equipment for other things.

Does the world in your opinion need to be more educated about celiacs and gluten?

Yes.

1) The governments should cut the comedy by saying stupid things like 1/200th is safe. What is safe for one is not safe for all.

2) governments should make this a disability because when we are glutened some of us are severly disabled by it for days or even weeks. Not only that but it makes it hard for many to work when you fear that you may get glutened every day of your life at your job.

3) The cost of our food should come down to a reasonable level.

4) The public, government and doctors should be taught to look past the end of their nose.

5) Doctors should be taught that not every answer lies in a test, thinking is important and to quit treating us like difficult neurotic children.

6) There should be be classes and information to the public and politicians on what Celiac and gluten intolerance are and what they can do to your life.

Everyone gets to thinking that it is serious if you are allergic to peanuts but we are just being "picky and difficult" because we don't drop dead on the spot from gluten.

You may not get a reaction but it will still do damage to your villi. Perhaps it is waiting till you think it isn't going to react then it will whack you with a whammy.

I don't know where you are but if you have a Planet Organic nearby. I think they are only in a few places in Canada. They have a gluten-free booklet that they will give to Celiacs, with their own brands that are gluten-free in them. I won't touch anything that has been produced in a facilty where wheat has been. I am suffeing right now from eating a mini Mars bar and not reading the package first. I thought they were the same as the big ones. It is nice that Kirkland is disclosing everything.

We may have some crap on here but it is good crap. Especially when we haven't been glutened then our crap is good. Mature, sometimes. Whacky, most of the time. Believe in fun, all the time.

Stick around and party down with us.

Everytime I go to worry I worry that I will be glutened by accident.

You can get glutened by a couch if by mistake you ingest any of them. They could get on your hands and you could touch your mouth or eat something a few tiny crumbs could be on your hands.

The bigger bars of Mars and Snickers are fine, I have always been okay with them. I just called them about why the barley malt in the mni's and they said they are made on the same machines as all the mini bars. So, avoid the mini bars of Hershey (hershey mini's) they have told me their mini's are also made on machines that other bars are made on just like Effem (mars, snickers, etc.)

Betty Hagmans books are great and there is quite a few of them.

Beware the bite sized Mars bars. I thought they were like the big ones and I did not read the package, I just ate one and I have broken out in DH on both sides of my mouth, the big C and feel gross.

Welcome to the board.

You maybe be very sensitive, like I am a few crumbs can make me sick. I have to wear gloves when I clean off my desk at work with alcohol wipes but i know if I ended up with hidden crumps by if I get a reaction. I never eat in the lunch room at work because it is loaded with gluten. All our desks and equipment except our headsets are shared. You should check these things out also.

You know you are Celiac if ...

...you do the happy dance when you find some place that has gluten free food.

...you get excited if you find something new in the store that is gluten-free.

...you hug the store manager when they give you a book of the gluten-free products in their store.

...you find yourself explaining to the cats why you have changed their food.

...you pick up a package in the supermarket and read that it has wheat in it, you scream and yell "poison".

...you go to a potluck at a friends place and your dish is gluten-free. You dive into it first so that you get something to eat before others contaminate it.

...someone goes to kiss you and you say you can't do that because "you don't know where their lips have been" and that they could have gluten on them.

...you jump out of your chair at work and snatch your water bottle away from where they just sat the box of donuts down. Then you say, "are you trying to poison me?"

...you weep when you see rolled oats in the supermarket.

I have taken a carry-on full of food when I went to Jamaica, they thought I was insane.

Bee Hive and Old Tyme and any syrup made by the company that makes these is gluten-free.

They had to do the skin test on me three times because with some it was immediate, many I reacted 2-3 hours later and some a whole day or two later. Being a delayed reactor is somewhat unusual so they tell me but I believe it is more common than they think.

Can you describe this rash. It maybe be an allergy to the soap or it may be dh but you would need to describe it so that we can could ascertain which it is.

Another place you may want to try for Chinese food is Hi Ball restaurant in the Stadium shopping centre across from the Foothills Hospital. They are great and i have never been glutened there. My mother and I go and she eats normal and they know the way mine have to be prepared. Tonight I had steamed rice, Rice noodles with shrimp and curry and chicken with black bean sauce.

Young missy my foot. I am probably old enough to be your Mother - will maybe your MUCH older sister - He He.

I think you may be delusional, I know the gluten did it.

They made a mistake on your birth certificate just like they did on mine. I think they made a mistake on many of our birth certificates. You are probably young enough to by age or my slightly older sister. You are a spring ostritch, look at that perky look on your face.

I went to a movie with a friend and had about ten pieces of popcorn with that buttery topping. Boy was I sick and I had an outrageous breakout of DH also.

When I was pregnant I drank lemonade and ate salads, everything was coming back up anyways. The only thing I could keep down for any length of time were those things for ten months.Oh and huge bottles of green olives, never liked them till I was pregnant.

I know what you are up to young missy.

Those whips and high black leather boots really helped, didn't they mouse.

I checked out my cherry coke and it does have caramel coloring to it. Isn't that a barley product? I know I was told I couldn't have any carmal coloring.

Caramel coloring in north america is gluten-free.

I was in the new Planet Organic by my house yesterday and it was awesome. They have tons of gluten-free stuff all over the store. The manager was so helpful and they have a booklet that they will give Celiacs that has all of their own products that are wheat/gluten-free and it has recipes in it also. I went nuts and got Glutino sesame pretzels and some trail mix, Spinach pizza and some penne pasta that is wheat and gluten free. I went mad in there and they also carry "Seeds of Change" foods, tons of glutino, tinkyada and kinnickinnik.

MSG should be outlawed, as it really doesn't enhance the product. You can enhance flavors with spices. I have been allergic to MSG for forever. As msg contains hydrolyzed vegetable protein which more often than doesn't contains gluten and is a big no no for us.. It is safe to say stay away from it. My problems with it started in my late teens when they started adding it to everything. If I ate something that had it in it my tongue would crack and bleed, headaches, and spending copious amounts of time in the bathroom. Guess what KFC has the highest amount of in their chicken breadng...you guessed it so, in essence in that bucket of salt people buy is a bucket of msg and gluten, more gluten than chicken.

Well then they should all start being gluten-free. Perhaps we should all write to head office.