Rusla

Sorry, I was just making sure for my own selfish reasons. I bought it at Save-On Foods. I've been wary because it contains maltodextrin, which I'm not sure if I react to or not. It's the weekend, if I am brave I will try it.

Maltodextrin is okay. Let me know how it tastes. Maybe I will sneak down to the US this year and buy bigger bra's so I can stuff them with Tofutti Cheese and get them across the border...

Where in Canada do you live, maybe I can go over there and get some. We don't have a save-on in Calgary that I know of.

I have always had nightmares but my worst one to do with gluten was being held prisoner in a room. The had me tied to a chair and were trying to force donuts and bread into my mouth. I wasn't that crazy about donuts before going gluten-free.

Kraft Chicken and ribs BBQ sauce contains bran. Kraft is very good about listing their ingredients.

However, in Alberta the fearsome US health care system is looming on our horizon thanks to our drunken, moronic Prime Rear.

I hope you will be totally happy at the happiest place Hez. Have a terrific trip all of you who are going there. I would have went with my son and his kids but my trip to Jamaica is at the same time...sorry, Jamaica won.

Actually you are right, their cheese is supposed to be. However, I can't buy it anywhere in this city and so far none of the stores will bring it in. Hopefully when Planet Organic opens a store near me, I will see what they do for me. Until the only thing I can get is goat cheese.

I should have elaborated and said, "I have not been able to find any in this city so far." I don't know if other stores in Canada carry it or not.

I can say I will not be eating Hershey kisses again. The only thing I have had today besides tofu, and fruit is the 10 kisses. I have a DH outbreak going on.

Is that the new slogan for our t-shirts? "Gluten free is beautifull"

Don't forget our "The Girls of Celiac Disease" Calendar. We can sell them together. Maybe we need a website, sell the shirts and calendars. If firemen and policemen can do that...then so should we.

I have big time pain in my hips. Some days I can barely walk. I used to race walk and would like to get back to it but right now it is not feasible with the pain.

Well, I figure someone is enamored with my avatar, as it refuses to let me change it. All it has done is shrink the present one...go figure. No new pictures for you folks. Go figure, soon as I say that it pops up...lol

I have gotten the same type of pains. However, I have in these two months been accidentally glutened. It could be an accidental glutening or it could be the body continuing to cleanse itself. With many years of gluten in our bodies it could take a fair bit of times to cleanse the body.

I just had 10 hershey kisses before I got on line, I feel so sick now. Then I read this and now I am wondering, what is in those kisses, really. Someone told me most chocolate comanies (big commercial ones like Hershey etc.),use wheat as a binder but don't list it and now I wonder about Hershey.

I have not found a soy cheese yet that is casein free. However, look for hard cheddar goat cheeses. I have managed to get some that is casein free.

Even though for many the blood test works but then, there are others where the blood test shows negative and you have to go through the other tests. I fear giving the insurance companies the idea that all it takes is a blood test, would cause them to freak out when biopsies rear their heads.

Not only that but many may run into the same thing I did with my former doctor. He not only did not know what the blood test was called but the fact that you need to be on gluten for 3-6 months prior to the test.

I think it would be best to say, "there are two to three tests that can be done to determine this disease and both are fairly inexpensive in regards to the alternatives” Then, alluding to the out come if it is not diagnosed in time and what the costs monetary and health wise could result from ignoring this disease.

In view of the pharmaceutical companies being upset over losing money, so would the government. The government gets a huge kickback from pharmaceutical companies. That is why the government has been trying to block natural remedies.

Italian on my mothers side and Scandinavian on my fathers side.

I'm with BroncoBux just post it to the list that, way you only have to do it once.

It sounds like the flu everyone but me at work has been down with it and for more than one week. My mother had it so bad for three weeks. Actually at the beginning of it at the walk-in clinic I thought she died and I think she almost did that night when for 4 minutes I could not get her to react or breath.

It would be very useful if we could get some corporate sponsorship of some type. Which could get Celiac Associations to get on board with this and send out information packets to schools, companies, restaurants etc. This is also where the Oprah thing would have helped.

Celiac Disease...You or someone you love could have it.

Or something like that.

I cannot fathom anyone who is a baker not knowing that the flour he is using is from wheat.

Fairy,

It sure sounds like Celiac to me. If you biopsy showed it or signs of damage you have it, all the other tests are moot. The thing is many time the blood tests will come back with false negatives because you need to be on Wheat/Gluten for anywhere from 3-6 months straight. So, if you feel better gluten-free/wheat-free then you already know what you are and avoid it big time. I have just changed doctors due to one who wouldn't do anything and believe me I have had mine confirmed through skin biopsy, I will not do a gluten challenge again for anyone.

Celiac culture is like Deaf culture, people who sign or are deaf have different jokes than the rest of the population. To them it is funny, others don't understand. Celiac is the same way, only we can find humor in our condition.

It can take quite awhile to feel normal, I still don't but then I really don't know what normal is as, I don't think I ever was. I have also only been gluten-free for two months and the least little bit of gluten (by accident) takes me down that awful road.

You probably had Celiac long before WNV but it brought everything to a head. Many of us here have had Mono and that is when it went mad for us. My mono was a very long time ago. So for me to have normal will be a surprise.

Welcome to the group. Tons of support and good information here.

Here are a few more.

You know you are Celiac when you go to the store and make them bring out the ingredients to all the dressings on the salads.

When you grill people who work at restaurants as to what is in something, how it is made, can it be made in a clean pan. By the time you are done they look like a deer caught in the headlights.

When you find shampoo/conditioner, food that you can eat at the store in a restaurant and you get all excited and do the "happy dance."

I have lost weight and continuing to do so and yes I need to, if I get glutened in the minutest form. I gain five pounds instantly.

DH can also appear that way. Mine does and I get it from the corners of my mouth along the bottom of my lower lip and up by my nose.