dlp252

I'm not sure the floaters are an indication of anything specific, but the one I usually have is usually only noticable if I look at something light...in the last couple of days there are a lot more of them and I can see them over more colors. Weird.

I agree Carla, nail polish is too troublesome to keep up, lol. Sure looks pretty, but unfortunately mine is only pretty for a day. My toes last much, much longer...the polish will look good there for at least 3 weeks. They are a much prettier purple today...I picked my outfit for church today just to show off my toenails.

Well, I can't get to the previous page again. I've even tried viewing the thread withouth avatars and signatures, but it still won't load.

Forgot to say (I think) that I love your yard Rachel. The first thing I thought of when I saw it was "wow, that looks like my dad's yard"! That's a great compliment, lol...he was a great gardner and took a lot of pride in his yard. He, however, never made a waterfall. Truly amazing!

Another thing I've noticed in the last couple of days...more floaters. I've got one big one that I see all the time--it's always there...looks like one of the pictures Carla linked to a few months ago of spirochetes. In the last day or two I have several more. One is kind of long and squiggly and there are several short squiggly ones. Almost all of them had one end which has a little "ball" shaped thing on it.

Donna, my toes are purple, but I do my fingernails in green once in a while, but not often.

on the attack bass! I think I might have tried spear fishing. Oops, I mean I would have found a lovely NEW pond for that fish. I WISH I could wear polish on my fingers. I seem to do okay with it on my toes, but if I polish my fingernails I seem to react. Can't figure that one out, but I just go with it, lol. It almost feels like my fingernails are smoothering and can't breathe, and then I start getting head symptoms.

Thank you for the compliments on my pic. I did not think I looked good at all. I have no make-up on. I hope to get a better pic done soon. That was not my best photo, but it was more current.

I LOVE this new picture!

As far as I know, you are supposed to do the Candida diet for at least a month prior to taking Nystatin or any other antifungal. This minimizes your chances of a herx.

I've heard this too.

no rachel- no furry friends for me but I have a plant that I have had for 7 years- and to me that is impressive. Oh if you want to count alll the mean little beasties recking havoc on my system I am the mother to many!!!

Yeah, the mean beaties keep me plenty busy...and I forgot about my dad's plant that is still alive...

HAPPY MOTHER'S DAY TO ALL!

I am not a mom at the present time, lol. The only living things I care for at the moment are the mold and dust mite spores, lol. I'm doing well at keeping them healthy. Once I regain my health I will get another dog or maybe two!

I can't get to page 1039 or 1042 either...seems to be every three pages or so. Once I post this message it will take me to the last page, which I hope is still 1042, lol. Really stupid dial-up!

Oh no, not here

Agreed from me as well...not here on this thread!

We could be the Sisterhood of the Traveling Toxicities. But we have Charlie too so I'm going to have to think on that one!

...

Donna- I will write you a eulogy for chocolate.

Yeah, the Siblinghood of the Traveling Toxicities just doesn't have the same zing to it!

Thanks for teh eulogy! I AM eating the remaining truffled walnuts though...I may get sick, but I'm finishing them.

HAPPY MOTHER'S DAY TO EVERYONE!!! (IT'S ME ROBBIN!)

Hi Robbin! Glad you stopped by...come back more often!

I think on that page you asked about "The EX"??

Well I've got lots to say about the ex ( just ask Andrea )....I think you were probably talking about the movie though.

Yep, the movie ex...I've heard just a little about the real ex, lol. Good, your "review" will keep me from buying it.

and yeah....I did "rough" him up a little after that.

Good, that always makes me feel better.

Happy Mother's Day to all. Enjoy your day.

Happy Mother's day Cheryl!

I dont think so either....its pretty apparant when you read the posts on LymeNET. Alot of people seem to spin their wheels on antibiotics....it just seems to reach a point where things stall or begin to regress. They need other things to get them over the hump...like Sherry posted here about her own experience. Antibiotics can be very good to a point....but they definately dont seem to get the job done by themselves.

That reminds me though....I got my Lyme bracelet from Scott the other day.

Yeah, it's pretty depressing to read over there sometimes...but then I remember that most just accept their fate and aren't open to trying other things. Hum, I hope he still has bracelets left if and when I find out I have lyme, lol. Course, then I'll have to change my purple toes to lyme green.

French toast for DINNER!!!!

Is there anything better than this???

I don't think so. I LOVE french toast. I actually like it just fine with millet bread...I'm hoping some day I can eat millet bread again, lol.

Oh, I forgot one other interesting thing from BioSET. My energy (brain) is consistently low every week, but my energy during the actual testing is generally pretty good. Susan finally made the connection today and said, your energy is good during testing but something is blocking the energy from (or to?) your brain. So she is going to try to figure out why or what could be causing that.

Eons ago...gosh, maybe at least 15 or more years ago I bought one of the Fit for Life books and tried it for a while. I don't remember much about it now, but I think at that time I wasn't sick so it wasn't important (in my mind) for health reasons, and I just fell away from it.

I absolutely think I am not detoxing properly and that is a large part of my problems. I've done a detox diet twice--both times got very sick...most likely because I was detoxing too quickly, which really just means I had a lot to detox probably, lol.

I'm sure Dr. S will discuss this all with me on Tuesday once we know exactly what all I'm dealing with.

Thanks Patti! I'm not sure I still understand what the manufacturers of the liquid vitamin mean. I'm assuming it would be okay to take with some of my other supplements since it's got vitamins in it...but maybe I'll take it apart from some of the other stuff I have to take...colon terrain comes to mind. Hum, I'll have to figure out how I can do this, lol.

Okay, I can't get to page 1036 today, lol. Stupid dial-up! I can't get to a small little thread on another board...weird! I wonder if I can adjust one of my internet settings...would be easier to do if I knew what was wrong.

I had BioSET today...we did food. Bad news...I had outright reactions to the stuff we did today, so I have to repeat the treatment next week, and have to avoid the foods for a long time. The biggest thing today was chocolate. I reacted to every single thing that had chocolate or cocoa. I reacted to almost all grains...brown rice was okay, but Tinkyada Pasta was not...can't figure that one out, lol. White rice was bad...most seeds were bad, even sunflower seeds which tested okay on my original testing with Anna. I've been eating those a few times in the last couple of weeks. Good news cashews, almonds and walnuts were all okay, so I have to rotate those. And, as usual all these bad foods were affecting nearly every organ...fibroids/uterus came up again, as did the usual stuff. Insects/bug bite didn't come up today though. So, bummer of all bummers...I can't have chocolate. I am sad. This morning when I went grocery shopping (before my apppointment) I found truffled walnuts. OMG...they actually looked like I could have them, so I bought them and oh are they good. I ate like 8 of them (and they're pretty big). No wonder chocolate and cocoa came up today.

Okay, QUESTION! What is a nutraceutical? I am trying a liquid vitamin that Anna sells, and it says not to take with 2 hours of pharmaceuticals or nutriceuticals...what is considered nutriceutical? That's going to be a difficult thing to avoid if it just means vitamins, lol.

3.) Rachel and Donna (and anyone else for that matter), did you get your CD57 results yet?

I get mine on Tuesday and I can't wait!!! I think we should all know this week. Me on Tuesday, Bev on Wednesday, and Rachel probably sometime this week too.

Well, since I can't see what was on page 1036, replies to that will have to wait until Monday unless I can figure out some different Internet settings.

Well, if DQ7 is also Celiac, then I have to be extra careful, lol. I have DQ8 and DQ7. I planned to stay off gluten for life anyway, but was hoping that I would some day be able to be less concerned about cross contamination issues once the other major health factors were taken care of and my gut had a chance to heal.

I had pizza only in my heart...is that pizza lust???? :lol:

Hi Patti!

Rachel - you'll have to tell about the Ex, lol. I think it looked cute from what I saw of the previews.

Jin - yay for a good day, lol.

Mia - wow, I hadn't heard about hormones for appetite...I guess THAT part of my hormones works really well then, lol. I'm glad you are handling them...have they helped yet?

Had my appt with the new GI today--I liked him. Bottom line, "classic sprue". He agreed with the elimination diet I did--says he does that with many patients. Additional intolerances--could be SIBO--I'm having the hydrogen breath test in a couple of weeks. He did say that it would be more likely if I reacted to almost everything--as it is, he says I'm not intolerant to a great many things

He also sent me for antibody testing--even though I've been gluten-free for 2 years, he wants to check them. I went and had the blood drawn on my way home--just to get it done. BTW--it was probably the most painful blood draw I've ever had! She put the needle in and rotated it!!! It took SO long--I'm thinking "what the heck is she doing???"

I also have to have an upper GI to get a baseline and check for malignancies He was surprised my former Dr never ordered it.

He spent about 30 minutes with me--and he didn't think I was crazy at all regarding the food intolerance (like my former GI did). He also obviously knew far more about Celiac than any other doctor that I've seen. Which actually isn't saying all that much

Wow, sounds like a great appointment!!!

I'm home...wow those drugs are relaxing! Hope they don't wear off for like 2 months! Prelim results do NOT look like refractory sprue Have to wait for the biopsies. She also biopsied me for H Pylori and sent a biopsy to Igenix for Lyme testing. I do have a hiatal hernia and something called Schatzki's rings (she mentioned doing a dilation to stretch my esophagus).

I have to go back for the small intestine X ray for Crohn's but I don't think it's Crohn's.

Yay! No refractory.

Thank you ALL for thinking of me!!!!!!!!!!!!!!!!!!!! Patti- Hope your appt went well. Laura- Hope your flare subsides fast. I'm sure I'm forgetting a million people but you know I love you all!

Yeah, them was some might fine drugs, lol. Mine wore off a few hours later, but it was good while it lasted... I think I slept really well after all three of my endoscopies last year.

Yay, the preliminary news sounds great!

I see Bev, and it looks like she's posting!

Does anyone else think lyme could be behind her illnesses?

Yeah, I wouldn't be surprised.

I have another question about Lyme. Does it cause hyper reflexes? Last year, when I went to the doctor, she said my reflexes were hyper. When she tapped my foot, it was only supposed to bounce once, not twice. I know that Lyme has neurological effects on you. Could that be what is causing this? Now, I even jerk when the dog licks my toe!

Hum, I do't remember reading that specifically, but I wouldn't be surprised.

I hate life today. Came home from work early. i hate this

Aw Laura...it's been a long time since I've seen you like this! Hoping it passes quickly.

Donna...remember when you said you were geting a massage and suddenly felt like crying?? I was thinking it was because toxins were being mobilized and your reaction was due to that.....a detox reaction.

Yeah, I didn't think of that, but maybe! Makes sense.

Didnt you say you've been taking the Transfer Factor 3 nights now?? For me the crawling thing seems to be caused by yeast/mold. I'm having it alot today for some reason.

Now I'm even more scared of the TF..cuz of the brewers yeast.

Yep, I've been taking it for 3 nights now, but I've had the crawling thing before, and even when I was on strict anti-candida diet, although, not often. Hum, I'll have to think on this some more.

OMG....my boss probably knows almost every detail of yeast, mercury, Lyme, etc. If I'm even the tinitest bit not happy or if I'm tired everyones asking me "Did you take too many drops??" "What did you eat??"

So yeah...I guess I talk about it at work.

I dont talk to everyone though cuz there are people that I just dont speak to very often. Those are the people that offer me food in the breakroom and everyone turns and looks at them like "What the heck are you thinking??"

Don't get me wrong...I'll usually tell ANYONE ANYTHING, lol. Even complete strangers will hear my life story if they ask. It's just that this one likes to gossip and I can just imagine that my whole story would be all over the office. A lady who works in the office here just heard my life story.

Nope. It's De Nile, otherwise known as denial.

Oh...and I'm not happy that I can pick any movie EXCEPT "Disturbia".....which is the movie I MOST wanna see.

Disturbia looks disturbing. It looks too scarey for me.

Donna, you are sounding better. I think it's more than just the fact that it's Friday ... maybe you're feeling better? Or have you been flirting again?

No flirting, so it must be that I'm feeling better. I think the NT Factor is working and something else must also be working...I've been sitting in the sun for at least 10-15 minutes each day and I've been sleeping better. Connection? I don't know and I don't care, lol. I definitely feel better. I've actually even been able to up my intensity slightly when on the treadmill.

Oh Paula, I'm so sorry!!!! {{{{{hugs}}}}

I'm still waiting for my results, but I also never had the rash...still I have about 47 of the 75 symptoms I've seen associated with lyme.

I often get foggy headed and spacey, and I also have the rage that Carla spoke of...lots of digestive issues too which didn't clear up with a gluten/casein free diet. The gluten/casein DID clear up most of my sinus troubles though, so that was very good. And, if this DOES turn out to be lyme, staying away from those two biggies and suger will help a great deal.

I also have the pain in my neck which never goes away and hasn't been helped by chiropractic, physical therapy or other traditional pain management therapies.

The heat issue...yep, I have trouble in the hot weather. Not so much sun related, but definitely heat related. It definitely makes me feel lethargic and weak.

Oh men , you burst my bubble. This diet sucks!!!!!!!!!!!

Sorry, lol...that's me, the bearer of bad news, lol.

Would that be lyme buggies not happy with what your taking?

I'm happy it's Friday! We love Friday because it's Mitch's last day of the work week and that Sabbath is approaching.

If I remember correctly I think you said your coworker was pretty sick as well. Is she/he willing to look into things and does he/she know what you're battling. I would hope that would make said coworker think about things........of course coworker could be like one of Rachel's friends......in Egypt.

Hum, maybe so...Scott really thought the Transfer Factor was important for the lyme!

Yes, my co-worker is pretty bad off. She had a kidney transplant last year and has diabetes, TMJ, carpel tunnel...etc, etc. I was talking to her about all the testing I'm having done and we started talking about lyme...get this...she said she had a tick (or was it two) on her once. I think she has a lot of the symptoms. Her husband is also pretty bad off...she's been out all week due to one or the other of them being in the hospital, sick, blood sugar, etc. He is going on dialysis soon.

She may be interested in some alternative stuff, but I'm not sure she would believe it unless her mainstream doctor said it was okay. She did ask me about the HN doctors though, so that was encouraging.

She knows a little of what I'm going through, but not much because I really don't talk a lot about it here. Not even my office manager knows much about it...just what she needs to in order to let me have time off, lol. I plan to tell HER more when I know for sure exactly what I've got, lol.

I don't talk a lot with her...we only overlap in shifts by an hour and a half.

However, because 1 in 500 people cannot make IgA at all, and rarely, some people can still have clinically significant reactions to a food antigen despite the lack of a significant antibody reaction (because the reactions primarily involve T cells), if you have an immune syndrome or symptoms associated with food sensitivity, it is recommended that you try a strict removal of suspect foods from your diet for up to 12 months despite a negative test.

Please tell me that I interpreted the results okay and I can re-introduce dairy in a year or so.

Please, Please.

I don't think that's what it means. It says if your test was NEGATIVE and the food is suspect, you should remove it from your diet for 1 year. Your test was clearly positive.

Aaack, I feel like I have bugs crawling on me. This happens from time to time, but fortunatley not often...It's been happening a lot in the last 3 days or so.

And,

I just ate a banana.

And,

I have purple toe nails. Not a pretty purple either...must find a pretty purple.

And,

Is anyone as happy as I am that it's Friday...this has been a really rough week at work and I'm so happy it's nearly done. My co-worker has called in sick every day this week, and it's just added that much more stress.

Okay, back to your regularly scheduled programming.

Sorry you're herxing Carla, hope it clears soon!

Oh sorry....yucky. If what I'm experiencing is a herx, it is nasty. I passed out so hard yesterday after noon and I feel like every CELL in my body aches. How long do these things last, if indeed that is what it is? I want to cry but I'm literally too tired and miserable.

...

Tomorrow is my endocopy- I think my biggest fear is that they will find refractory sprue (or just that my villi ain't looking so hot) or Crohn's and want to put me on steroids. Steroids suppress your immune system and if I do have Lyme, I DON"T want to be on steroids. I'm just hoping that I don't have two things that conflict with each other. I am scared about this more than anything else.

If the herx is from candida...well, my first one lasted almost two weeks...but thereafter it went away in just a few days. I'm not feeling any from that now, but I'm also not taking any harsh anticandida stuff.

Keeping good thoughts for your endoscopy today! Another word of encouragement...most of my major symptoms are in my sinuses and in my digestive tract...for all the diarrhea and such that I have my colon was perfectly clean...not signs of anything, lol.

It turned out that you need to be back at work for 3 months straight in order to start a "new" claim and then get a full year. I only worked two months in between the last claims and so my "year" was up sooner than I'd thought it would be. All of a sudden I got no more checks and I had no insurance.

This is good to know...my insurance is rapidly running out of benefits.

Its just normal "wet runny nose" that you get when you cry but its in massive amounts.

After the crying episodes would subside I would feel a 1000 x better. I think I've learned that crying eliminates toxins and makes me feel alot better. There have been many times that I've felt really toxic but my body wasnt making me cry....so I would sit down and try to think of the saddest stuff ever...and try to get the tears flowing.

Huh, I sometimes just have the urge to cry too...my tears aren't usually thick or sticky like you've described sometimes but I definitely get the excess nasal mucus thing!

just got home...and i think i'm in a flare (started last night...slowly)

but, wanted to offer my words of encouragement to

BEV for her endoscopy tomorrow...i'll be thinking of you

CARLA for her herx

PATTI for the glutening....

love to you all...off to bed. xoxo

Aw Laura, so sorry you're having a flare!

Ditto for the words of encouragmenet to all!

Hey Donna.....Are you taking the same Transfer Factor that I'm on??

Is it the Transfer Factor LymPlus??

Yep, it's the same one. Anna hasn't tested me for it though...it tested well in ART. I've taken it for 3 nights now. Yah, the food thing is a pain, but I take it right before bed...that's about the only time I DON'T eat.

Whole Foods was out of organic potatoes...so instead I bought two yams.

OMGosh, not YAMS! Yikes!

I think the most important thing though is that I have really begun to have some feeling of confidence that I will be well again

This is just so wonderful to hear!!!! Yay!

I've been asking myself whether this whole thing is like the question, what comes first, the chicken or the egg? Like what came first, allergies, candida, lyme, celiac, etc. etc.?

Okay, I welcomed you a couple of pages ago, but now I've read your posts so I can say:

Welcome and thanks so much for sharing your story.

I struggle with a lot of the same symptoms as Rachel, but not as severe. I'm trying to keep it from getting that way, and feel that if I hadn't started searching for the reasons NOW it would have eventually gotten just as bad. I am more and more chemically sensitive, I can't wear gold earrings anymore or be around strong odors, etc. My adrenal glands are just shot, I have extreme exhaustion, but am still able to work. I'm down to eating just a handful of foods that are pretty safe. My digestive issues are too numerous to mention, lol.

I've just had all my amalgams removed (had 11, with 6 of those being covered by gold crowns), and am getting the results of my lyme testing on Tuesday. My LLMD is also checking for mold exposure, metals toxicity, candida and a host of other things.

I've been struggling with the same question...which came first, and then which is causing the most problems, lol. I'm doing some of the same alternative treatments that Rachel is...we live in the same area, so we see the same practitioners, lol. I also see a team of doctors that including a chiropractor, a nutritionist, an internist and physical therapist...they work together as a team to discover what the problem is and then work to fix it. They also have a more integrated approach to medicine rather than traditional.

I found this thread about page 75, at that point we were just all really sick and struggling with what seemed more than celiac, I don't think we made the Lyme connection until much later, does anyone remember around what page we started to figure it out?

We need an index.

Nope, I can't remember what page, but I think it was after the summer last year...I don't think Lyme was a factor yet when all the crazyness of the summer hit.

My dial up connection sucks, lol. I can't get to the previous page....I can get to the page before that.

I can see that we have a new poster, but I can't read the post, lol. Hi Sherry! Welcome...I'll have to read what you wrote tomorrow from work.

We had two people (used to work in my department) who were out on disability for over a year each...they finally were terminated, but I think my employer had to wait that long.

fmla protects your job for 3 months for the above mentioned reasons. they aren't required to pay you, but are required to let you take that time off, either all at once, or over the course of the year. you can use unpaid or banked vacation time, etc.

it only applies to certain employers...all fed employers, and companies with 50+ employees, and i believe you have to have worked there for a year?

Ah okay, that makes sense. Thanks!

This is why I'm confused...the medical leave that I took before...I just needed to let my employer know as soon as I knew, but the doctor was the one who put me out and there wasn't really any advanced stuff that I know of other than the pre-authorize for the surgeries themselves. I got a note from him and then my employer did most of the rest...I just needed to fill out the paperwork.