dlp252

I only read the first couple of paragraphs of that article cuz I have to leave, but see...that's what I was saying yesterday about getting enough sunlight. It affects a lot...I know it can affect sleep patterns and I've known that it supplies vitamin D...now I'm wondering if I shouldn't make it a point to spend a little more time outside more often...I've got all these mystery infections that keep popping up.

I'll read the article more tomorrow...I get at most around 45 minutes of indirect sunlight...that's just from driving in my car, so not quite the same as being outside in full sunlight. My commute home is 30 minutes each day, and if I have appointment it can be around 45 minutes or so.

You're welcome!

Mold is everywhere for me. I can't get away from it...I'm allergic to outdoor mold, indoor molds and molds on foods.

But I am not so sure I will be holding my breath to see if Delaney gets gluten-free pancakes for breakfast at the CS resturant! I was told however to call the hotel a week prior to see IF they might be able to accomidate.

Does anyone know if the hotdogs are ok???

I'm not sure about the hot dogs, but the Chef or counter person should be able to help you. I got gluten free pancakes at a counterservice food court. They had a chef there, so maybe that was different, but I got great gluten/casein free pancakes with real maple syrup (they have the little tiny jars of pure maple syrup) and bacon which they confirmed was gluten-free. I DID find that even at standalone counter service kiosks, the people I spoke to were fairly knowledgeable about special diets and made sure my stuff didn't touch anything that had gluten on it.

Sometimes the gluten-free food takes longer to prepare than regular food because the chefs always want to make sure the works areas and pans and utensils are free of gluten, but we have never minded the extra time.

Yep, this was true for me too, but I also didn't mind the wait...after the first two times, I learned to order my stuff first while my friend was deciding what she wanted...she's a slow eater anyway, so it worked out well, lol.

I should have known better. I did check the date, but missed the YEAR. I was thinking.... WOW... that is a long thread for an April 17th post....thinking a few weeks, not a few weeks plus a YEAR!!! And no, I didn't read all thousand plus responses to find out.

Glad to hear if things are going better for you now...

Not to worry Cara! We move fast here anyway, so even last year there were already several pages in just a few short days. Feel free to join in, lol.

We've talked about a lot of things since then! Most of us have either multiple sensitivities, Lyme Disease, mercury toxicity, candida ... am I missing anything?

Mold!

I wonder if I should put some kind of "update" on my original post in this thread. I always feel bad when people take time to type out responses to my first post.

I wonder if that would be helpful as many people dont realize how old that post is or how long the thread is.

I agree with Carla...I think putting a little note at the top of your original post would help a lot.

I've actually done that lots of times but it never really makes a difference.

One thing I realized is that all my printers are always on....so I dont know if that can slow things down or not ...my scanner is on as well. I turned of all the printers so we'll see if that helps.

I dont turn my computer off all weekend....because its so slow to turn it back on and get back online. I never even bother to sign off because of having dial up....I'm just really impatient and having a slooooow computer is just not good for my stress level.

Well, pooh! Do you leave your computer on when you're at your mom's? Maybe you can shut it down just one day a week...however, not having high stress level wins out every time.

He doesnt wander off and he doesnt chase other dogs...hes friendly to all the passer-by's. I've had him since I was 22...he's 13 now...his face is grey now.

That is amazing, lol. Our dog...all my dogs would just run willy nilly any old where...the only way I got my one dog (who got out by accident when my dad came over once) was to yell, "Do you want to ride in the car" which is what I used to say to her everytime she got to go with me...that halted her in her running tracks every time.

Maybe I am getting better. My checkbook is balanced and my bed is made ... two things I didn't do for months!

Encouraging!

At the bottom of the box where you type your message...there are a couple of check boxes...one of them is whether you want a copy of the message you sent saved in your sent file. The default is to not have it checked (not sure if that can be changed), so you'd have to check the box each time you send a message...I've known about that but still forget to check the stupid box.

Wow, Patti our very own celebrity!!!!

I'm so sorry for your loss! {{{{hugs}}}}

I love both poems, but especially the first!

Yay, finally able to get to page 1012 and 1018, lol...so ya'all will just have to put up with OLD post replies, lol.

I don't blame you for wanting to take the last 7 days you have left. Have you checked into the possibility of getting disability? I don't even know how one goes about that.

So do you think your headaches are from the b12?

Could be from the B12....I may challenge each of my supplements at some point in the near future. Fortunately, while not an expert, I do have some experience with short-term disability so I know sort of how the process works. I've gone out twice on disability for surgeries...2 months with my hysterectomy and almost 2 weeks for my bladder surgery last year. The doctor has to put me out, and then my HR department will give me some papers which I fill out and send in...that's just about it.

Humorous description of a herx ... OMGosh, I can't believe Lymenet comes up as Lame Advertisement!!!!

funny post! Also quite funny that lymenet is now a lame advertisement, lol.

I'm glad you and Donna have a good doctor too. It's amazing what a helpful doctor can do to our spirits.....as well as a knowlegable one.

I am forever grateful to Rachel for sharing her doctors with me.

I need help with my computer.

Because of scrapbooking I have hundreds of pics scanned into my computer. The files are LARGE....I only resize what I wanna use for an avatar. The only small files are what I've resized for using as an avatar or personal pic...everything else is BIG.

My computer runs painfully slow. Does anyone know if I were to delete or resize all these pics to smaller file sizes...will my computer run faster??

Also I always get a message that windows is running low on "virtual memory" and its always doing stuff to try to accomadate this problem. I dont think my pics have anything to do with virtual memory though. What does it all mean???

Should I bother spending time dealing with my pictures....anyone think it will help. My computer doesnt have a ton of memory to begin with.

Lots of people answered this already, but two other things you can do to free up a little space is to defrag your hard drive (which I did yesterday) and to delete temporary internet files.

If you go to start/all program/accessories/system tools...both Disk Cleanup and Disk Defragmenter are there. That would free up some space on the hard drive, which may make everything run just a bit faster. Do you turn your computer off at all? I was told that if you shut down your computer that it clears the RAM or ROM or virtual memory, or something like that.

Pictures can make everything run slower, but I'd start with the other stuff first...you could also just file some of the pictures on C.D or DVD if you have a C.D or DVD burner.

Heinous iPod dying

Oh, the heineousity! That is a serious bummer. At least you were almost home!

Indeed, HEINOSITY all around!!!! and I am so pleased to see the frequent use of the word. Please do remember, though, HEINOSITY is not really a word, I made it up BUT I LOVE IT WHEN PEOPLE USE IT!!!!!!!!!!!!!!!!!!!!!!!

Oh, but it IS a real word my dear...as soon as it was uttered from your lips it became real to us.

They bother me ... I just didn't feel the needle go in ... it's a big shot, so it's a lot of liquid to absorb, and the liquid is thick. It still hurts ... there's still a bump.

Double heinosity!!!

OK...finally got a pic of my dog Bear up. He's just lounging in the yard. Hes on my personal pic.

I LOVE Bear!!!! What an adorable pup.

Speaking of nearly nude muscular men ... did you know the king on the movie 300 is also the Phantom on The Phantom of the Opera?

Heinosity all around Heinous lack of brunch, heinous shot, heinous bouganvilla scratching...

I had a very nice walk until my iPod died, lol...fortunately I was almost home so not so heinous.

Well, I didn't sleep well again last night. I'm starting the NT Factor today...it has some sort of Krebs cycle blend in there so maybe that will not only give me a bit of energy during the day, but perhaps reset my stupid krebs cycle. I'm going to wait a couple of days to start the Transfer Factor though so I can see if one of the other bothers me.

Well....theres NO wind today....I dont even see the tiniest breeze. Its 8 am and it already looks GORGEOUS!! I'm gonna be outside attacking bourganvillias and other fun stuff...I hope I dont get too cut up.

Yes, having had to open my door again because of cooking (and just getting back from church) I can see that it's gorgeous outside with no wind. I'm going to go for a walk after I finish eating. I'm wondering if I just don't get enough sunshine to reset my internal clock thing...

I am so enjoying your pictures! You and your uncle are so adorable.

Why thank you...this particular pic is the majority of my family's favorite. It's a bit fuzzy...all I have is a very tiny photo. My older uncle (the older brother of the one in this photo) may have a larger one...I'll have to see if he can email me a larger one some day.

I am so glad your insurance is reimbursing you! That is such great news! These treatments can be expensive. They are worth every penny when you can afford them, I am sure. You might be able to treat yourself to something nice for a change!

I'm afraid it's going straight to the credit cards which have become quite huge with all the medical and dental work I've had done this last year.

Okay, today I can't get to page 1018! I can go to 1017 and 1019 but not 1018! Don't know what the heck is going on...if I can get into the site from work tomorrow I'll have to see what I've missed on those two pages.

About to load a new avatar...my uncle and I as babies...

I am having a horrible brain herx. I am practically incoherent and disoriented. I'm having trouble typing. Morgan and I went for a long walk and she was worried I would fall over. If you read Tincup's description of a herx on LN, it's very accurate. I had a little Lyme rage, too. That's why Morgan took me for a walk.

I'll have to reread it...it's been a while and I'm not sure I read the whole thing. I guess I can't blame my driving on lyme herx yet.

I guess my insurance company sent her my reinbursement so she wrote me a check. I dont know why my insurance always does this! They do it with BioSET too...they send Anna my checks and then Anna just credits my account. I still have credit in there from my last payment.

I dont know why I got another insurance check sent to Dr. Amy though...I'm pretty sure I already got reimbursed for that.

I got another check last week for that same amount so I gotta have my mom look into that. She handles all my insurance stuff and deposits my checks for me.

I love my mom...she's the best!

I think I love your mom too, ! My insurance HAS sent it to the provider before but this time they sent it to me directly. And, it seems like they should have paid a little less...on the one claim they sent me the WHOLE amount...I think I'm only supposed to get 70% back for out-of-network stuff. Surprised me. On the other claim I got all but $40 back and that was more than double the other check, so it should have been more...I dunno, I can't figure insurance companies out. I'm just happy I got reimbursed. I saw online that they've already processed my huge first visit with Dr. S too so I should be getting that back soon to. I haven't submitted charges for March or April for BioSET...I thought I had for March but can't find any copies so much not have. Yay.

New avatar....my personal pic is from a trip to Disneyland when I was a year old. In the pic is Mickey, my mom and me.

Wow, very beautiful!!! Cute Disney pic too...you look a lot like your mom. By-the-way...the leaves picture on my personal pic was taken in VERMONT..those are Vermont leaf piles, lol. In the country....

OMGosh!!! I'm so excited...I just opened my mail and got two very nice checks from my insurance company reimbursing me for my BioSET treatments for January and February!!!! This is such an answer to prayer!!! I think I also submitted March, so I should be getting something back for that too. What a relief!

Hope everything is alright.

I think all is well, phew!

It is nice to have freshly-bathed, non-staring dingos....

I love those dingos! Wow, hope your eyes get better soon!

How about mold in a shower? I have a few spots that I can't get rid of no matter what I try. Does that type enter into this, or do you have to ingest it?

And I get the reflux to the point where I get hiccups from it. Come to think of it, I've been getting the hiccups more in the last few weeks.

According to BioSET I am reactive to 99% of the outdoor molds...those are the spores floating around. I'm reactive to at least 3/4 of the indoor molds. I was reactive to about 1/4 to 1/2 of the food molds. I go sooo very sick a few weeks ago from just SPRAYING the mold in my shower...pretty sure it was because of all the spores released and the stupid toxins they emit as they were in their death throws.

According to the skin scratch allergy testing I had done I'm very reactive to molds...so I get it from everywhere...it definitely doesn't just have to be ingested.

It also means I should be very careful about ingesting because mold really seems to be cross-reactive. I'm not as careful as I should be.

Dr. Rick had me on Transfer Factor early last year. I actually think I was ok with it but when I started taking Seacure and enzymes along with it I got sick really fast and so I stopped taking everything...including the TF. I was taking TF by itself for a few weeks without a worsening of symptoms though.

If I end up testing well for it in ART I'll get back on it.

Oh good, this is encouraging!

Toxic illnesses usually pile up on each other so that its usually more than one thing causing the problem.

Yeah, I don't know what caused what, and my symptoms are so intertwined I can't really tell what is causing what...

If your sleep cycle is messed up like mine, it would explain why healing is so difficult. This is frustrating. I hate it when people just tell me to sleep at normal hours. God knows I have tried. They just do not get it!

WOW, you eye sounds awful! I'm glad it doesn't hurt. No, they don't get it, lol. I have a friend who every time I say I didn't sleep, she tells me to take a nap--she can lay down and take a nap for 3 hours and then go to bed at 7 and sleep straight through til the next morning. I can't get mad at her though...she just doesn't understand.

Its good to know there are other testing options besides bloodwork in case I'm ever not satisfied with the tests that I've had thus far. I would still like to actually *see* the bacteria itself.

I'm sort of feeling this way, if only just so I could have some kind of "proof" to show naysayer doctors who may question any treatment I may have. Still, personally, I think I'll be satisfied for my own self with just a weak positive on any of the lyme specific bands, lol. It just would be really nice to have actual visual proof of the existance of the spirochetes in my body.

My biopsies were only about 10 months ago...I wonder if I could still get the samples. Hum, I have to decide how much I want to pursue this.

Tree chipping has begun.

Open Original Shared Link is the lab. I am actually going to try to find out if they still have my tissue samples from Alabama....if so, I want them tested also---to see how long I potentially have had this.

All this being said, the testing is like a Celiac biopsy: if its positive, its positive...if its negative...doesn't mean you don't have it

Wow, thanks for the link! I hope they still have your samples...that would be fantastic!

Never fear the big tree chipper guys are here. I'll definitely be having to close my door in a minute.

Goodness!

We had a windstorm a couple weeks ago--it always scares me. I'm constantly afraid part of the roof is gonna come off or a window will blow in.....

Hope everything is going to be ok out there!

OMGOSH!! I have to call my mom. They live in a mobile home and have been having some work done...the workmen loosened one corner of the roof somehow...I hadn't even thought about that until you posted.

Re: tissue testing for Lyme.

I am in the process of having that done. So Bev, your LLMD is on top of his stuff! The Bells Palsy article is very good.

I just had my Aug/Sept endoscopy samples sent to my doc. When you have it sent, you have to have the PARAFFIN BLOCKS with the samples, not the slides that regular labs analyze. (I learned this, bc the lab set the slides the first time...nothing is simple).

The lab that is doing the testing is MDL. It actually checks for the presence of Lyme bacteria.

I'm going to keep this in mind and ask my LLMD when I see him on the 15th. I'm almost positive that the blood tests will not show anything. If BioSET didn't pick an immune response then the blood tests probably won't either.

Oh Patti - sounds like mold might be a problem for you too!

For the love of Pete is right...there are now THREE police cars across the street...add a paramedic unit and we'd tie the record for the drunk neighbor episodes.

and another thing...if you look at all the processed gluten-free snacks, bread, cereals, etc.....they're all sweetened with grape juice, pear juice, honey....they have all this moldy stuff like raisins, nuts, etc.

Plus they dont have all the preservatives....I remember at the beginning of this thread alot of saying we feel even worse eating the gluten-free stuff. I think this could be why.

gluten-free stuff would harbor more mold.

Its like trading one evil for another.

Yep...I definitely feel MUCH better than I would if I were still eating gobs of that gluten-free product stuff!

Scott recommended Transfer Factor for me too...I bought some today but haven't decided if I'm going to take it yet. I think that's the one that has colostrum in it and I haven't decided if there is enough casein in there to cause problems or not. Anyway, it tested very well in ART, but Anna hasn't tested it yet.

OMGOSH!! It is so windy here...

So, when I got home from BioSET I started cooking dinner, which means I had to open my door (as I often do when I cook )...it's been about an hour so I figure the house is sufficiently aired out and I can hear voices out there anyway so I get up to close it and see a police car out there which usually means my neighbor across the street is drunk again ( ), but I see the policeman is talking to someone in a car, then I look behind them. A HUGE tree fell over across the road! It's blocking the whole street! Holy windtunnel batman! The tree isn't dead either...it's a green and healthy! I have a HUGE tree right in front of my door!

Sounds like it COULD be it Rachel...and by the way, I've been told by two different allergists that grapes are high in mold, as are melons, and most of the other stuff on your list.

I have to ask Dr. S about the digestive enzymes....they (BioSET) really, really, want me to take them. I think even Dr. S mentioned taking them, but if I have as big a mold problem as I think he thinks I do, then wouldn't that just be counter-productive?

BioSET day...nothing earth shattering, but a couple of things came up again...uterus, fibroids and BUG BITE/insect!!!! I made sure I mentioned to Susan again that that keeps coming up and so she is going to test me for insects.

On a more exciting note....we FINALLY got to foods today. There was a lot obviously. She also tested me for dairy, but she was afraid my brain wouldn't be able to hold it all...fortunately it did today and my energy was much higher than it had been. I still can't eat anything yet though...there is a whole process that we're supposed to use to add things in, but I have to reread the stuff...it will be weeks before I can add anything I think.

I also saw Scott the ART guy there, and got to chat a bit with him and his friend which was nice. I mentioned in a very brief way what Denise had said about why I wouldn't show lyme in the BioSET testing and why he could still pick it up in ART and he was very interested in that. His friend said it must be like the blood tests and why some people don't show positives on the blood tests until they've been on antibiotics for a while...the immune system has to be well enough to respond, lol. He is seeing Dr. S on Monday for some followup testing...I forgot to ask how often he has the followup testing done.

Oh, Donna, you can't get to 1012 because we locked you out ... we were talking about you and didn't want you to know what we were saying!!

That's the closest smilie to a sticking out tongue, lol.

Donna, this post of yours was on page 1012 ... it's very odd you can't get there.

Yep, I know it. I couldn't get there last night and couldn't get there this morning...it gives me a google search page whenever I try to go there and I've tried a couple of different ways of getting there too.

And in happier news......I slept 12 hours straight last night, And well, just blow me if I wasn't as tired as a weed-eating pig yesterday!!! Feeling much better now, thank you.

YEAH... things can change pretty quickly as far as whether our bodies like something or not. This shows up often in ART from what I understand. Sometimes certain meds or herbs might be working really well but then at some point they arent as effective or you get allergic to it...the body just doesnt want it anymore so instead of helping it could be making things worse. Then you have to switch meds or supplements to something else.

I read that too many B-vitamins in the gut can really fuel candida....so it could also be that. I think sometimes our body might really want or need something so we can test well for it but then its causing problems because of other factors....like candida. Thats my "theory" anyways.

I'm bummed because for some reason I never saw the pic with the leaves.

I dont know how I missed it.

Right now I'm on my computer with not the best quality screen but I'm seeing you wearing a jacket with a hood??

Oh well...I'm sure it was totally cute....all your pics are adorable including the one I'm seeing now.

I put up 2 new pics.....the one in my profile is my first visit with Santa.

I'll put the leaves picture up in my personal picture page... I'll ask Dr. Shaw about the B vitamins when I see him...

I bought a pair of Italian gold high heeled sandals that I swear are not intended to be walked in, no they are mere ornaments dangling at the end of my, once I have them on - gorgeous legs. I feel that when I am wearing them I should simply be carried from one perch to another so that these beautiful shoes may be admired by as many as possible and I for the audacity to wear them.

Sounds tres chic!

Your body only produces healing hormones from 10pm to 2am. Sleeping during those hours is ideal for recovery.

Hum, thanks...that explains a lot, lol. I wonder if my time is off kilter and my healing time is earlier....

Okay, so it's not ALL previous pages I can't get to it's just 1012...what did you guys talk about on page 1012 that no one wants me to see. I apologize if there's something there I need to respond to.

Donna...I was wondering if maybe you're feeling worse because of all the B vitamins??

I dont know....but if you're even half as sensitive to yeast and molds as I am you might not do well with them. I know that if I attempted taking B-vitamins I'd go downhill fairly quickly. The B-vitamins are from yeast...its usually recommended people who are dealing with Candida should avoid them. I got really sick from B-vitamins.

I havent taken them in more than 2 years.

I dont know how long you've been on them but just thought I'd suggest it. I know we've discussed it before...but just in case you forgot.

Yeah, the Bs were the first thing I suspected when I got the bad D only I'd been taking them for a week or two before the D happened. Anna tested them and they tested SOOOOO good that she said my body was really wanting them.

All previous attempts at B vitamins have not gone well, but these seemed to be okay...one is a liquid and one is a sublingual neither of which I'd tried before. I can take some mutli vitamins with Bs in them, but this was among the first time I've tried just B supplements by themselves.

I DID buy some B12 at Whole Foods a few months ago, but those didn't agree with me at all.

I don't know, maybe these just took a while for my body to react to. They also tested well at ART, but as we've seen with you, just because they test well doesn't mean our bodies won't react to them. That is just frustrating, lol.

I could never wear heels that high! I would fall flat on my face! My limit is three inches for high heels. You would like the shoes in Frederick's of Hollywood's catalog. They have some beautiful shoes, but most of them are too high for me!

The shoes I bought two weeks ago have about a 3-1/2 inch heel I think, and at least a 1/2-3/4 inch platform. I have really just taken a liking to platform shoes lately. However, that is saved for Sundays only...normally you'll find me in crop pants and my comfy slides or jeans and tennies.

but I do know how you feel. Lately I feel like I go in circles- with different diagnoses - trying different things- supplements, meds foods, tests, doctors and nothing changes - I end up in the same place. Its is frustrating and yes BORING!!

Yep, I know this too, lol. Yesterday I was sitting at my desk with a magnifying glass looking at my arms. My co-worker asked what the heck I was doing. Well, I had read on a thread at lymenet or here about someone having these little pin sized blood spots on their skin, and I've got them. I did a search and found a good picture on wikipedia with a good write up and it scared me, lol. Then I started thinking that what they wrote about those stupid spots sounded like it could be responsible for some of what's going on with me now.... I've got to stop researching stuff. Still it's time for a visit to the dermatologist anyway so I may have them check just to make sure it's not the serious kind, and I may show them to Dr. S too.

BTW, it's a little past 8, I'm dressed and ready for softball/baseball driving ... I CAN get up if I have to! I actually don't feel too bad, but I still think it's better to get the rest so I can heal faster.

I agree!

Donna-

I love this pic. I know you think you can work and so you should not necessarily go on disability- but sleep is such a crucial part of healing I think you owe it to yourself to take some time and really nurse your self and see if it can help to make a difference. Maybe rest and relaxation is a big piece of what you need to get better!!

I finally got a decent night sleep last night. Went to bed at 9:00 and while it took a little longer than normal to fall asleep (not usually my problem) I slept all the way through until 3:00. Then I think I actually dozed off again until around 5! I am still exhausted, but at least I'm not as sleepy, lol.

Your leaf pic brings back some memories...my friends in the neighborhood and I used to make leaf houses (we'd rake the leaves into "rooms" and make huge "mansions"--it all looked like a gigantic blueprint on the ground.) We'd play for literally hours on end, imagining various scenerios. Fun times

Ha, my uncle and I used to build forts. He's only 1 year older than I am...I'll be posting a picture tomorrow of him and I as babies. In California, we didn't have so many leaves, lol.