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Latest Celiac Disease News & Research:
Everything posted by dlp252
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ARCHIVED Xii International Celiac Disease Symposium 2006
dlp252 replied to celiachap's topic in Publications & Publicity
Hummmmm, my friend has been wanting to go to New York for a visit! -
That's fantastic! I am fortunate to work with 3 other Celiacs so I understand completely!
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ARCHIVED gluten-free Pantry Brownies
dlp252 replied to mookie03's topic in Gluten-Free Recipes & Cooking Tips
How exciting...I have a package in my cupboard now...I've been afraid to make them, lol. And, I did indeed buy them at Whole Foods in my area. And, looks like they are dairy free, yippee. -
I don't know a definitive answer, but I can say that the best I've felt in the last 4 years were the two times I ate only whole unprocessed foods, with no wheat or barley at all and very little grains overall (didn't even know I was Celiac).
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I agree, don't give up. Give this a while to really work. I've tried a lot of things in the last 4 years to try to get to the bottom of why I don't feel well...I've tried low carb diets, detox diets, allergy shots, etc. The one thing that all of those things have in common is that it takes a while before you feel the good effects. Almost all of them say...
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ARCHIVED Gluten Is Scary
dlp252 replied to VydorScope's topic in Parents, Friends and Loved Ones of Celiacs
That is WONDERFUL!!! What a great Christmas present! -
ARCHIVED How Did You Acquire Celiac?
dlp252 replied to tasha's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I think I've had it a while...when I was a baby wheat gave me eczema. Mom said I outgrew that, and in fact was eating pasta and other wheat products as a child. I have had digestive problems all my life, but that was about it. I started having much more trouble after my father died in 1996, but the major problems started around the time I had major surgery... -
ARCHIVED Hello Everyone - First Timer
dlp252 replied to kadmon's topic in Coping with Celiac Disease
Hi Adam, welcome! -
ARCHIVED [color=#cc33cc]today[/color]
dlp252 replied to JessicaB's topic in Coping with Celiac Disease
I'll do today-it's better than what I had yesterday, lol: B: Apple with hazelnut butter, glass of soymilk L/S: Boneless/skinless Chicken thighs with peas (I bring enough to have for lunch and snack at work) D: Hum, forgot to take something out--will probably have Tinkyada spaghetti with meat sauce S: Protein smoothie made with rice milk... -
I've found comfort in a baked potato a few times in the last few weeks, lol.
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ARCHIVED Lab Results
dlp252 replied to DragonQueen's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Oooh, I think I've seen these at Whole Foods! :D -
Donna, that is fantastic! Congratulations on finding a doctor who is willing to listen. I went to a new ENT a few weeks ago, who was also willing to listen and it felt great! I hadn't had my testing done yet, but will show it to her next time I see her.
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ARCHIVED Lab Results
dlp252 replied to DragonQueen's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, me, lol. I was just diagnosed by Enterolab--about the same as you. I have the main gene for Celiac, and I'm definitely sensitive to gluten as well as casein. My first thought was OMGosh how will I ever do this, but actually it hasn't been that hard. I do miss some things, but there are some chocolates which don't contain milk products (mostly dark... -
ARCHIVED Allergist Vs. Biopsy
dlp252 replied to averyevansmom's topic in Parents, Friends and Loved Ones of Celiacs
Well, I can offer an opinion on the allergist. Almost 4 years ago I went to an allergist/ENT to see if HE could figure out why I was sick all the time. He tested me for 30 some allergens and turns out I was allergic to almost all of them. He put me on allergy shots twice a week, which I ended up staying on until just a couple of months ago. Sometime during... -
ARCHIVED Sodium Lactate.....
dlp252 replied to danikali's topic in Gluten-Free Foods, Products, Shopping & Medications
I found this link that describes what it is...: Open Original Shared Link -
ARCHIVED Sodium Lactate.....
dlp252 replied to danikali's topic in Gluten-Free Foods, Products, Shopping & Medications
Lactate is on the list of items that may have hidden casein/dairy that I copied from somewhere. I'm not sure if Sodium Lactate is different or just another form of it. -
Gosh that stinks! I usually take stuff like that to work and leave it on the counter for people to take. I've also been known to throw things away--just had to do that yesterday. A friend gave me a cute little M&M guy with M&Ms...I had to throw out the M&Ms because I also am casein intolerant. I am keeping the cute little guy though.
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I too am sorry you are feeling so bad. I really feel for you! I had a similar situation at the beginning of October: strep throat, which turned into an ear infection, which turned into a sinus infection, which led me to a cold. I was sick for a solid month and a half to two months. I also received more antibiotics. I echo the advice to take a probiotic...
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ARCHIVED Its Offical!
dlp252 replied to VydorScope's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Congratulations?! LOL, not sure whether THAT is appropriate, but at least now you have the official diagnosis. (I'm a bad patient as well...I intend to tell them stuff, but usually forget.) -
ARCHIVED Help!
dlp252 replied to danikali's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm so sorry you are feeling so bad. I'm afraid I'm so new to all this myself that I don't have any advice, just wanted to tell you how sorry I am. I've had the burning on the arms before, but never knew what it was, and in fact was going to ask that question here myself. In my case, though, it's more like a bad sunburn except that there is no redness... -
Rachel, this doctor sounds wonderful! I don't know the answer to the infections questions, but it does seem to make sense that there would be other things going on.
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I too am so sorry this had to happen. I don't suppose I'll ever really understand it. I really does sound like mob mentality took over.
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This morning so far I've had: apple with hazelnut butter; homemade hot chocolate with unsweetened cocoa, hazelnut milk and a little agave nectar. For lunch I plan to have: Tinkyada penne with a meat sauce made with very lean ground beef and crushed tomatoes. For dinner I plan to have more ground beef, some brown rice and a veggie (not sure which yet...
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ARCHIVED Enterolab Results
dlp252 replied to dlp252's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had the "Gluten Sensitivity Stool and Gene Panel Complete Plus Free Milk Sensitivity Stool Test" and I also ordered the yeast and egg panel. Those tests covered just about all of what I wanted tested...the only other thing I wish I had tested was soy. I sent the tests in the Wednesday after Thanksgiving (Nov 30), and received them on Monday, Dec. 12...