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shayesmom

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Latest Celiac Disease News & Research:

Everything posted by shayesmom

  1. shayesmom
    Villous atrophy confirmed by biopsy is the "gold standard" when it comes to a diagnosis of Celiac Disease. And as someone else already mentioned, the only other thing that could cause it would be dairy, soy or corn intolerance. Lack of improvement on a gluten-free diet would only point to the need to remove more foods from your diet. I also agree that...
  2. shayesmom
    ADHD can often also be helped by avoiding certain chemicals (preservatives, food colorings, food additives). There also is often a problem with dairy. I've known of a few people who tried adding omegas and enzymes to the mix with really good results...including getting off the medications. For more info, you can check out this link and the subsequent supporting...
  3. shayesmom
    Considering the family history, it is likely that gluten is the culprit behind all that you've been experiencing with your children. Though they may not be thrilled with the prospect of going gluten-free, they may be surprised at how well they do on the diet. I'd definitely give it a shot. As a side note, I would recommend also supplementing with D-Mannose...
  4. shayesmom
    If you're looking for food allergies, then yes, the most reliable thing to do is the scratch testing combined with the CapRAST. The combined result of those two tests usually are fairly accurate. However, if you are suspecting food intolerances, then the ELISA could be useful. But you do have to keep in mind that if there's a problem with leaky gut,...
  5. shayesmom
    LOL! The "mood" must be catchy because my first thought was "And this affects you HOW???". Some people really are ignorant. And those same ignorant people have no problem stuffing their faces with non-foods (things made with petroleum, coal tar, car wax) while having the nerve to judge others who are eating real food. Items that are manufactured,...
  6. shayesmom
    I think that you have to take medical information like this with a grain of salt. One study is hardly conclusive and Reader's Digest is not supplying any of the details involving the study. You're basically getting their version of what the abstract is and not the methodology. I find it strange that the study put healthy adults on the gluten-free diet...
  7. shayesmom
    This is the scenario that is absolutely dreadful to deal with. Postive blood work and negative biopsy. What to do? I don't know how much you're willing to spend on a genetic test, but you can get the home kits from both University of Chicago as well as through Enterolab. The results may be the "tipping" factor in getting your GI to confirm the diagnosis...
  8. shayesmom
    I think that the only appropriate response to this GI would be "Over my dead body". What in the world could this doctor be thinking? No wonder insurance rates are soaring! I can understand checking levels with blood tests, but there is no medical justification of doing an annual biopsy. Recovered cancer patients aren't screened with this kind of intensity...
  9. shayesmom
    I agree with the other posters who have said this is a personal choice. But I do believe that a strongly positive TTG should be enough to confirm the diagnosis. I do not agree with the new and growing trend of putting a new patient on a gluten-free diet after positive bloodwork but before a biopsy. That is just begging for a false negative biopsy result...
  10. shayesmom
    My daughter is super-sensitive to gluten and also very sensitive to dairy, soy and egg. It became apparent to us very early on that we couldn't have a "mixed" household. And so, we do not allow offending foods in the home. Period. The only exception we have made is with coffee creamer and regular milk for guests. In which case, wiping things down...
  11. shayesmom
    If you're going to meet with the principal and teacher about this, you may as well start proceedings for a 504. That way, you can agree to certain standards and the documentation will be there if a teacher decides to deviate. I do agree with others that thermoses and cooler packs work well for lunches. I send a hot lunch in for my daughter 3+ times...
  12. shayesmom
    This is well worth repeating. The only thing that will get them to take this more seriously is the constant reminder that their current attitudes and actions are noticed and deemed not trustworthy. Unfortunately some people just don't "get it" simply because they do not want to. And these same people will not take it seriously unless they repeatedly...
  13. shayesmom
    Jess, Just so you know, you will need to be tested every 3 years or so unless you've had the genetic tests done which show you don't have the genes pre-disposing Celiac. The simple fact is, this disease can be triggered at any point in life. And the tests aren't 100% definitive. They can rule Celiac in, but they can't rule it out. This goes double...
  14. shayesmom
    Here's a link which outlines the bills in question: Open Original Shared Link From what I am reading, the bills still are not out of Committee so they haven't been discussed on the floor. Probably would be a good idea for everyone here to contact their local Congressman to push this along.
  15. shayesmom
    I live in a small town as well. We do grow some tomatoes and peppers. However, there are a couple of garden centers in the area that let you pick fruit as is available throughout the year. We can pick our own strawberries, blueberries, raspberries, blackberries, apples, peaches and cherries. It takes little time (about 15 minutes per trip) and we have...
  16. shayesmom
    I think you'll get the most bang for your buck by doing two things. One is to cook large dinners. So for example, if you're making meatloaf, make two. Freeze extra portions or save it for lunches. The second is to look at buying your specialty foods on-line or do a few field trips to see who has the best prices on the special products you do use. I have...
  17. shayesmom
    The first child I met with an "official" (biopsy-proven) diagnosis of Celiac was in the 98th percentile for weight and height. So I wouldn't put too much stock in the growth chart right now. Crankiness can be another symptom. With my daughter, she was good as gold in the morning, but come late afternoon/early evening, it seemed that it took little...
  18. shayesmom
    Wow. Not only is she not "getting" it, she apparently doesn't want to try either. Wow. It must be difficult going through life with such a rigidly set perspective. It's also interesting to see how she justifies keeping her world in order. So much for "independent thinking" on her part. I suppose that there just isn't an acceptable alternative in...
  19. shayesmom
    My sister-in-law presents these types of situations all of the time. It makes me absolutely crazy. Only once did she offer to go to a restaurant that had a gluten-free menu. And even then, when we all were looking for an appetizer to share, it was imperative that she got one with gluten. My dh tried to subtly hint that perhaps it would be better to get...
  20. shayesmom
    It's interesting that your husband doesn't see the other side of the same argument. By hanging on to his concept of what a "true experience" is....he's depriving his children of the same thing he supposedly values. In reality, the "true experience" is whatever you make of it. I find that a "fly by the seat of your pants" approach actually takes away from...
  21. shayesmom
    I can't answer as to what more you need to ask in terms of the tests (besides asking for the printout of the lab results). But I have to scratch my head a bit on the "barely positive" answer you've already received. Is that like being "barely pregnant"? I guess that I interpret such results as the disease has been caught early....before a lot of...
  22. shayesmom
    You know, I've been thinking about your situation most of the day. And I thought of one more thing you could say to this woman. "Do you think she'll have trouble being accepted into college if it's discovered that she doesn't bake well with others?" Try your best to keep your cool. We all know that isn't easy at times....but it is necessary because...
  23. shayesmom
    I know that 20 years ago, my high school introduced a salad bar. Unaware of celiac disease at the time, I now look back and find it ingenious that our school purchased two units. A small, open and cooled (ice was kept under a very large bowl of lettuce) unit for the lettuce and a normal "bar" for all of the toppings. The toppings in the bar unit could...
  24. shayesmom
    I think that you have a terrific opportunity to make a HUGE difference here! I'm already looking forward to hearing how this works out. As far as ideas go for allergic kids, I think one thing that would help immensely is having fresh, whole foods available. This can often be worked through the Farm to School program. Open Original Shared Link This...
  25. shayesmom
    Actually, I do think there is a lot of truth in this statement. If all the food allergic kids bailed on all of the food-based activities....things would definitely change. Having been in your shoes through 2 years of pre-school, I would opt to bake at home with my child. We tried to do the gluten-free alternatives the first year and my daughter was...
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