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MycasMommy

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Everything posted by MycasMommy

  1. MycasMommy
    Well we are all just a bunch of home schoolers here! Ditto for this family.
  2. MycasMommy
    Welcome to the board! I am glad you have gotten a diagnosis and now have an understanding of what has been going on with your family. You now have the knowledge to protect your children too. I lost 2 inches of height before I ever knew what was going on. Crazy eh? I just had my almost adult daughter tested too. The blood tests seem iffy though. The doctor...
  3. MycasMommy
    Finally, things are looking up. For whatever reason, I am now inundated with calls for interviews. Phew.. Just stopped writing this for 30 minutes because, yet another potential placement has called. BANG BAM BOOM! Here we go !!! The SO is leaving in 2 weeks to spend spring break with his family in Germany. I really hope I am working by then because I...
  4. MycasMommy

    I am so sorry for your heartbreak. :(

  5. MycasMommy
    Bhahahahahahh!! Oh dear *breathes* haha
  6. MycasMommy
    I really wish I could help you. I lived there for 8 years and have just moved to the mainland 4 months ago. Ruby Tuesdays has a gluten-free menu but I try to stay away from the downtown area as much as possible so I will be no help there. If you have questions about things to visit though... ask away! The island is not that big, really. There is no "too...
  7. MycasMommy
    Went to a dinner meeting of the Washington Society of Professional Engineers last night at a hotel banquet room. I have not eaten out in quite some time so I was nervous. I dont want to have a vomit fit during this! I asked the waiter who asked the chef about ingredients. (No gluten, no grains except rice). He seemed a bit miffed that he had to check the...
  8. MycasMommy
    Today I will make the walking zombies a nice brunch with french toast ( I do not know how this will work with my rice bread but we shall see!), OJ, milk, tea, yogurt, blueberry parfaits, watermelon, bananas, bacon, and sausage, with real maple syrup. and for dinner tonight I will have the BF grill up the thick cut rib eyes. I will whip up some mushrooms...
  9. MycasMommy
    How about a chili cheese dog casserole? I make it with grain free corn bread.. but the rest of you?? Oh heck! Google up a recipe. http://www.tasteofhome.com/recipes/chili-cheese-dog-casserole I use nathans hot dogs, they are safe... hmm I forget the name of the canned chili that is safe, but there IS one.. do the label check dance. Also....
  10. MycasMommy
    AH this is depressing to think about. Hmm.. The DGPs were not available on the automated system that gets sent to the lab across the hall. She has an appointment with the allergist to see if that could be the issue too. I do not know if severe allergies could do that to her with the Iron and Vit D ... I do not know anything. Its quite frustrating. Why...
  11. MycasMommy
    WOw, Got the results back about 2 hours ago. That was REALLY fast. CRP, High Sensitivity 0.0 - 10.0 mg/L 1.0 Vit D (25_Hydroxy) Total 20.1 - 50.0 ng/mL 14.6 Transferrin 192 - 382 mg/dL 177 Iron, SRM 31 - 171 mcg/dL 31 Anti Endomysial, IgA NRN Negative...
  12. MycasMommy
    Against the Grain is good for me. Its made with just eggs and cheese though. Cyclinglady is right, give yourself some time to forget EXACTLY what bread tastes like and when you are healed somewhat and start tasting the gluten-free stuff... it tastes different but you wont be trying to compare it so much and you will like it much better. The against the...
  13. MycasMommy
    The doctor was great. Ordered everything we asked for and sent a referral for the allergy testing too. She did not know a LOT about Celiacs so she asked a lot of questions that I was able to answer and she spent a whole 1/2 hour with us discussing it and I was very pleased. I let her know that sometimes the blood test is negative and she said OK then to...
  14. MycasMommy
    Good idea!
  15. MycasMommy
    I have had KP all of my life and she has since she was hmm 1-2 years old.. so .. I dont know... I know my mother had it too. I think it may just be genetic. But it is there, so I guess I should mention it>?
  16. MycasMommy
    Thanks! Its the last night before the blood draw and then we will be able to see her results online as soon as they are out. So we will know sometime this week. I really lov the way they have all the medical stuff open up right to the patient online. I just want to make sure it is NOT celiacs (though I think it very well may be) so that she does not end up...
  17. MycasMommy
    Tonight I am making a beautiful Ratatouille filled with peppers, zucchini, eggplant, mushrooms, and onions and topped with a blend of feta cheese and creme freche and a generous sprinkling of sunflower seeds. Baked in the oven to a light golden brown on top.. oh mai.... *sighs* One of my friends in Sweden gave me this recipe. It is so tasty! I am making...
  18. MycasMommy
    Hmm mine was super painful the whole time but I am going to guess that it was because I had to very large ones. They did a CT right there in the E/R because of the amount of blood in my urine. But the area of the pain.. It hurt up and down my back and side like a dull but persistent pain the few days leading up to this fiasco. It was explained to me as thus...
  19. MycasMommy
    Taking the teen to the doctor tomorrow to request a celiac panel. We've never seen this doctor before and we have also just moved here from another state so it is a first visit too. I will request these: -tTG IgA and tTG IgG -DGP IgA and DGP IgG -EMA IgA -total serum IgA and IgG -AGA IGA and AGA IgG AND allergy testing. Symptoms: Keratosis...
  20. MycasMommy
    BTW as long as youre not a diabetic, You can buy ketone test strips in the pharmacy area of most big stores. You basically pee on the strip or dip it, and match the colour up. It will elt you know if you are indeed in ketosis.
  21. MycasMommy
    Vegetable Beef Stew made in a broth of V8 because I am sneaky like that
  22. MycasMommy
    I just had this happen for the first and hopefully last time ..last thanksgiving. It was horrible pain! I hear you! I went to the E/R, the nurse had mepee in a cup... it was a cup of blood basically. They quickly dosed me up with some morphine (which makes me insanely itchy but better than hurting like that) and gave me some filter things to lay over...
  23. MycasMommy
    Are you actively losing weight? When a body is in ketosis (the good kind) then it leaves a particular smell. Even if you are not losing weight but are eating very low carb (intentionally or not) you can stay in ever so slight ketosis and ... Well I can always smell and/or taste it when I am. Same thing with the mouthwash when I am, too.
  24. MycasMommy
    HUh,funny that. I've been allergic to it since babyhood too.They tried once to do it again to see if it was just a childhood allergy. Nope.. Full on reaction. Same thing with all cephalosporins.
  25. MycasMommy
    I can't do Texas.... not even for snow.... They do have easy home school laws there though, so that is nice. I am glad your hubs got home safe and sound. Tonight We are going to the Burke museum to listen to a lecture about the recovery of soft dinosaur tissue. Awesome! Then we will order pizza for the gluten eaters so that my daughter can continue...
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