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CMCM

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Everything posted by CMCM

  1. CMCM
    If you have a recognized celiac gene, the potential is there. My understanding is that for a blood test to be positive, one has to have a certain level of intestinal damage in order for the antibodies to be clearly noted in the blood. If you have a negative, it could merely mean your level of damage isn't great enough yet to show up in the blood. I...
  2. CMCM
    If your daughter IS celiac, read this carefully. Quote is from Dr. Peter Green's book on Celiac Disease.: "Researchers have shown that ingesting 100 milligrams of gluten a day will cause continued damage to the villi of the intestine. While the exact amount of gluten that can be ingested daily without causing intestinal damage has not been scientifically...
  3. CMCM
    Here's my experience and observations with myself. 1. I am very very VERY carb sensitive. Eating much in the way of carbs really sets off bad eating across an entire day, and especially at night. 2. My appetite, my desire for bad stuff, my night eating, it's all nicely controlled by a fairly careful Atkins type diet. I don't eat a ton of fat,...
  4. CMCM
    Food manufacturers are always looking for the next "trend" to make money from. There was the low fat trend for a long time. As irritating as it is, if they seize upon this new idea it will actually be a GOOD thing for so many people who remain totally clueless about gluten and how it might be affecting them. I'm sure a lot of people will jump on this possibly...
  5. CMCM
    I just voted....I plan to vote every day until the 7th. Sorry I just found out about this! When I voted, it said PETS 38%, the allergy one 37%. Keep voting EVERYONE!!!
  6. CMCM
    For what it's worth, my mom is the most gluten sensitive person imaginable, and the least little microscopic bit of gluten makes her unbelievably sick. She was diagnosed 40+ years ago and has never worried about shampoos, lotions, etc., and she doesn't seem to be bothered by anything of a topical nature. (ALTHOUGH perhaps it would be a different matter if...
  7. CMCM
    I think your naturopath has given you excellent advice. When I first went gluten free, my digestive system was a mess and I was having touble with virtually everything I ate. At first I tried to achieve a level of "normalcy" by trying all the gluten free breads, cookies, eating rice and corn, but it wasn't until I spent a few months eating exactly as suggested...
  8. CMCM
    I really think we're all different....different bodies/ages/metabolisms, etc. Speaking for myself, when I went gluten free I started experimenting with all the gluten free stuff (feeling sorry for myself), and most of it is really high sugar/low nutrient value, and I had to get a hold of myself and I reasoned that wait....I didn't hog down all this stuff...
  9. CMCM
    There is an association of celiac disease with various other autoimmune diseases. However, not all people with autoimmune diseases have celiac disease, but a great many with celiac disease (especially, untreated celiac disease) go on to develop other autoimmune diseases, perhaps because of the continual assault of gluten on the immune system, thus weakening...
  10. CMCM
    I virtually never get hunger pains any more either, but since in the process of eliminating gluten I also ended up cutting out most sugar and starches as well, I'd say it's more because I don't have the huge insulin fluctuations that you get when you eat grains, sugars and starches (which of course turn into sugar immediately after you chew them up). I'm...
  11. CMCM
    I watched the whole thing....it was good, and would be very interesting for someone who is new to this and who hasn't done a lot of reading yet. For myself, having done a ton of reading the last 2 years, I didn't hear anything new in it. Just the basic info for the uninitiated. There were a lot of spots where more elaboration was needed. I have lots...
  12. CMCM
    The unfortunate thing which will never get printed (at least, not in the near future) is that the evidence is mounting up that the human digestive system was not designed to process gluten.....obviously some people do better with it than others, and those with certain genes (celiac) suffer greatly, but the fact still remains that probably most if not all...
  13. CMCM
    I was surprised to see a big gluten article in our local small town newspaper. It had a bit of good and useful info in it, but unfortunately, it was still the usual superficial stuff and it didn't get into the difficulty of getting a true diagnosis. It also looks like from this and other things I've read lately that "gluten free" is becoming a new trend...
  14. CMCM
    A lot of the literature I've read about celiac disease says a first degree relative of a person with celiac disease has about a 10% chance of it being passed on. I wonder where they get that figure? We started testing in my family, and look what we came up with: My mother: Diagnosed celiac in about 1966. When I got gene tested 2 years ago and found...
  15. CMCM
    Before figuring out my celiac disease problem, about 4 years ago I did the Atkins diet for about 8 weeks to drop some pounds. Although it wasn't a way I would eat naturally, I was absolutely amazed at how wonderful I felt on the Atkins diet. Aside from no hunger, all my digestive distress stopped, headaches went away, I had incredible energy, and so on...
  16. CMCM
    I think the Kinnickinnick ones are best.....I gave one to both my husband and to my son and neither one realized it wasn't the "real" thing. I tried the Midel ones but didn't like them as much. Also....Kinnickinnick makes a fabulous "animal" cookie type cookie....I forget what they call it but it's on their website. Super crispy and actually better...
  17. CMCM
    I've tried two different Gluten Free Pantry bread mixes in my bread machine. First was the French bread one.....not bad, but not exciting either. It was best when still warm, was ok as toast the next day, and pretty dried out by the 2nd day. Yesterday I tried the gluten-free Pantry sandwich bread one...I did NOT like the flavor at all. The ingredients...
  18. CMCM
    Well, for what it's worth, maybe the poison analogy isn't all that far off course. I remember reading that if you take some human tissue....anyone's tissue, not just a celiac's, and put gluten in the dish with it, the gluten appears to attack the tissue and destroy it.
  19. CMCM
    I thought my whole life until 2 years ago that I had problems with dairy, not gluten. I thought I was severely lactose intolerant...I didn't really know about casein. When I did my gluten testing, I also got tested for casein and was found to be casein intolerant as well as celiac. Well....I was gluten and casein free for maybe 5 or 6 months, and then...
  20. CMCM
  21. CMCM
    Boy, you've definitely got a lot of things that are associated with celiac disease. If you are still eating gluten, get the test right away. But remember if it is negative, it doesn't necessarily mean you don't have a potential problem. Since you have symptoms that bother you, you want to clear them up. You could then get a gene test....I guess you...
  22. CMCM
    I had a couple of blood tests over the years, both negative. Despite that, I still had symptoms. You DO NOT have to have celiac disease to have symptoms. When I had the Enterolab stool tests and gene test, they showed elevated antibodies, so reactions definitely were going on. I emailed Dr. Fine @ Enterolab, and he said one possibility was that I was...
  23. CMCM
    What makes me the angriest about doctors like this is that 1) They may realize they don't know enough but won't admit it (don't want to look stupid) 2) They know they don't know but don't go find out about it rather than telling you with great assurance something they know is wrong 3) They don't know enough to take the whole thing seriously....like...
  24. CMCM
    I can tell you right now that if I ate what you are eating, I'd have the same problems. My suggestion is that simpler is better. Limit the variety of foods. Cut out most of the fruit. I can only tolerate limited fruit. One fruit at a time, too! I love fruit salads, but they kill me. Peppers are of the nighshade family, highly problematic for...
  25. CMCM
    Dr. Peter Green, who published a very comprehensive book "Celiac Disease" last year, dealt with cosmetics and claimed topical application would not be problematic. Lipstick etc. would be, though since that kind of thing gets down into the stomach. Tootpaste, too. However, many many people on this board would dispute Green's basic claim and they avoid...
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