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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Beverage
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ARCHIVED anxiety, celiac, problems, doctors, i'm lost
Beverage replied to Jm34's topic in Coping with Celiac Disease
Why did you think that Coca Cola is gluten free? It's not labeled gluten free in the USA, is it there? The formula for big brands like that can be different in different countries. Anything with caramel coloring can be derived from wheat, so it would not be gluten free. Unless it is labeled gluten free, I would not put it in my body. According to the manufacturer... -
ARCHIVED anxiety, celiac, problems, doctors, i'm lost
Beverage replied to Jm34's topic in Coping with Celiac Disease
I hadn't thought of that for this poor person, but you may be onto something. I have cut out all grains except for corn tortillas, and feel I'm doing much better. Each person is so different in what they can tolerate. I have watched a lot of the youtube's by another guy that talks about some with Celiac's not getting improvements until they totally... -
ARCHIVED Still losing weight
Beverage replied to Fbmb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
As soon as I was diagnosed and went gluten free, I dropped 30 lbs in a month!!! For me it was all inflammation. I was emaciated underneath the swelling. It's taking me almost 2 years to build back up to feeling strong again. Now I'm lean and mean at 60. -
ARCHIVED Newbie question- glutened by crumbs in RV
Beverage replied to ffyrebird's topic in Related Issues & Disorders
I have also found that explaining that it's like a peanut allergy ... even the tiniest amount sets off the reaction. The reaction may not be anaphalactic (spelling?) like it is with a peanut allergy, but with gluten, the reaction is on your insides. People have heard so much about peanut allergies, they can somehow relate to celiac's being more serious... -
ARCHIVED Acid Reflux - Throat Tightening - 4+ months gluten free
Beverage replied to Dv1983's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Acid reflux and a rise in the diastolic of my blood pressure are my usual symptoms when I've been glutened. I don't get the so-called typical symptoms. One time it was that I was taking care of the neighbors chickens while they were on vacation, and I was inhaling dust from filling up their food feeder. The last time was taking a gluten free supplement recommended... -
ARCHIVED Gastritis that just won't quit.... help!
Beverage replied to Court L's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
HOME RENOVATION? Did you inhale dust from cutting any kind of manufactured wood product like plywood or any drywall? These are glued products, these glues can be wheat derived, and if you inhaled any of the dust ... -
ARCHIVED A Christmas Story about GLUTEN
Beverage replied to gluten-free girl 67's topic in Coping with Celiac Disease
You can't be sure any food prepared at anybody else's home is safe for you unless you are standing over them and watching every step. The ingredients can all be safe, but it could be the prep methods, tools used, or what it was cooked on, etc. etc. etc. I skipped out on the family Thanksgiving, ate at home by myself, because at the last minute I found out... -
ARCHIVED Someone trying to help
Beverage replied to Justine123's topic in Introduce Yourself / Share Stuff
My first reaction is that he told them that so that there would be no chance of cross contamination with the preparation of his food along with yours. If you've ever worked in the restaurant biz, dishes for the same table are prepared at the same time, depending what it is, by the same person. Maybe he was just thinking of you, not trying to claim anything... -
Diagnosis has triggered health anxiety and I'm struggling
Beverage replied to Fbmb's topic in Coping with Celiac Disease
You're breaking my heart with how much I felt just like you are saying ... the whole death sentence thing, just a matter of time ... futile ... that poison gluten is EVERYWHERE, no control!!! But it's been almost a year and a half for me since diagnosis, and I must say I don't feel most of that anymore. I think it takes a lot of time for you to figure out... -
ARCHIVED anxiety, celiac, problems, doctors, i'm lost
Beverage replied to Jm34's topic in Coping with Celiac Disease
I also want to pipe in about the sausages ... it's not just the ingredients that all have to be gluten free, but the processing of them. I used to make my own sausages, and people usually clean them out by grinding through several slices of bread. If the grinder has EVER been used with any gluten ingredients, then it is contaminated and not safe to make food... -
ARCHIVED Cherrios and the Celiac Disease Foundation
Beverage replied to cyclinglady's topic in Gluten-Free Foods, Products, Shopping & Medications
I had previously reported problems with Bob's Red Mill gluten-free oats and museli. I then tried Purely Elizabeth certified gluten free oats, which also caused reactions for me. So lucky me, I am special, I must be in the small percent that cannot tolerate oats. -
ARCHIVED Ate Gluten no instant reaction?
Beverage replied to Htxkid's topic in Food Intolerance & Leaky Gut
I was taking a supplement that the naturopath thought was gluten free, although not labeled as such. I started feeling yucky only after A MONTH of taking it! It was the only new thing I was taking, so got suspicious. I did my own research and found that the manufacturer claims no gluten ingredients, although there is wheat processed at the facility. Within... -
ARCHIVED anxiety, celiac, problems, doctors, i'm lost
Beverage replied to Jm34's topic in Coping with Celiac Disease
Now this is sounding more and more similar to my experience. The question my naturopath would be asking is what is the root cause of super high histamines in your body so that anything else that you eat or are exposed to has such a severe reaction. I had tested super high for candida albicans antibodies. I really didn't start feeling a lot better after... -
ARCHIVED anxiety, celiac, problems, doctors, i'm lost
Beverage replied to Jm34's topic in Coping with Celiac Disease
I used to get an itchey feeling in my mouth, and sometimes my throat would close up, after eating many unpeeled fruits and vegetables. I wouldn't get irritated and angry, but did get that feeling in my mouth. There is something called "Oral Allergy Syndrome." I don't seem to have the problem since going gluten free. A test would be to peel an apple... -
ARCHIVED anxiety, celiac, problems, doctors, i'm lost
Beverage replied to Jm34's topic in Coping with Celiac Disease
Some of the problems you are having may or may not be related to Celiac's. You may also have a problem with a bone in your neck or something there being out of place, which could cause the tingling and numbness in fingers and hands. Have you heard of Thoracic Outlet Syndrome? You might want to read about it and compare your symptoms. Not to throw more ideas... -
ARCHIVED 2yr old finally getting blood tested.
Beverage replied to k52381's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Make sure the doc is doing the full celiac panel for any blood testing ... my sister's doc only tested 2 things, didn't even do the control test, so all her tests came back negative but she's got more symptoms than I do! -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA -total serum... -
ARCHIVED Smelling gluten in air or fried gluten food mood reaction?
Beverage replied to Awol cast iron stomach's topic in Coping with Celiac Disease
Your eyes, ears, nose, and mouth all drain down the same place to your stomach. So if loose flour gets in the air and you inhale it, that would be the same as eating it. -
ARCHIVED Just diagnosed, weight loss?
Beverage replied to Fbmb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Also like 'cyclinglady' I found I feel the best with more of a whole foods, paleo style diet. At my local library, I can search a huge catalog for the entire county library system and request Paleo and Gluten Free cookbooks from other libraries in the system, and they send them to my library and I just go pick them up. So that way I've not had to purchase... -
ARCHIVED Just diagnosed, weight loss?
Beverage replied to Fbmb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I dropped 30 lbs in about a month after going gluten free, it was several pounds a day at first, then slowed to about a pound a day, then a pound a week. Underneath the inflammation I was an emaciated woman with bone and muscle loss, a real sagging drawn face and felt like crap. I also had bad deficiencies in B vitamins and thyroid, so work with a good... -
ARCHIVED Glutened or something else?
Beverage replied to kam00096's topic in Coping with Celiac Disease
Also candida albicans can set into the intestines to those with Celiacs, and cause a lot of issues. I tested high (blood test antigen testing), and after going on a protocol of a rotation of different herbs (garlic, oregano oil, grapefruit seed extract, etc.) and keeping sugar intake down, it cleared up and I felt better than I had in decades. I would suggest... -
ARCHIVED New diagnosis/test results & questions
Beverage replied to ws19817's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I also felt like I had been hit by a bus the first 1 1/2 months after going gluten free, like I had a bad flu but without the stuffed up nose and cough. Various deficiencies are common due to the malabsorbtion from Celiacs. Also I dropped 30 lbs of water weight inflammation, which probably released a lot of toxins that my body had to eliminate. I actually... -
I avoid all chips and deep fried items unless I am absolutely sure they are being made in a gluten-free dedicated fryer. It's not only the ingredients you have to be concerned about, it's the surfaces and such. So if something is fried in oil that previously fried something with gluten, it's contaminated and a no no.
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ARCHIVED Symptoms Pre-Diagnosis
Beverage replied to David55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
And keep eating that gluten until all that testing is complete!!! -
ARCHIVED Multiple intolerances - please help me figure out what to eat
Beverage replied to kenneth88's topic in Food Intolerance & Leaky Gut
I lost 30 lbs within a month after going gluten free. It was all inflammation! I do not believe it was because my metabolism suddenly revved up, I believe it was water weight from the inflammation, my doctor concurs. My doc said he has had Celiac's who lost over 300 lbs after going gluten free!!! Due to the malabsorbtion caused by Celiac's, underneath I... -
ARCHIVED aged cheese
Beverage replied to ironictruth's topic in Gluten-Free Foods, Products, Shopping & Medications
I would caution getting any cheese cut at the deli counter. They could have previously cut something else with a flavoring that does contain gluten (I confirmed this with the people working behind the deli counter, that they do cut some things that are not gluten free on the same machines, although they do wipe the machines down regularly). I just find it...