trents
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Celiac.com Board Moderator
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Scott Adams reacted to a post in a topic:
Allergy Testing
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Allergy Testing
trents replied to ARutherford's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, @ARutherford! Have you considered that your child may have gluten intolerance/celiac disease? It's not an allergy, it's an autoimmune response to the ingestion of gluten. It cannot be diagnosed by allergy testing but there are some specific antibody blood tests that any physician can order to check for it. Ask for a "total IGA test... -
Good idea, @LynnM! That would be helpful to other celiacs who find themselves on the more sensitive end of the spectrum. You might also want to send them information about how to initiate the process with GFCO. But just a word of caution here, don't be surprised if the company is reluctant to pursue this certification as it can tie their hands with regard...
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Cutting out major sources of gluten in one's diet is pretty easy. It's the hidden sources where it shows up in products you would never expect to find wheat in (like soy sauce and Campbell's tomato soup, most canned soups, many pork n' bean products), medications, supplements, oral hygiene products, etc. that are the things that trip you up. And then there...
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Yes, the development of additional food intolerances is a common spinoff of celiac disease. To ensure valid testing after beginning a "gluten challenge" you would need to be consuming at least 10g of gluten daily (about the amount in 4-6 slices of wheat bread) for at least two weeks. Many cannot follow through with this regimen, however, as their intolerance...
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Have you had B12 levels checked?
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mystery gluten?
trents replied to AnneBSunflower's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Maltodextrin is typically made from corn. -
Are you taking any vitamin and mineral supplements to address the deficiencies and if so, are they gluten-free?
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mystery gluten?
trents replied to AnneBSunflower's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the forum, @AnneBSunflower! Can you be more specific about the gluten antibodies? Which ones were found? Do you have access to the report and can you post the results? What is a "GI map"? How was this done? Is this a fecal matter test? Are you still consuming oats? Even "Gluten-free" oats? Have you checked all meds and supplements... -
miguel54b reacted to a post in a topic:
Newly Diagnosed
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captaincrab55 reacted to a post in a topic:
Old to diagnosis
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Welcome to the celiac.com, @Rejoicephd! 1. "Gluten Free" does not equate to "contains no gluten". According to FDA advertising regulations, it means it cannot contain more than 20ppm of gluten. This is a good standard for most in the celiac community but not good enough for those on the sensitive end of the spectrum. If you find the "Certified Gluten...
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@miguel54b, I hear you. Some medical professionals have this attitude that gluten disorders are the latest "fad" disease and are very dismissive. Many of us have suffered much and suffered much bodily damage by having our complaints dismissed as hypochondria or misdiagnosed as some other medical problem. But let me offer a little education about gluten disorders...
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Weakly positive DGP IgA
trents replied to Cat M's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If your total IGA is low then the values for the other IGA tests cannot be trusted. They will be depressed. Celiacs who have the DQ2 gene typically are on the more sensitive side as opposed to those who only have the DQ8. But keep in mind that having either or both of those genes does not equate to having celiac disease as 40% of the general population... -
Welcome to celiac.com, @Wamedh Taj-Aldeen! Just curious, what is your relationship to the patient? Are you the attending physician? A medical student? A consulted physician? Was a total IGA test ordered? Some physicians are under the dated and mistaken impression that such is only necessary in young children. If total IGA is low, other IGA antibody...
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Old to diagnosis
trents replied to dominiqueccms's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the forum, @dominiqueccms! Unfortunately, your story is all too common. Some older physicians are dismissive when it comes to gluten intolerance disorders and have this attitude like, "It's the latest fad disease." My advice to you is to get another doctor who has more current knowledge in this area and will take this seriously. In the meantime... -
Weakly positive DGP IgA
trents replied to Cat M's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
By the way, you need to repost those numbers in your first post and add the reference ranges. Different labs use different reference ranges so the test scores by themselves aren't very helpful, especially when the values may be borderline positive. It would need to be in a new post window as the edit function times out quickly such that you can't go back... -
Weakly positive DGP IgA
trents replied to Cat M's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to celiac.com, @Cat M! Were you consuming generous amounts of gluten for a significant period of time (weeks/months) before the blood draw and test results you posted? I ask because you say you would like to be retested after consuming gluten for a few weeks. Current guidelines for the gluten challenge call for the daily consumption of at least...