trents
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Another variable or "weakness" of this study is lack of verification that the gluten-free group was actually gluten-free. Were their antibody levels tested? This might call into question some of the conclusions which stated that oral symptoms persisted even after dietary changes were made.- 2 comments
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- canker sores
- celiac disease
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The "IgA 47-310 normal range" = is the total IGA test I mentioned in an earlier test. It goes by a number of names. He is not IGA deficient.
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Intermittent Fatigue
trents replied to ChrisDun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I would make sure he gets checked for B12 and D deficiencies at the minmium. Ferritin is a storage protein for iron. If it is low, it could mean his iron needs are currently being met by robbing from storage but the storage is not being replenished. I find it interesting that his fatigue set in during the winter months. If you live in a northern latitude... -
@LizzieF, if you will be seeking repeat blood antibody testing after undergoing a more rigorous gluten challenge, make sure your physician orders the "total IGA" test to check for IGA deficiency. If you are IGA deficient, all other IGA test scores will be artificially low and this can result in false negatives. Can you list the blood antibody tests that...
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Welcome to the forum, @LizzieF! Yes, I also question whether or not your exposure to gluten before either the endoscopy/biopsy or the antibody testing was long enough or intense enough to render valid test results. Guidelines for the "gluten challenge" have recently been revised to recommend more intense exposure: at least 10g of gluten (about the amount...
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Intermittent Fatigue
trents replied to ChrisDun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Chris, has your husband had a recent checkup with detailed bloodwork (CBC and CMP)? Has he been checked for vitamin and mineral deficiencies? -
Welcome to the forum, @Stuartpope! With Marsh 3b damage to the villous lining of the small bowel, your son is likely deficient in a number of vitamin and minerals due to poor absorption, not just iron. B12 and all the other B vitamins are likely low. I would suggest looking into a high quality gluten-free B complex, D3, magnesium glycinate (the form...
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Not sure about the state of my osteopenia. I haven't had a DEXA scan done since about age 50 and I'm now 74. No fractures, though. I have significant curvature of the upper spine (kyphosis) but that was well along by the time I was diagnosed with celiac disease almost 25 years ago. So, I think it may have been arrested at least.
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Zinc is also a very important supplement when it comes to infection resistance.
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Jordan Carlson, Wheat flour is fortified with vitamins ("enriched") where as gluten free facsimile flours are not. So when you eliminate wheat flour from your diet you may lose a significant source of nutrition. At the same time, gluten-free prepackaged foods are practically devoid of vitamins and minerals, consisting mostly of highly processed high...
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Reply to Sanna King: As you have withdrawn gluten from your diet you have lost all tolerance to it that you had when consuming it on a regular basis. This is normal. Not everyone experiences it but it is common. It has been my experience as well. When I was consuming gluten every meal every day for years after the onset of celiac disease but before diagnosis...
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Help Understanding Test Results
trents replied to Brown42186's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
ome value? Is that a typo? I don't see that on any of the test results you post and I've never heard of that one. -
Migraines are a recognized symptom of celiac disease. The incidence of it is higher in the celiac community than in the general population. It is one of mine. Well, keep us posted. Do you have a follow up appointment scheduled yet? Again, let me stress that it is important to not begin the gluten free diet or even a reduced gluten diet until all testing...
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They do use stages but only when evaluated the damage done to the villi of the small bowel after looking at the biopsy samples. I'm referring to the "Marsh" scale. As far as I know, "stages" has never been applied to blood antibody test scores. It would not be appropriate to assign stages based on antibody scores as the damage done would depend not only...
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Yes, all your test scores point to celiac disease. I think this is the first time I have ever seen all positives on a full celiac panel. But then, seldom do do physicians order a full celiac panel. Many or most will only order the TTG-IGA. By the way, your score for that one at 128 far exceeds 10x the upper limit of normal. In Europe, many doctors would grant...
