Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

trents

Moderators
 View Profile  See their activity

  • Posts

    8,341

  • Joined

  • Last visited

  • Days Won

    496

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Always read the allergen statement. Go there first. Also, watch for disclaimers like "processed on equipment that also processes wheat (or barley or rye)". And it's not just the list of intentional ingredients that you have to be aware of. Yeast extracts may be grown on gluten containing substrates for instance. Spices can be cross contaminated with gluten...
  2. trents
    Are you referring to refractory celiac disease? How can there be an "exacerbation" event of celiac disease while being in a gluten free state? Please include links to references that support your assertions.
  3. trents
    Those apps are only as good as the data base maintenance is and typically, the data base maintenance is dependent on user input.
  4. trents
    But Tabitha, you are still having symptoms. You mention tummy aches in your first post. Is this due to IBS or celiac disease or NCGS? And you are playing a little fast and loose with cross contamination. You need to be all in on one or the other it seems to me. You need to be all in on avoiding gluten or you need to be all in on committing to the gluten challenge...
  5. trents
    Celiac Disease has a genetic component. There have been two primary genes (HLDQ2 and HLDQ8) identified with the development of celiac disease and some other secondary genes. About 40% of the general population has one or more of these genes and, therefore, has the potential to develop active celiac disease but only about 1% of the general population actually...
  6. trents
    Welcome to the forum, @SammieCook! It is very difficult to avoid cross contamination when other family members are not eating gluten free. But it is imperative that you double down on your own efforts in that area. Also, studies show that somewhere between 10% and almost 50% of those with active celiac disease have celiac disease themselves, even if...
  7. trents
    DQ2 has the strongest single gene association with the development of active celiac disease. DQ8 is next. Having both is even stronger and having homozygous celaic genes is also stronger.
  8. trents
    Welcome to the forum, @TabithaJ! It is certainly possible that you have IBS and also a gluten-related disorder. At least with celiac disease, IBS and Crohn's are more common than in the general population. It is also possible and even likely that you have other non-gluten food intolerances. Again, in the celiac population, developing additional food...
  9. trents
    The antibody blood tests used to diagnose celiac disease are standardized in the sense of what is being measured. How the tests are conducted and the scales used (as well as the units used) to express the results can vary from lab to lab. This does not affect the accuracy of the testing. So, there shouldn't be an issue with choosing one lab over another to...
  10. trents
    Here is an article outlining the various tests that can be used to diagnose celiac disease: If your celiac testing proves to be negative, you need to look at NCGS (Non Celiac Gluten Sensitivity). NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it....
  11. trents
    But do you actually know what deficiencies she tested you for? Most traditional medicine doctors are not much into nutritional deficiencies. In my experience, they will test you for D and B12 deficiencies but that's about it.
  12. trents
    I think is is significant that you say your symptoms are worse after consuming gluten. Your next logical step would be to request a celiac panel including IGA and, since your total IGA is deficient, IGG antibody tests: TTG-IGA DGP-IGA TTG-IGG DGP-IGG You would need to be eat a significant amount of gluten daily, the equivalent of...
  13. trents
    Welcome to the forum, @alj67! Different labs used different ranges for all these celiac diagnostic tests in order to establish what is low vs. normal vs. high. Without knowing the range parameters used by the lab doing the analysis we cannot shed any light on your question. Do you have any more information? Was that the only test run? It looks like it...
  14. trents
    "Gluten Free" is an FDA standard that requires less than 20ppm of gluten. "Certified Gluten Free" is a GFCO standard that requires less than 10ppm gluten. GFCO is a third party internationally recognized certifying body.
  15. trents
    Okay, that sounds a lot better from a protein and calorie intake standpoint.
  16. trents
    No, this is certainly not normal. Besides 4 eggs a day, what else are you eating to get protein? Four eggs only gives you about 32-36 g. of protein daily. At your height and weight you ought to be consuming 3-4x that much at least. Have you had your pancreatic enzyme levels checked? I fear your are experiencing some kind of metabolic syndrome...
  17. trents
    More recent guidelines for the pretest "gluten challenge" specify at least 10g of gluten daily (roughly the amount in 4-6 slices of bread) for at least 2 weeks prior to either the blood antibody testing or the endoscopy/biopsy. To put it another way, more recent guidelines seem to advocate a higher amount of daily gluten for a shorter period than did the...
  18. trents
    If it's store brand what store do you refer to?
  19. trents
    Be careful about Trader Joe's gluten-free products. There was a big scandal back this summer over some of their gluten-free products testing well out of limit for qualifying as gluten free. There are threads about it on this forum if you want to look it up. I forget which TJ gluten-free products were involved but if I recall correctly their gluten-free bagel...
  20. trents
    Don't forget about NCGS.
  21. trents
    I assume you know that having one or more of the "celiac genes" does not equate to having celiac disease. Almost 40% of the population has one or more of the genes but only about 1% will develop active celiac disease. It's more of a rule out diagnostic measure in the sense that if you don't have one or more of the genes associated with celiac disease it is...
  22. trents
    Celiac disease is an autoimmune disorder. Hashimotos would not affect the villous lining of the small bowel. So, all things considered, it makes me wonder if you are on the cusp of celiac disease. I think you are at the point where you need to trial a gluten free diet for a few months and see if some of your symptoms improve. You have had both the blood...
  23. trents
    Welcome to the forum, @NatalieCO! So, you have conflicting results from two different tTG-IGA tests, one at 8.03 and the other at 4.62, i.e. one a weal positive and the other a negative. When they did the endoscopy, did they also biopsy the small bowel lining to have it checked microscopically by a lab for signs of the damage that would be caused...
  24. trents
    Delayed food sensitivity testing? Does that mean the testing itself was delayed or that testing was designed to detect delayed food sensitivity reactions?
  25. trents
    Welcome to the forum, @sadiec123! A couple of questions. First, what is the biggest driver behind your food anger? Is it having to deny yourself foods that you used to enjoy or is it the social cost of needing to eat gluten free? By social cost, I mean do you feel left out or even resented by family/friends at social events or do you avoid social...
×
×
  • Create New...