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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Scott Adams makes an excellent point about the possible pending scope with biopsy being the reason you were advised to keep eating gluten, @NCalvo822! You might want to get some clarification about that. What you don't want to happen is to go gluten free and then have to go back on gluten at some point in order to produce valid scoping/biopsy results.
  2. trents
    You might look into wearing an N95 mask when others are creating baked goods with wheat flour in your environment.
  3. trents
    Should not be a problem except for the most sensitive celiacs. The amount of gluten that would get in the air from cooking alone has got to be miniscule. I would be more concerned about cross contamination happening in other ways in a living environment where others are preparing and consuming gluten-containing foods. Thinks like shared cooking surfaces and...
  4. trents
    Welcome to the forum, @NCalvo822! Ditto to what Scott said. But let me ask you, what method or methods did your physician use to diagnose you as having celiac disease? Normally, it is a two step process. The first step involves a blood test that looks for certain antibodies produced by celiac disease. The second step involves an upper GI scoping and biopsy...
  5. trents
    @isi keller, seems like you are confusing glycemic index with gluten intolerance. Wheat, barley, rye and some cultivars of oats are the only grains that contain the protein gluten. Other grains have similar proteins more or less similar to gluten that are informally referred to as gluten but technically speaking, they are not.
  6. trents
    I was always under the impression that type 1 Diabetes onset always happened in childhood. Everyone that I know with type 1 has had it all for most of their lives.
  7. trents
    @dmallbee, about 8% of celiacs react to the oat protein avenin like they do to the wheat protein gluten. In addition, there are some cultivars of oats that apparently do actually contain gluten.
  8. trents
    @N00dnutt, I don't think it is correct to place celiac disease and Crohn's in the category of endocrine disorders. They are autoimmune disorders. Endocrine disorders affect organs that are glandular in nature and secrete hormones such as the pancreas and the thyroid. It is certainly true, however, that many endocrine disorders also have an autoimmune base...
  9. trents
    @CeliacPI, I know this does not directly address your question but it is well-known that in the celiac population, intestinal diseases in general are statistically more common than they are in the general population - IBS, colitis, lymphoma, etc.
  10. trents
    @N00dnutt, been there, done that! Cheers!
  11. trents
    @N00dnutt, as OP explained earlier, she had a gastroscopy done earlier while she had been eating plenty of gluten for months. It was negative despite strong positive antibody scores.
  12. trents
    @N00dnutt, can you find that article from the Mayo Clinic? That one would be a handy one to have for education purposes.
  13. trents
    It occurs to me that this might be a good application for gluten test kits, since the test kits seem to require samples in power form and pills can easily be rendered in that form. According to this article, and it seems to be current, there are three choices when it comes to gluten test kits: https://www.verywellhealth.com/gluten-detectors-and-test-kits...
  14. trents
    Marish makes a good point. Even if there is an effective "pill" therapy developed, how expensive will it be and will insurances cover it?
  15. trents
    I think giving attention to the main sources of exposure such as direct consumption of gluten and gross cross contamination with reasonable attention to handwashing and thorough counter top cleaning and dishwashing should cover cross contamination issues. The biggest precautions would be eating in restaurants and at other's homes. Don't get paranoia over...
  16. trents
    Occasionally we do see anomalies where celiac antibody tests are positive but biopsies are negative, and even visa versa. Sometimes, damage to the small bowel lining is patchy and unless numerous samples are taken from various areas, the damage can be missed. So, there's that issue as well. I think in your situation, the tell-tale indicator is the difference...
  17. trents
    Welcome to the forum, @Mrs. Cedrone! Among the various causes for canker sores, are "Nutritional problems like too little vitamin B12, zinc, folic acid, or iron" https://www.webmd.com/oral-health/canker-sores Could you be deficient on something?
  18. trents
    @Ronnie d, there is a small percentage of celiacs who have dermatitis herpetiformis but have no small bowel mucosal involvement. Also, we have had some reports on this forum from dermatitis herpetiformis suffers who said Dapsone did not work for them. But for the vast majority it does.
  19. trents
    @judycs, will you be following up with the company on this? But before you do, find out what kind of "flour" was used in the apples. Do you know for sure it was wheat flour? The term flour doesn't necessarily imply a wheat product.
  20. trents
    How long have you been strictly gluten free? Certainly, it would be good to look into vitamin and mineral deficiencies and supplementation. The B vitamins, magnesium and D3 are all very important to neurological health. Unfortunately, it can be difficult to reverse gluten-induced neurological damage damage if it has gone on for a long time.
  21. trents
    I remember reading an article summarizing testing done by Gluten Free Watchdog on several brands of dried lentils. They were all heavily cross contaminated with wheat and the commentary was to the effect that dried lentils in general were the most heavily cross contaminated product category in their testing data base. So, I would definitely not use any dried...
  22. trents
    Welcome to the forum, @Betsy Crum! That you have either celiac disease or NCGS (Non Celiac Gluten Sensitivity) seems not to be in doubt as the classic symptoms of headache, fatigue, diarrhea, brain fog, etc.) cleared up when you went gluten free. The chest pains with breathing difficulty onset being so quick after the consumption of gluten, even in the...
  23. trents
    @nataliallano, whatever else can be said, you need to get serious about eating gluten free. Lots of people with celiac disease are like you. We call them "silent celiacs". They have few or no GI symptoms and falsely assume no damage is being done to their body so continue to consume gluten. Neurological damage is one of them.
  24. trents
    That may or may not be true, depending on what that one marker is. Can you ask him specifically what that one marker is and post back about it?
  25. trents
    Not to eat or drink certain ones of what? Do you know what it is specifically you are trying to avoid when you eat? I kind of get the feeling you don't really understand much of this celiac thing.
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