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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Thanks. It is often prescribed for those with IBS. CINDYR, have you been officially diagnosed with celiac disease?
  2. trents
    Welcome to the forum community, @CINDYR! Can we ask, what is the name of the medication?
  3. trents
    Welcome to the forum community, @Cristal31! Products like this are always a crap shoot for celiacs. The gluten content from cross contamination will likely vary from one batch of the product to another and will cause reactions for those celiacs in the more sensitive range of the spectrum but not for those who are less sensitive or who are "silent" celiacs...
  4. trents
    Welcome to the forum community, @Dawn R.! Let me assure you! Many on this forum have posted about experiencing gluten ataxia and neuropathy. These are now well-known symptoms of celiac disease and also NCGS (Non Celiac Gluten Sensitivity) among those in the know. Unfortunately, it is not yet general well known in the medical community as a whole. But...
  5. trents
    So, for clarity's sake, did you start to feel unwell again only after B12 injections were discontinued or had you already begun a gluten free diet and then discontinued it?
  6. trents
    Even though the wheat straw may naturally be devoid of gluten, is there cross contamination in the processing?
  7. trents
    Welcome to the forum community, @litledebbie! The problem with any products made from "de-glutened" wheat is that the processes used to remove the gluten are never 100% thorough. There is always a residual amount left but small enough it may meet the FDA requirement of less than 20ppm for using the "gluten free" label. Another question would be, how...
  8. trents
    Welcome to the forum community, @Georgiajafa! Yes, we do have anecdotal reports on the forum of those with celiac disease who seem to go into remission for a period of time. My observation is that most of these cases are with people who are originally diagnosed as youths. I cannot tell you anything you don't already know so I will not offer an...
  9. trents
    Welcome to the forum community, @Jennybean15! From your narrative, it is evident that your physician suspects your are IGA deficient. However, there is no indication from the information you posted that he/she actually ran a test for "total IGA" to test for IGA deficiency. Was a test for total IGA run at a different time? The one test you do mention...
  10. trents
    Welcome to the forum community, @Jennybean15! From your narrative, it is evident that your physician suspects your are IGA deficient. However, there is no indication from the information you posted that he/she actually ran a test for "total IGA" to test for IGA deficiency. Was a test for total IGA run at a different time? The one test you do mention...
  11. trents
    Sounds like a good plan. I'm impressed that the GI doc thought about the genetic test. It can be helpful in ruling out celiac disease, though the genetics of it aren't quite as cut and dry as originally thought.
  12. trents
    Yes, it is possible. It would have been helpful had your physician run a more complete celiac panel. It is also possible that you are transitioning from NCGS (Non Celiac Gluten Sensitivity) to celiac disease and are in the early stages of villous atrophy damage. NCGS and celiac disease share many of the same GI symptoms.
  13. trents
    misslemon, an "immune reaction" and an "autoimmune" reaction are not necessarily the same. Both NCGS (Non Celiac Gluten Sensitivity) and celiac disease involve immune system reactions but only celiac disease involves an autoimmune reaction. Autoimmune reactions are those that cause the body to attack and damage it's own tissues.
  14. trents
    Welcome to the forum, @EmilyZ! Yes, it does get better. In time you will develop a sixth sense of what you should avoid and you won't have to think so much about it. Are you getting good support and understanding from family and friends or a lot of opposition? Also, after many years of being misdiagnosed you are probably suffering from nutritional...
  15. trents
    But you said he biopsied the stomach and not the duodenum/small bowel which is the part that needs to be biopsied when checking for celiac disease.
  16. trents
    We were in Frenchtown/Alberton for three years and then in and around Libby for 5. Kalispel is a gem of a city. Absolutely gorgeous area. Lactose (the sugar component of milk) is a problem for many celiacs but for some it is the protein, casein, in dairy that actually causes villi blunting like gluten.
  17. trents
    Welcome to the forum, @Hannaaddison! I think you are overthinking this. Any cross contamination from fresh meat would be highly unlikely and if present at all would likely be so small as to not cause a reaction in all but the very smallest subset of supersensitive celiacs. And I don't think you know yet that your 3 year old fits into that category. Relax...
  18. trents
    Welcome to the forum community, @jhand! I'm wondering if your lady is cross reacting to another food with a protein whose structure closely resembles gluten. We know, for instance, that some celiacs react in the same way to dairy and oats (gluten free oats) that they do to gluten. Corn, eggs and soy are other common offenders. Some medications can also...
  19. trents
    Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
  20. trents
    "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
  21. trents
    What kind of stool test was done? Can you be more specific?
  22. trents
    You have three celiac disease specific antibody tests that are positive: Endomysial Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual...
  23. trents
    So, I contacted Scott Adams, the author of that article and also the creator/admin of this website, and pointed out to him the need to clarify the information in the paragraph in question. He has now updated the paragraph and it is clear that the DGP-IGA does serve the purpose of circumventing the false negatives that IGA deficiencies can generate in the...
  24. trents
    From the article I linked above: DGP-IgA and DGP-IgG (Deamidated Gliadin Peptide) Blood Tests for Celiac Disease These tests measure the levels of antibodies in the blood, but specifically targets deamidated gliadin peptides, which are a type of gluten protein that can trigger an immune response in people with celiac disease. The test is not always...
  25. trents
    The DGP-IGA is valuable when celiac is suspected but the person being tested is IGA deficient. Were you tested for IGA deficiency. In other words, was there a test known as "Total IGA" ordered? Here is an overview of the various blood tests that can be run when diagnosing celiac disease:
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