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trents

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Everything posted by trents

  1. trents
    You got tomatoes coming in already!
  2. trents
    I don't know that the high cost of a loaf of gluten free bread is out of line with the cost to manufacturers of the ingredients. Have you bought a bag of gluten free flour to make your own bread lately? Remember, this is a niche market and the quantity of sales is far less than it is for mainline bread products such that the higher manufacturing costs cannot...
  3. trents
    I didn't even know Chick-fil-A offered gluten free buns. But there's a bigger question that needs to be settled here and that is does having celiac disease constitute a disability? If celiac disease is declared a disability by the government then eateries would need to absorb the cost of providing gluten free offerings in the same way they do wheelchair ramps...
  4. trents
    @Blanco, there is no need to wait for consultation with a dietician to begin the gluten free journey and hence allow healing to start. In addition, you would do well to invest in some gluten free high potency vitamin and mineral supplements as undoubtedly you have developed vitamin and mineral deficiencies that will otherwise take a long time to correct by...
  5. trents
    Yes, I think there is often a sense of elation when we first get our diagnosis and find the reason for the medical issues we were struggling with. But then the other shoe falls as we begin to really have to live out the huge social and dietary changes that recovery from celiac disease demands.
  6. trents
    @tummytroubles777, eventually it becomes the new norm. You and those around you will adjust and it won't seem so abnormal. But it takes time. It's like acquiring a physical handicap that requires you to approach life differently at every turn. If you are wheelchair bound for instance or a having a prosthetic limb, you learn that there are some things that...
  7. trents
    I do not know that there is a connection between follicular thyroid cancer and celiac disease. What I can tell you from working in a hospital patient care environment for over 20 years is that most cases of C-diff are connected to repeated and or prolonged antibiotic treatment for other infectious processes. C-diff usually arises from antibiotics killing...
  8. trents
    Welcome to this online community @ara050711! It is amazing how judgmental and cruel family members can be toward their celiac flesh and blood! Bad attitudes combined with medical ignorance! I will include a link to an article that appeared on this forum a couple years ago that I believe you will resonate with. I cannot offer any help or advice about...
  9. trents
  10. trents
    Welcome to the forum, @jennlove! The sense of relief you are experiencing is palpable in your narrative. I just want to make you aware that there is somewhere between a 10% and almost a 50% chance that your first degree relatives have or will develop active celiac disease. First degree relatives are defined as parents, siblings and offspring. Older studies...
  11. trents
    Welcome to the forum, @MegWatkins! So, you say you're not much of a cook but how have you been feeding your family up to this point? Do you resort to fast food a lot, eating out mostly, prepackaged meals? When you say you're not much of a cook, by that do you refer to cooking from scratch? The first thing to realize is that eating out is the #1...
  12. trents
    Welcome to the forum, @Patricia A Jones! Could you explain the term "acquired brain traumas"? Would this be like brain injuries from things like strokes or aneurysms? And what do you mean by your " . . . relatives, JW's were my brain retrainers"? JW's? Jehovah's Witnesses? Concerning your question about where you can order gluten-free, non-GMO foods...
  13. trents
    Refractive Celiac Disease type 2
  14. trents
    I should think it would. We're talking about whole kernel corn, right?
  15. trents
    Welcome to the forum, @Dan Maggs! It is a good idea to try cutting out dairy because celiacs are often lactose intolerant or cross react to the protein casein in dairy. Oats is another common cross reaction offender because the protein avenin in oats is similar to gluten.
  16. trents
    Genetic testing cannot be used to diagnose celiac disease since 40% of the general population have one or more celiac genes but only about 1% actually develop celiac disease. Genetic testing can be used more effectively to rule out celiac disease. That is, if you don't have any of the celiac genes, you probably don't have celiac disease but you still could...
  17. trents
    IBS is more common in the celiac population and visa versa.
  18. trents
    If you were tested for celiac disease while eating a no or a low gluten diet then the testing would not have been valid.
  19. trents
    During the course of all this have you been on antibiotics frequently?
  20. trents
    Welcome to the forum, @Brightstar101! Please don't get offended at this question but I would like to ask if you are serious about eating 100% gluten free since diagnosis? Apart from that, thiamine supplementation can be therapeutic in arresting non alcoholic fatty liver disease: https://journals.biologists.com/dmm/article/14/3/dmm048355/237831/High...
  21. trents
    Looks like there was no "total IGA" test run. If you are IGA deficient (low total IGA) then the negative tTG-IGA test result could be a false negative. The positive DGP-IGG certainly could indicate you have celiac disease and your symptoms certainly align with either celiac disease or NCGS (Non Celiac Gluten Sensitivity). Also, if you have been eating a low...
  22. trents
    Welcome to the forum, @Mm123! First, many celiacs are asymptomatic for many years after the onset of the disease. We call them "silent" celiacs. Second, the endomysial IGA test (aka, "EMA") is a very very reliable indicator for having celiac disease. It is not often run these days, having been largely replaced by the tTG-IGA which is less expensive....
  23. trents
    Welcome to the forum community @Madk09! Many people are diagnosed with weak positives on the celiac antibody tests. Was the IGA test you speak of the "total IGA" test to check for IGA deficiency? IGA deficiency can lower values in the tTG-IGA test and even cause false negatives. IGA deficient people should also have other tests run such as the DGP...
  24. trents
    Welcome to the forum community, @Mrami023! Your experience is very common. Many people don't get tested for celiac disease until after they have started eating gluten free or at least started cutting back on gluten. They don't necessarily know any better and no one has told them that this may invalidate testing, either the antibody blood testing or the scope...
  25. trents
    Okay, sunflower oil. But what's the problem with sunflower oil? What connection do you see between sunflower oil and celiac disease?
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