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penguin

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Everything posted by penguin

  1. penguin
    Ooh! Ooh! I can get on topic, too! I posted in another forum about bizarro pain I've been having. Does anyone else hurt a lot when someone scratches your back, gives you a massage, or you scratch your back? Or when you slide out of bed in the morning and your calves rub against the edge of the mattress? It's an intense soreness, like you just hit something...
  2. penguin
    Wouldn't the dingos eat the auxigro-detecting geese? Or would the geese have some sort of protective sheild on? Would the dingos have rubber teeth?
  3. penguin
    I've had the wierd pain for a few years. I just never thought of it as abnormal. The rash thing has been since the gluten, so who knows. It's not DH.
  4. penguin
    Alright, to recap: I'm on a gluten challenge for a biopsy Aug 20th. Previously, I was gluten-free 4 months, and had inconclusive bloodwork. Anyhoo. Does anyone experience a lot of pain when poked or scratched in some places? Like, if my husband scratches my back (average pressure), it kills me! It's an intense sore pain that feels like it's going to...
  5. penguin
    Are we a utopian cult-farm thingy, now? So...when does the spaceship get here to take us to the planet of gluten freedom? I'll make the kool-aid!
  6. penguin
    Sorry, but why are you here? Celiacs do get sick from touching gluten, because you touch your food, mouth, whatever with your hands. Some people also have a skin reaction. Celiacs get sick from inhaling gluten because your sinuses drain into your digestive tract, causing a reaction. It takes 1/38 of a slice of bread to cause damage in a celiac. Celiac...
  7. penguin
    Yeah, it's wierd how she said it wasn't "real" celiac with you, and you have worse symptoms than me. Yet with me, I get cc'd once and it's a dx. I don't know. Although, I did let her think it was her idea to test me for it. I think she's one of those doctors that don't see a difference between gluten intolerance and celiac, since the result is the same. She...
  8. penguin
    Ditto, even if all of the celiacs were diagnosed and vocal, we'd still be only 3/4 of 1% of the population. That makes us about 2.2 million strong, but in the scheme of the nearly 300 million, it ain't much. I think that our case might be easier to make once the FDA comes up with a definition of "gluten-free" in 2007/2008. I also think that the "whole grains...
  9. penguin
    That's awesome, Vincent! Make sure you don't let him forget his signs! Spanish was my first language (well, along with English, but my spanish was better) and I forgot it by the time I was 5 because nobody was around to talk to me in Spanish anymore Although, since he's already had exposure to a second language at such a young age, it will probably...
  10. penguin
    I get the first symptoms in 15-30 minutes.
  11. penguin
    My doctor said that new studies say that IBS is linked to a seratonin imbalance and that gastro symptoms are how some people respond to imbalanced seratonin. That's why the SSRI's help IBS, supposedly. In the short time I was on an SSRI, it didn't do a GD thing for my GI issues... But that was way before I knew about celiac...
  12. penguin
    Your doctor was right in saying not to put him on the diet yet if you think you may do a biopsy. The thing about doing a biopsy after being gluten-free for any length of time is that it skews the results. If the damage wasn't bad yet or just patchy, and the fact that he is a young child, the damage would heal fairly quickly and they might not catch it on...
  13. penguin
    Iatrophobia - Fear of going to the doctor Personally, I have Obesophobia...fear of gaining weight I had to go to target to buy fat clothes last night I've gained TWENTY POUNDS in the last 6 weeks from this 'effin gluten challenge. SO OBNOXIOUS!!!! Weight watchers August 20th, HERE I COME!
  14. penguin
    Bla bla bla, picky picky Lucky for me, there are about 4309308975087532 Chelseas out there, and I'm sure some of them have to deal with all the same crap. And I like penguins
  15. penguin
    Yeah, sorry about that. Considering she's my doctor, too, that definitely annoys me, cause I ain't skinny either.
  16. penguin
    You could, or you could call me Chelsea, or Chels, whatever. I wanted to change the screenname because everything is googleable and I don't want my mom seeing all the crap I wrote and she know it's me on a google search I totally forgot I asked scott to change it. (I'm a little annoyed he didn't capitalize the "p", but oh well ) (Thanks, Scott...
  17. penguin
    I need access to the food network as part of my job function I also think we need more bathrooms than bedrooms, all with VERY POWERFUL FANS that are loud and industrial air fresheners. You've been living in organic-vegan land, right? Red Bull is an energy drink that is terrible for you but wakes you up and I justify drinking it...
  18. penguin
    The spoon theory was linked a while back in another thread, but I don't remember which one. In the store for that site they have a whole section of "Celiac Disease sucks!" products. I want the apron Open Original Shared Link I printed the theory out for him and he seemed not to get it, but after a couple of days it's like a lightbulb turned on...
  19. penguin
    I'll try for on topic... Um...I can add that my body really didn't appreciate spending two days at Six Flags eating Six Flags foods (Remember, I'm on a challenge, only a monthish to go!). My hips are killing me and my innards are rebelling. I'm living on Red Bull. I definitely used up all of my Open Original Shared Link for the weekend and...
  20. penguin
    Konsyl (original) is safe for celiacs, all it has is psyllium. That's the one my GI doc reccommends.
  21. penguin
    I've been known to throw the butter and sugar around
  22. penguin
    Well Vincent, the only place I can think of that doesn't go over 85 (much) and snows a lot is Syracuse. I do not wish Syracuse weather on anyone! I had to walk a mile and a half, uphill, both ways, in two feet of snow (between October and May) to get to school. Ask Jersey, she knows and can vouch for me (Patti- tell them about the ridiculous hills between...
  23. penguin
    Your bloodwork looks a lot like mine. They did an iron study on me because they said those blood levels (low hematocrit, small RBC's, and high platelets) are indicative of one of two things: 1: Iron deficiency anemia 2: Open Original Shared Link Iron deficiency is caused by long term anemia, which in our cases is likely caused by celiac. With iron...
  24. penguin

    ARCHIVED Bananas

    penguin replied to gymnastjlf's topic in Coping with Celiac Disease

    The skin gets dark and the banana won't ripen in the fridge, but there's an urban legend that bananas become poisonous when refrigerated, which is complete bunk. To ripen, leave bananas out at room temp. Once desired ripeness is attained, you can refrigerate to stop keep them longer, but the skin gets to looking gross. Open Original Shared Link
  25. penguin
    I've read that it will be late 2007 or early 2008 before it's available.
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