
Fiddle-Faddle
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Fiddle-Faddle
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ARCHIVED Dr. Wakefield Trial (mmr/autism Possible Link)
Fiddle-Faddle replied to AndreaB's topic in Introduce Yourself / Share Stuff
sbj, when I first started looking into this, I (like you) believed what I read in the papers and what the medical establishment told me about "years of science." I'm sorry we are disagreeing on this, because I think you truly care about the situation, and you are doing your best to read and understand things logically and intelligently. It's just that... -
ARCHIVED New Celiac With Lots Of Questions
Fiddle-Faddle replied to Santafegirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Common hidden sources of gluten: 1) Boxed/canned chicken stock or broth (SOME brands contain wheat, as do almost all varieties of Campbell's Soups) 2) Soy sauce (most brands have wheat listed as the second ingredient after water; LaChoy and San-J WHEAT-FREE tamari are safe) 3) Rotisserie chickens (most are marinated in wheaty soy sauce) 4) Crab... -
If you get a biopsy at this point, it will be totally worthless if you have been gluten-free for so long. And I can understand why they would think that you wouldn't need a biopsy if you have a positive IgA and a celiac father. That's actually VERY forward-thinking of your doctor. However, you have not had a positive result with the gluten-free diet...
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ARCHIVED So Many Problems, Yet No Doctor Will Listen!
Fiddle-Faddle replied to ptkds's topic in Introduce Yourself / Share Stuff
MVP and connective tissue disorders seem to be common in people with celiac--I remember reading that last year, but can't find the link. My chiropractor was just saying yesterday that people with Lyme tend to have the extreme fatigue, (new) heart issues, and breathing problems. Have you looked into that? I know one of the big Lyme sites is www.lymenet... -
ARCHIVED Just Diagnosed With Mild Celiac Disease
Fiddle-Faddle replied to rafi's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
We can't always know how the original poster will react. When I first posted, I was given what you might consider to be "too much information," and thank heavens I was! It was because of people like Canadian Karen, Ursa Major, and tiredofdoctors and the reams of information they gave me that I understood what the risks, no, what the virtual certainty... -
ARCHIVED Has Anyone Seen A Negative Gliaden Iga Test From Enterolab?
Fiddle-Faddle replied to Amyand2girls's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I never used Enterolab, but have been on this board for about 3 years, and I have seen people report back that either they, a spouse, or a child did not test positive for IgA with Enterolab. Enterolab does say that their tests are NOT valid after being off gluten for a certain amount of time--I think it's one year? It makes sense--at that point, you've... -
ARCHIVED Heaven In A Pan
Fiddle-Faddle replied to leadmeastray88's topic in Gluten-Free Recipes & Cooking Tips
I bet there's a way you could substitute coconut milk products and maybe do something imaginative with nut butters to get something similar. I know there's a new df cream on the market that's derived from nut milks, too--I think it's called mimicreme. -
ARCHIVED Dr. Wakefield Trial (mmr/autism Possible Link)
Fiddle-Faddle replied to AndreaB's topic in Introduce Yourself / Share Stuff
Not only have I heard Dr. Wakefield speak (at an autism conference), but I know enough about the pharmaceutical industry and journalism to know what's really going on. Dr. Wakefield is looking for answers and pointing out links that could provide answers. He NEVER said not to vaccinate; quite the opposite--he made a point of recommending that the vaccines... -
ARCHIVED Dr. Wakefield Trial (mmr/autism Possible Link)
Fiddle-Faddle replied to AndreaB's topic in Introduce Yourself / Share Stuff
Here is a link to Wakefield's rebuttal: Open Original Shared Link "The diagnoses reported in the Lancet were accurate based upon the information provided to the clinicians and review of the available records [1]. Where there was considered to be a pre-existing developmental problem, this was accurately reported in the Lancet paper [2]. This is not... -
ARCHIVED Heaven In A Pan
Fiddle-Faddle replied to leadmeastray88's topic in Gluten-Free Recipes & Cooking Tips
Umm, sorry, but I just drooled all over my keyboard..... -
ARCHIVED Dr. Wakefield Trial (mmr/autism Possible Link)
Fiddle-Faddle replied to AndreaB's topic in Introduce Yourself / Share Stuff
He didn't fake the data. In fact, at the time, he pointed out that he was NOT drawing the conclusion that the MMR caused autism, but that there was a link, as he noticed startling results in his practice (that 24/26 of the autistic kids in his practice with IBS had the MMR virus in the lining of their intestines, whereas NONE of the non-autistic kids with... -
ARCHIVED Fell Off The Wagon And Don't Want Back On...
Fiddle-Faddle replied to Cath724's topic in Coping with Celiac Disease
No, really, it's not! I did two one-time gluten challenges after going gluten-free, and didn't react at all to either one. That was 2 1/2 years ago. I have not been the least tempted to have gluten. I know too many people with lupus, fibro, RA, IBS, etc, and have seen where they end up. And there are enough good recipes out there (most on this site... -
ARCHIVED Just Diagnosed With Mild Celiac Disease
Fiddle-Faddle replied to rafi's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm afraid you are going to get a million responses to your post, all telling you that your doctor is an idiot who knows nothing about celiac disease, and that if you have it, mildness of symptoms do not always correlate with severity of damage. And this is one of them. Seriously--when you have celiac, your immune system is triggered by gluten to attack... -
ARCHIVED Reintroducing Wheat
Fiddle-Faddle replied to Billygean's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Unless the doctor has good reason to suspect something OTHER than celiac to look for in an endoscopy, there is no need for an endoscopy, unless you feel like padding his bank account. As you said, you have your answer. The endoscopy/biopsy was deemed the "gold standard" of celiac diagnosis 50 years ago, before the blood tests used today were developed... -
ARCHIVED Wondering What To Do
Fiddle-Faddle replied to Midoriliem's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have a friend whose 5-year-old son had issues that she finally figured out were gluten-related. Unfortunately, after she took him back to the doctor to show the stupid doc how ALL of the serious issues were resolved after the gluten-free diet, the stupid doc wanted to put him back on gluten to do a biopsy. All the issues came back (no big surprise),... -
ARCHIVED Omg The Stupidity!
Fiddle-Faddle replied to Mandy F.'s topic in Parents, Friends and Loved Ones of Celiacs
In Real Life, we call this, "using the wisdom of experience to help others." One doesn't need an MD or RN to be able to do this, and often, experience is a better teacher than a paragraph in a textbook. Countertransference, my Aunt Fanny! Heck--mental health, my Aunt Fanny!!!!! -
ARCHIVED Hand And Food On One Side 'drawing Up'
Fiddle-Faddle replied to ravenwoodglass's topic in Related Issues & Disorders
You know, I had occasional eyelid twitching before going gluten-free, usually when I was really tired. It never occurred to me that I don't have it any more til you mentioned it. If it has to do with magnesium, maybe it's because I wasn't absorbing my multivitamin? Anyway, Raven, how are you doing? Keep us posted, okay? -
ARCHIVED Anyone Else With Vocal Problems?
Fiddle-Faddle replied to teemaree's topic in Related Issues & Disorders
I have been unable to sing more than half an octave or so since my last endoscopy. I think my vocal chords may have been nicked or bruised. (Luckily, I am not a professional singer, but it would have been nice to have been able to keep singing lullabies to my kids. ) Acid reflux can also affect the vocal chords. -
ARCHIVED Need Help Please-very High Anti Ttg False Biopsy
Fiddle-Faddle replied to mikewtf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am ignorant of the glutamine thing--sorry! I should read up on it, so I'm glad you brought it up. I wonder about calcium/vitamin D deficiency for you? Which would make sense if you haven't been able to absorb anything. Seems like you have an awful lot of broken bones. Have they done a bone density scan? Also, I think that high IgG levels take... -
ARCHIVED I Found My Diagnosis Not My Doctor, And It Bothers Him.
Fiddle-Faddle replied to I hate gluten's topic in Doctors
You might also be reacting not to the milk itself, but the toxins (antibiotics, pesticides, hormones, etc.) passed through the milk, especially in the US. A friend of mine has a daughter who has always reacted to dairy here in the US, but not in Europe. (She'd run out of soy milk while touring Europe, and tried cow's milk, sort of "what the heck," and didn... -
ARCHIVED I Found My Diagnosis Not My Doctor, And It Bothers Him.
Fiddle-Faddle replied to I hate gluten's topic in Doctors
Takala, are you off dairy? I've read in several places that autoimmune arthritis can be triggered by gluten and/or dairy. -
ARCHIVED I Found My Diagnosis Not My Doctor, And It Bothers Him.
Fiddle-Faddle replied to I hate gluten's topic in Doctors
He didn't bother to tell you that if you are already gluten-free for more than a couple of days, then your blood tests are likely to be normal, did he? Or that lupus is linked with celiac? You have to be EATING gluten--lots of gluten, 3-4 slices a day for several months--in order for your body to be making the antibodies against gluten. I'm so glad you... -
ARCHIVED They Want To Do The Biopsy
Fiddle-Faddle replied to newburyport's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was diagnosed with both hiatal hernia and reflux esophagitis 20 years ago--without an endoscopy. I'm curious why your doctor would not have picked this up before. Also curious to hear what he has to say about what it means. -
ARCHIVED They Want To Do The Biopsy
Fiddle-Faddle replied to newburyport's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I also agree that there seems to be no pressing need for a biopsy/endoscopy for you. If these doctors give you any grief, you can say: 1) What about "first do no harm?" What are their reasons for asking you to ingest something that makes you ill? (And, no, 2 weeks is not nearly enough to re-damage your villi.) If you reacted to peanuts, would... -
ARCHIVED "Super Sensitive" Celiacs.....
Fiddle-Faddle replied to jerseyangel's topic in Super Sensitive People
Most dogs respond beautifully to nuggets of their (gluten-free) kibble being kept in the treat jar and used as treats. They really don't seem to care WHAT the treat is as long as it's edible. Somehow, the manufacturers have convinced us that dogs need treats that are packaged differently from their regular food...