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Fiddle-Faddle

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Fiddle-Faddle

  1. Fiddle-Faddle
    Many celiacs with the joint-muscle pain find that they need to eliminate dairy--ALL dairy, not just lactose--as well as gluten. Some of these people are able to successfully add dairy back into their diets later. Apparently, in their cases, it seems that the dairy prevents the intestinal villi from completely healing, even when off gluten, but once...
  2. Fiddle-Faddle
    Please keep in mind that if you DO have celiac disease, you will be damaging yourself for several weeks. Although most people here saw most or all of their symptoms disappear on a gluten-free diet, some did have apparently irreparable damage. Also, most people seem to experience much worse symptoms and faster damage when returning to gluten after a low...
  3. Fiddle-Faddle
    Yes, GERD was my main symptom for decades before adding other fun ones like autoimmune thyroid disease and DH. I underwent 2 endoscopies--but they never looked for celiac, they were only looking for Barrett's Esophagus. You need to be aware, also, of the major risk for B12 deficiency. Celiacs are at risk for it in general because of decreased intestinal...
  4. Fiddle-Faddle
    Many celiacs with joint pain find that dairy triggers their joint pain as much as gluten. Sad, but common. You may need to eliminate all dairy, not just lactose.
  5. Fiddle-Faddle
    It's only worth taking your son to a doctor if that doctor is truly knowledgeable about celiac AND gluten intolerance. Some people who are in the beginning stages of celiac do not have enough intestinal damage to be officially diagnosed with celiac disease, and are often told that they are "only" gluten intolerant, and can eat as much gluten as they want...
  6. Fiddle-Faddle
    I wonder if this might be a virus? I had something very similar last week, although mine only lasted a couple of days--and I was preparing everything from scratch, at home (gluten-free kitchen), so I don't see how cc could have played a role (plus my reactions to gluten are not that extreme).
  7. Fiddle-Faddle
    At this point, your results will likely be negative until you've been on the equivalent of 3-4 slices of bread per day for at least a couple of months. If you KNOW this causes you pain, that might be your answer right there. You do not need a diagnosis to try a 100% gluten-free diet, nor do you need a doctor's permission, or even approval. You...
  8. Fiddle-Faddle
    I'm glad to see that you have an appointment with a nutritionist. Increased hunger can be a sign of overactive thyroid. By any chance, are you already on thyroid supplement for underactive thyroid? My experience was that, when I stopped eating gluten, my intestinal malabsorption improved (which is supposed to happen), and I then found out that prior...
  9. Fiddle-Faddle
    Small stools can also be a sign of dehydration: Open Original Shared Link
  10. Fiddle-Faddle
    If you are at all sensitive to monosodium glutamate (a common headache trigger), you might want to check out this page: Open Original Shared Link, which explains how foods can contain MSG, but not officially list MSG on the label. They explain a lot about MSG here: Open Original Shared Link It can be very frustrating to see how, in so many instances...
  11. Fiddle-Faddle
    I do agree with this, but still think that you might be hungry due to little fat in your diet, which, as I said, is necessary. If you stick with the yogurt, you might consider a high-fat version. Also, it's important to look for organic dairy products, as non-organic dairy products come from cows who are on constant low-dose antibiotics, hormones, and...
  12. Fiddle-Faddle
    Cgally, please be careful with your tuna intake, as tuna is very high in mercury, and mercury toxicity is a big problem for many autistic people and for many, seems to be a significant cause of autistic symptoms. Please see Open Original Shared Link, which contains a comparison chart of symptoms of mercury poisoning and symptoms of autism--they are nearly...
  13. Fiddle-Faddle
    Hi, Richard, I posted a thread about this this last year, with this link: Open Original Shared Link along with a question asking if anyone had tried this, had reactions, or had any further information about fermentation of gluten. The only answers to my question were posts telling me that San-J and LaChoy are safe (which didn't really answer my question...
  14. Fiddle-Faddle
    Many people choose to avoid an "official," biopsy diagnosis, for various reasons. #1) The biopsy has a fairly high chance of a false negative, is invasive, and does carry some risk. More and more people are starting to look at it as unnecessary, especially as the sophisticated blood tests of today were not available 50 years ago, when the biopsy was declared...
  15. Fiddle-Faddle
    I agree with FMcGee (don't faint, FMcGee!). There are several things that I see as red flags. #1) You give every indication of doubting the validity of your wife's diagnosis. #2) You mention your own "big heart" at every possible opportunity, but your examples don't bear out your conclusion. The fact that you would even joke (I'm assuming it's a...
  16. Fiddle-Faddle
    If you have gluten intolerance--celiac or otherwise--eating gluten can cause you to make antibodies to yourself (skin, thyroid, intestines, joints, etc.). Do you really want to take the risk that it might cause you to make antibodies to your baby? You may be craving dairy products for the fat--fat is important for brain development. Are you sure you...
  17. Fiddle-Faddle
    I find it interesting that it mentions that oil derived from wheat may be used: " In the grain group, corn oil is the most readily available, but the oil of other cereal grains such as wheat, oats, rye, rice, teff, triticale and the like may also be used." The patent also mentions squalene, which is supposed to be banned in the US: "These emulsions may...
  18. Fiddle-Faddle
    Cgally, not all celiacs are either DQ2 or DQ8. I have read of MANY cases (including some members here) of biopsy-diagnosed celiacs who have other genes. I believe this is simply a case of the accepted scientific knowledge not having yet caught up with reality. It used to be accepted scientific "knowledge" that autism was caused by "refrigerator mothers...
  19. Fiddle-Faddle
    Your daughter has BOTH genes for celiac, a family history of celiac, symptoms consistent with celiac, AND a positive Gluten IgG? And the doctor thinks she has IBS????? After 4 years on this board, I find this more shocking than most of the posts I have read here. I don't believe that your daughter needed an EGD/biopsy at this point. I think she should...
  20. Fiddle-Faddle
    Is your sister with MS aware of the research linking MS symptoms with celiac/gluten intolerance? You might show her this page, here on celiac.com: https://www.celiac.com/articles/124/1/Multi...ease/Page1.html
  21. Fiddle-Faddle
    I agree about the creamers, but possibly more importantly, coffee gives me much worse diarrhea than gluten. And I have heard the same from many (though not all) celiacs.
  22. Fiddle-Faddle
    Brooklyn, I wish I knew what could help your hepatitis. I do know that many people with RA are triggered by both gluten AND casein. I know it's bad enough having to be off gluten, but it might be worth trying casein-free for a few weeks. I have a 16-year-old student, who had been diagnosed with RA. It got a little better with gluten-free (although...
  23. Fiddle-Faddle
    Glamour, would Benadryl (either topical or oral) help at all? If it's any help, I too discovered the gluten-free diet after developing the worst rash of my life--it looked like really bad, oozing poison ivy crossed with shingles (without the nerve pain), and the doctors just shrugged and prescribed stronger and stronger topical steroids, and, eventually...
  24. Fiddle-Faddle
    See Open Original Shared Link for a listing of ingredients in just that brand of B12: Ingredients Neo-B12
  25. Fiddle-Faddle
    Please be extremely careful with prednisone. I was put on it last year, but the doctor pulled off it after only 3 days--and my body went into shock. I was never able to convince any doctor that going off the prednisone suddenly caused the horrible problems that immediately followed. They all said it couldn't POSSIBLY be the prednisone, even though I...
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