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Fiddle-Faddle

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Latest Celiac Disease News & Research:

Everything posted by Fiddle-Faddle

  1. Fiddle-Faddle
    I also wanted to add that a friend of mine noticed amazing results in her son's eczema when removing gluten from his diet. However, his doctor insisted on putting him back on gluten for testing. His eczema came back--100 times worse than it had ever been, and took several weeks to clear, where it had cleared withing a few days the first time. And her child...
  2. Fiddle-Faddle
    There are a few people on this board who are intolerant to lectins. Potatoes, I believe, are lectins. You might want to look up lectin intolerance, or else pm Ursa Major, who has a lot of research and helpful info on multiple food intolerances. (She is glutenfreeforum's resident expert on multiple food intolerances, having many herself, and children and...
  3. Fiddle-Faddle
    Welcome aboard, Mike! I'm not a doctor, so I can't rule OUT anything. But if you are making antibodies to gluten, you should not eat gluten. If you made antibodies to peanuts, nobody would dream of telling you to keep eating peanuts! But every problem you describe as already been described on this board by people whose symptoms totally disappeared...
  4. Fiddle-Faddle
    My 9-year-old has never even had bloodwork. We figured out after my diagnosis and subsequent diet that his severe eczema and tummy aches were due to gluten. We went back and forth on the diet a few times, and EVERY time he had wheat, the severe eczema AND the tummy aches came back. He didn't care SO much about the eczema, but at the second round of tummy...
  5. Fiddle-Faddle
    My kids like raw carrot sticks and red pepper sticks with dips (ranch dressing, hummous, cottage cheese, even peanut butter!). Two of them also like celery sticks, but one hates celery. Can't please everyone! I also frequently make frozen mixed vegetables--dump them in microwavable (NOT plastic) bowl, add 1 tablespoon water, a couple of spoonfuls of butter...
  6. Fiddle-Faddle
    Good point. Still, my gut (sorry, didn't intend the bad pun ) says that he's on to something--but I think the potential is probably only for a subset of celiacs/gluten intolerants, not for all, and especially not for those who suffered the typical (of USA) 11 years of severe damage before having been diagnosed.
  7. Fiddle-Faddle
    I think this is all fascinating, and am very grateful that MJ started this topic. I thinkit is definite "food for research!" I have often wondered why a colleague of mine who was diagnosed as celiac as a baby, and who is otherwise very strict with her diet, insists that she does not react to soy sauce and Rice Krispies--and her following testing seemed...
  8. Fiddle-Faddle
    I find this a bit confusing, as celiac , or as it is also known, celiac sprue is defined by--damaged villi. How could they say you tested negative for it?????
  9. Fiddle-Faddle
    If you google "pamela's gluten-free mix copycat recipe," you'll find one or more recipes to mix your own flour blend to VERY closely approximate Pamela's mix at a fraction of the cost. But if you don't have time/space to do so, order in bulk!
  10. Fiddle-Faddle
    Please hang in there. THose slip-ups are costing you big-time--your reactions will likely be WORSE each time you slip up, not better, and each slip-up is like a slip-up for a drug addict--it activates the gluten craving (did you know gluten has an opioid effect?), and makes you want it again. If you can get past the 2-week mark and be STRICTLY gluten...
  11. Fiddle-Faddle
    Use a French Bread pan. These come shaped like long tubes, but with open tops, of course, and have holes punched in the bottom for a nice crusty crust. See: <a href="Open Original Shared Link Advertisement/Chicago-Metallic-Professional-Nonstick-Perforated/dp/B00004R91I" target="external ugc nofollow">Open Original Shared Link Advertisement/Chicago...
  12. Fiddle-Faddle
    Definitely good advice--my dermatologist (who ran the blood work) told me my tests were normal, and at my request forwarded the results to my endocrinologist--who took one look at the blood work and said, "this says you have celiac." And there, clear as day, it said, "IgG--64" (where normal was defined as 0-16). But even if all your tests are normal...
  13. Fiddle-Faddle
    What about the fact that most health insurance companies USED to pay for just about every drug under the sun--then, when most people in this country actually believed that they NEEDED all those drugs, the HIC's said that they would only pay if said drug was on their formulary--and then the copays went up and up and up... Synthroid used to be $4 for ...
  14. Fiddle-Faddle
    Use 4" cake pans--I think Ekco makes them. They're perfectly hamburger-bun sized, and make great subs! Or you can use a French Bread Pan. Either way, just use your favorite gluten-free bread recipe!
  15. Fiddle-Faddle
    I can't think of enough horrible things to say about the health insurance industry! I'm so sorry you are going through this. Please keep asking to speak to whoever actually makes the decision--appeal left and right, and hire an attorney if you can (Edgar Snyder comes to mind, as this is a kind of malpractice). Folks, this is a good reason NOT to get...
  16. Fiddle-Faddle
    YES!!! All I wanted for 2 whole weeks was French bread with butter. I got through those weeks exercising, drinking herbal tea (cuts hunger pangs amazingly well), and eating Fritos and Guittard chocolate chips (both available in bulk at your local Costco or Sam's Club). After 2 weeks, I was suddenly fine, and the cravings never came back, not even...
  17. Fiddle-Faddle
    Lovegrov is correct about how the flu shot is formulated. However, like jayhawkmom, I have had the flu shot twice--and both times, within a very short time, I had the flu--which turned into bronchitis both years, and the second year, the bronchitis turned into pleurisy. I haven't had the flu shot since--and haven't had either flu or respiratory...
  18. Fiddle-Faddle
    Hey, Will, nice to hear back from you! My sons take the pizza tortillas to school with them, and are the envy of their friends--they get to eat PIZZA for lunch! They make them the night before and bring 3 or 4 with them. My 10-year-old's favorite is "BBC pizza," which is bacon (we use Hormel real shredded bacon , which we buy in a bag at Costco and keep...
  19. Fiddle-Faddle
    Would corn tortillas work better for you from the carb standpoint (they're thinner)? They are very easy to make pizza with, and if you cook them on both sides before topping, they get nice and crispy. THey're also very cheap and easily available. :)
  20. Fiddle-Faddle
    I think it is quite possible that gluten can CAUSE you to be be prone to insulin resistance. And perhaps it does matter where you get your carbs--mine were mostly from corn, brown rice, and potatoes (plus dark chocolate chips, which is sugar, of course), but in their normal state, not refined into flours. I think gluten-free breads, cookies, and cakes...
  21. Fiddle-Faddle
    When I was admitted to the hospital in 2006 with a post-surgical reaction to the painkiller (endocet, for anyone interested--evil stuff, to be avoided at all costs), the hospital told me that they couldn't guarantee ANYTHING was gluten-free, so they wouldn't bring me anything to eat.
  22. Fiddle-Faddle
    MD stands for "More Drugs!"
  23. Fiddle-Faddle
    I just did some internet hunting. I use little 4" round cake pans (they were at my grocery store! ) for hamburger buns, and they are perfectly burger-sized. So I figure there's got to be a mold somewhere that would work for hot dog buns. I googled "eclair mold" and found this: Open Original Shared Link Man that's a long address. Would that work...
  24. Fiddle-Faddle
    But that's like saying that people with fibromyalgia and IBS don't make antibodies to gluten. We know now that they they do, but nobody ever looked for them. NOBODY HAS EVER DONE A STUDY LOOKING FOR GLUTEN ANTIBODIES IN TYPE 2 DIABETIC AND PCOS. I'm not saying that gluten is the one and only cause of type 2 diabetes. But if it's not, it sure as heck...
  25. Fiddle-Faddle
    I love Bread--If you are counting on genetic testing for answers, please be aware that Europe and Asia recognize 7 different genes as being linked with celiac, while the US only recognizes 2. Go figure.
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