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Deej

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Deej

  1. Deej
    I missed it but I have to say, hurray for CNN and Heidi! It's so refreshing to have Celiac Disease in the mainstream media. I remember when I was diagnosed and how little information there was - it was a very frightening and alienating time for me. And now they're chatting about how to cook for us on CNN. The times they are a changin'. Anyone who hasn...
  2. Deej

    ARCHIVED Bloated

    Deej replied to BamBam's topic in Coping with Celiac Disease

    Yes, it happens to me. I don't know if the guar or xanthum gum is the culprit. I rarely eat packaged gluten-free foods for this reason and, when I do, I have only a small amount and then make sure I don't have any more for several days at least.
  3. Deej
    This was a very refreshing experience. It seemed to me that Heide and her physician are determined to bring this to the public's attention (and keep it there!). I was so gratified that he had the statistics about how many of us are misdiagnosed (and for so many years!). It was also important that they focussed on the damage that can be done by not being compliant...
  4. Deej
    I don't know if they are related. I had a hysterectomy, bi-lateral oopherectomy due to endometriosis nearly twenty years ago, before I was diagnosed with Celiac Disease.
  5. Deej
    Great news!! I was misdiagnosed with MS, too, and it turned out to be pernicious anemia. I have been getting B12 shots ever since each month and it is a small price to pay, imo. My doctor checks my levels twice a year.
  6. Deej
    Absolutely not OK. I ask about this everywhere I go because I was once glutened horrifically for exactly this reason.
  7. Deej
    I had one of the great meals of my gluten-free life two months ago at the Adobo Grill.
  8. Deej
    I seem to catch everything going around.
  9. Deej

    ARCHIVED Vitamin B12

    Deej replied to a topic in Coping with Celiac Disease

    Me too. Misdiagnosed with MS. Arrrrrgh. Eventually, when I felt I was having a stroke/heart attack I was rushed to emergency where they discovered my B12 level was unbelievably low. Massive B12 therapy. First daily, then every second day, then weekly, now (and for many years) monthly. Diagnosed with pernicious anemia.
  10. Deej
    I have been sick for three days from salad. Salad! It goes through me completely undigested and then omg the pain, D and the whole nine years. Fruit is totally out for me. I avoid citrus fruit like the plague and only tolerate berries on occasion. I'm so sorry you're going through this. I understand.
  11. Deej
    Hmmmm. This happens to me too. I have no idea why. It hurst, doesn't it?
  12. Deej
    I have problems that I think (don't know) are related to guar and xanthum gum which are often found in gluten-free baked goods. I get bloated and then suffer D. badly. I eat the baked goods only rarely. It never occurred to me it might be tapioca!
  13. Deej
    The last time I flew Air Canada (which IS the last time I'll fly Air Canada), I ordered the gluten-free meal. When dinner time came, they brought me a regular meal. I told them I'd ordered gluten-free. They told me, um, there wasn't one on board but I could have the extra vegetarian meal if I wanted - it was veggie lasagna. I love to be other places...
  14. Deej
    I drink it and have no problem at all. Sorry you got so sick.
  15. Deej
    I'm visiting Chicago from Canada - we planned ahead thanks to those of you on this thread and ate at the Adobo Grill last night. It was fabulous. I didn't mind the plantain chips at all - the guac was so wonderful it really didn't matter. I had the Filete al Pasilla and a couple of GREAT margaritas. I was really thrilled because my husband and I were hosting...
  16. Deej
    I've eaten very well indeed at Von's too. They are careful, in my experience.
  17. Deej
    I lived in Vancouver for 16 years and whenever I was in Kitsilano I'd stop by the Panne Rizo for some baked goods and pizza. I don't know if they are still there, though. I'm in Edmonton now.
  18. Deej

    ARCHIVED Neuropathy

    Deej replied to Jennhaz's topic in Coping with Celiac Disease

    Patti, my experience was similar. I still take monthly B12 shots, daily oral B6 and folic acid. I very occassionally get neuropathy symptoms now (once or twice a year) but there was a lot of damage to my intestine from 35 years of being undiagnosed and misdiagnosed so I guess it's not too surprising that I'm not always absorbing nutrients properly.
  19. Deej

    ARCHIVED Neuropathy

    Deej replied to Jennhaz's topic in Coping with Celiac Disease

    Vitamin deficiences (B12 in my case) can cause neuropathy and ataxia.
  20. Deej
    Add me to the list. I'm really radical about this. I have come to believe that it is IBS that does not exist, that it is a catch-all excuse and that there is always (always!) a diagnosis that the physician is either too lazy or too uninformed to be bothered to make. Anytime anyone tells me they have IBS I suggest they find another doctor who will...
  21. Deej
    I've been told (and I think it's right) that I have looked ill my entire life. Gaunt, pale, bags under the eyes (gosh what a picture that paints! ) and was suspected of having anorexia nervosa on more than one occasion. My experience has been that I have been dismissed, despite the fact that I look ill, as a hypochondriac. Thus all the misdiagnoses. ...
  22. Deej
    lorka, I had that before I was diagnosed with pernicious anemia. Despite weekly B12 shots and daily B6 and folic acid, it still happens from time to time. I'm not certain that I'm right by ascribing the numbness/loss of feeling to anemia, though. Maybe someone more knowlegeable knows. Scary, isn't it?
  23. Deej
    This is fascinating. I was diagnosed with IC just before finding out I am a Celiac. I went through bladder ablation (torture!) and it didn't help at all. What did help was going gluten-free, avoiding all citrus, wine and restricting my coffee intake to one cup a day. I suffered miseries with my bladder, much of it very very embarrassing and upsetting...
  24. Deej
    I haven't heard of them either but I'm interested!
  25. Deej

    ARCHIVED Endometriosis

    Deej replied to ebrbetty's topic in Related Issues & Disorders

    I had it but also had undiagnosed Celiac so I am at a loss to say which symptoms were caused by what. It's a tricky thing.
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