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gfp

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Everything posted by gfp

  1. gfp
    Nic, you have 10 years to you get to this ... and I'm sure you will do a great job I think we agree mostly and really what I'm saying is that they are your kids and unless its something really dire and immediate like not giving insulin then it should be your decision and what I think shouldn't affect you certainly not legally and I certainly shouldn...
  2. gfp
    You can start here: Open Original Shared Link This hows why biopsy is ineffective as a diagnostic Open Original Shared Link
  3. gfp

    ARCHIVED Celiac Sprue & Doctor Too!

    gfp replied to RKB-MD's topic in Doctors

    No I agree but I agree with eKatherine too. It goes a bit further, I don't want the person next to me eating a crusty roll and spilling crumbs over me either. I don't have two heads!
  4. gfp
    I don't think its that but the fact we seem to go through cycles... often early gluten-free can be worse and then get better and then long term we get glutened later and think hey it can't have been this bad EVERY TIME? Its really subjective and hard to pin down and I think that is why I didn't respond earlier.
  5. gfp
    I quoted because i wanted to add to this... I agree 100% with nini. What you have to consider is if the biopsy would be negative ? You have +ve blood work but what exactly would a -ve biopsy mean to you. IMHO if you have +ve bloodwork and keep eating gluten sooner or later you will have villi damage but why deliberatly damage them? Some people say...
  6. gfp
    That's OK, I think we both agree "strongly that it is a parents job to protect our children againt harm when we can." but the problem is the whole thing is a minefield! That depends, if I thought the option was that 15 yr old going out and scoring some coke or heronine. Its similar to having a underage child having sex. You might not...
  7. gfp
    This is the real frustrating thing! I have been though similar, you have several different suspects and can't really work out which! Its even worse if sometimes they seem to make you ill and sometimes not.
  8. gfp
    I think the case of an insulin dependant diabetic is as far from the celiac situation as the celiac situation is from fast food dinners. Look at it this way, would a Dr. suggest a 3 month trial of what happens if the child doesn't get insulin? Dr.s suggest everyday that a 3 month gluten challenge is in some way beneficial or non harmful or are they...
  9. gfp
    I gotta agree, if its real aged modena basalmic I want to taste the basalmic heck its not cheap. However one dressing I do use it in is a honey vinegarette .... I'm not one to measure and adjust for taste but basically olive oil and basalmic, a pinch of salt (should be dissolved in vinegar before adding oil) and a little whole grain mustard and...
  10. gfp
    Very true....
  11. gfp
    Good point I messed that above but I think this is the sort of thing you have to red flag. As soon as companies start playing with words, definitions etc. they are hiding something.
  12. gfp
    Good luck on the CC! As for the other, I guess its lets educate the world 1 server at a time!
  13. gfp
    Its certainly pretty distasteful. The weird thing is as many people will say its unethical to inform the person they have a disease when they signed up to a blind trial. You can take this a step further.... for instance people who donate blood might be found to have hepatites or hiv but if they have donated under an anonomity agreement they can't be...
  14. gfp
    This is a good observation. But its really complex .... I mean if the kid is just going to eat gluten anyway how can a parent stop that short of actually locking the child up? That itself could be 'child abuse'.... Another way to look at it is what do you call a Dr. who insists on a biopsy of a child and a 3 month gluten challenge and then insists...
  15. gfp
    This is very good advice.... What I find personally is that sticking at an exact weight is really hard. Seasons change and so does time to exersize and the food I'm eating. Changing weight up or down is a bit like steering a long barge.... you need to make turns in advance. It can take a week or month for the body to start getting used to a new...
  16. gfp
    They will check up to the sensitivity asked for by the client up to what is possible. Every testing lab works the same way.... the first question the marketing people ask is "do you want to prove it is <X> free to a certain standard or do you want to know if it contains <X>". In this case you were talking about a single item. Cost becomes...
  17. gfp
    This is perhaps not the point. The asbestos industry spent a lot of money to keep making asbestos and sayingit was safe. I grew up very close to this Open Original Shared Link Asbestos related illness was still seen as something very rare even after it was known that it could and did cause cancer it was still not banned. I don't think the wheat...
  18. gfp
    Thanks, the stuff is definately not 6 yrs old Having been caught out with this on European products over a long time its something I find naturally scary!
  19. gfp
    Well the problem really is that testing becomes more sophisticated and newer tests formulated. At some point in the 50's (exactly when depending where you are) celiac disease became recognised by the biopsy. As it happens blood tests were pretty much around the corner but for one reason or another the biopsy became the gold standard. Obviously a...
  20. gfp
    I doubt it.... they are justifying their financial case by a smoke screen. Don't believe a word of it.... this is an afterthought. Firstly several pepole here have already busted the more costly part to diet anyway BUT "being different" because they have celiac disease is probably the last being different that a family has to struggle against...
  21. gfp
    I have the same feelings. Everytime some new wonder product is pushed it almost always seems to have studies 10 yrs later with negative effects. Yes just as generations of agriculture changed wild grasses into high gluten wheats... However as I have said before "there is no such thing as the healthy diet" Every last thing you consume had good...
  22. gfp
    Childrens health has nothing to do with it.... $$$$$$$$$ No its because they don't care. Yes they are worth spending money on if it cannot be helped or if they cannot come up with a convincing reason NOT to. It is also largely to do with the constant political maneovering over biopsy and blood testing. No country on earth (excepting Saudi...
  23. gfp
    Its a lot of probablies.... hineini: as a minimum, since your Dr. sounds receptive I would try and discuss what about a false negative with him. Take some of the papers on the testing and highlight parts so not to waste his/her time looking over them. Take some of Fine's papers as well since this doesn't rely on the leaky gut .... perhaps he...
  24. gfp
    Everyone has personal triggers.... Keep hinting how its a bit suspicious that places like Italy test every child and 1:200 are found positive and the US administration (in common with most but you can omit that detail) seems to be ignoring this huge health issue. Don't try and tell them its for them, tell them its frustrating for you because maybe research...
  25. gfp
    floridanative: Its like this .. there are two things that can happen... you keep nagging and it works or you keep nagging and it pushes her further. If this wasn't adversely affecting you then its still a toss-up ... leave her to realise or try and lead the horse to water. BUT it is affecting you adversely.... you could make yourself ill with worry...
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