celiac3270

Yes--you could be celiac and not have allergies to wheat, rye, barley, etc. Two completely different things....

Hey Colin,

I'm almost 15--diagnosed nearly 2 years ago.

First, your doctor can't really CHECK for gluten intolerance because you can't diagnose someone with gluten intolerance through any type of test. The doctor would pass that judgment based on your symptoms, perhaps response to gluten-free diet, etc.

With regards to symptoms, diarrhea is among the top symptoms (the most prevalent symptom being fatigue, which you also have). Gas is very common, as are pale stools and abdominal pain (probably due to the gas). The mucus also sounds celiac. Finally, they are studying the effects of celiac dentally--but dental defects, such as wearing of the enamel or frequent cavities are also common traits of celiacs.

That said, your symptoms sound VERY much like those of a celiac. If you are celiac, it is really important for you to be on a gluten-free diet and avoid potential long-term problems. Untreated, undiagnosed celiacs can have problems later in life such as diabetes, cancer (intestinal-related), anemia, and other deficiencies, etc. I think you're definitely on the right track with starting the diet. There are plenty of people on this board who do not have a formal diagnosis, but noticed a phenomenal difference when they changed to gluten-free. Any increased gas you've noticed is probably due to the diet change, but that, too, will pass. Just make sure you're eliminating ALL gluten, because a few crumbs is just as bad as a whole pizza. It's excellent that you're taking this into your own hands since the doctors aren't being that helpful. Feel free to ask any questions here re: diet, symptoms, etc.

-celiac3270

I very strongly recommend the Whole Foods bread (they have a "gluten-free bakery" and they ship the goods to usually one rack in the store). They also have other terrific baked goods; pies (I've been saving an apple pie in the freezer for Thanksgiving, but they also have cherry, blueberry, etc.), other types of breads, cookies, etc.).

4th place? That's awesome!!! You're going to become our celiac celebrity, lol

-celiac3270

Yes--I had noticed that assistant issue just now when I logged on. Cool updates -- the revamped posting options, warnings are back, new general formatting. What's the new icon? The V-thing--just wondering if that had something to do with celiac like the old wheat icon or if it was some default icon that came with the board update?

Thank you for all of your hard work!

-celiac3270

Wow--I searched under members for bette326 and nothing came up. I'd contact admin about it; he's the only one that can do anything about it:

Open Original Shared Link

-celiac3270

Make her mad?

Good catch, Karen! (despite brain fog about posting linK )

Shirley, for thinking that everyone should know how to milk a goat

I really don't know how to milk a goat--seriously, I'm a New Yorker, lol.

Thank you to everyone--particularly Scott--he does so much more work than us moderators pinning topics--and all the people who post here

I just got this update e-mail from the Celiac Center (at Columbia).

Like Mother, Like Son a one hour episode, featuring Dr. Green and his patient Eamon Murphy and family

Based on this, I kind of inferred he did, lol

Mystery Diagnosis Like Mother, Like Son a one hour episode, featuring Dr. Green and his patient Eamon Murphy and family,

will be on the Discovery Health Channel, Sunday, November 27, 8:00 pm.

The Discovery Health Channel varies based on your geographic location. For NYC, the channel is 115. You may want to check with your local cable provider for the channel in your area.

The program features stories about diseases, including celiac disease, that are difficult to diagnose. Stay tuned for this important program!!!

For additional information, or to visit the discovery health channel online, click here: Open Original Shared Link

All the best,

Cynthia

Cynthia Beckman

Director of Development

Celiac Disease Center at Columbia University

161 Fort Washington Avenue

Suite 645

New York, NY 10032

Tel (212) 342-4529

Fax (212) 305-6443

www.celiacdiseasecenter.org

You need to go to change AVATAR settings--that's the pic that shows up next to your posts. Nobody has a personal pic--that's a different feature that's disabled.

Go to a GI at Columbia Presbyterian; I also live in NYC--they have a Celiac Center.

Yes--I've heard good things about that book (Personal touch on... Celiac Disease) but haven't actually read it. Not trying to resurrect the Jax debate--sorry--just wanted to defend Danna Korn cause I think she's pretty reliable.

No--Pepsi was just listing corn gluten which is not harmful to celiacs. By the way, all Pepsi softdrinks are gluten-free (look at the site Q & A response for gluten).

Right--if it's not pinned, it goes to one of the back few pages of the forum until a moderator comes and pins it. If you need to see it and it isn't yet pinned, either go there, or go to view new posts.

I don't know--it's certainly not a flawless system. I tend to see all the posts within the past 24 hours... and if they're really new they reflect it with the bright icon, if I've read them, they're the dim icon.

Danna Korn says she's trying to avoid using specific product names. And she incorporates numerous disclaimers. And with regards to the FritoLay thing--about 1/2 of celiacs look upon FritoLay suspiciously, suspecting contamination. I personally don't, but if she warns against FritoLay, that's fine cause so do so many others. NOW, Danna does not make long lists of prescription drugs in which half of the products listed to be gluten-free actually are not and those listed as not being gluten-free (such as Lipitor) actually are. Danna does not suggest that you pull the cold cuts from between the wheat bread and just brush off the crumbs. Danna does not suggest, if you're a Catholic, taking Communion and stuffing it in your pocket, nor eating the wafer if you're confronted about this practice. Danna Korn does not list references without ever visiting them, resulting in numerous misspellings of the URLs (delphiforums.com was morphed to delphiformus.com). As you can see, there's a lot more to this than Fritos. My other posts explain in greater detail.

I highly recommend Wheat-Free, Worry-Free (and it's more sophisticated than her beginners-aimed Kids with Celiac Disease). I would endorse other celiac authors, and have nothing against any of those I haven't mentioned. I do have a problem with Jax, because I think her inaccuracies are dangerous and negligent.

Jessica, I wasn't here for the old board, but I joined shortly after (maybe two months after?) the formation of the "new" board.

Absolutely a huge thank you to Scott!!!

sent

Kraft is wonderful. I would NEVER boycott Kraft:

1) They do in fact label all gluten.

2) They're a huge company, so it's easy to find their products--so if they're celiac-friendly, that's fantastic.

3) They don't give you lists and answers because they become outdated. Just look at the label every time and you'll know.

Distilled vinegar is widely considered to be safe (by the medical community, too). First, it may not even come from a gluten-containing grain. Second, even if it does, the gliadin is removed in the distillation process so even distilled vinegar from, say, wheat, is safe.

I suppose I've been here awhile, though I have been remiss in my celiac-ing duties these past few months.

Yes. Approximately 1 in 5000 are currently diagnosed. They used to think that that was also the prevalence rate. Most recent studies have shown that an estimated 1 in 133 have celiac. That said, the rate more than doubles in those exhibiting celiac symptoms (about 1 in 55). And first degree relatives of celiacs have that approximately 1 in 20 prevalence of developing celiac. That's probably where you got the 1 in 22 number.

Spelt certainly is not gluten-free. "a wheat (Triticum aestivum spelta) with lax spikes and spikelets containing two light red kernels." Now, you will get some health food store employees who will tell you it's gluten-free, but it's not. And the article on this site warning against various common pitfalls in a gluten-free diet discusses misinformed health food store employees trying to push spelt on celiacs (lol, push... I inadvertently made it sound like a drug ). Not gluten-free at all.

Yes! This is very, very promising that they're moving to the human testing phase. You guys will have to tell us how it goes if any of you are "tested."

I forgot about this one.