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celiac3270

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celiac3270 last won the day on May 25 2018

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  1. Endoscopy -- In youngsters, since they have a smaller intestine, they usually show complete intestinal damage (whereas in the longer adult intestine, it's usually in the upper and lower regions of the intestines. However, you don't need villous damage for a diagnosis--you might have caught it early enough that there was no damage or the intestine healed remarkably, or there was very little damage that was healed in that one week period.

    It's inconclusive, but certainly not negative. An endoscopy can only really be taken seriously if it comes back positive--but a negative happens all the time to people that actually have celiac disease.

    Blood test -- slightly elevated...that probably means in the borderline range. I think it's overall inconclusive here, but with improvement on the diet and having been on the diet through the testing, I would put her on a gluten-free diet. Some here didn't have any tests done, but feel so much better eliminating gluten, so just for that reason, be it celiac disease or a wheat allergy, they eliminated it. That's what I would suggest.

  2. Oh, I know! I'll e-mail you a file I have--I posted about it a few months ago, but I have an even newer version now--it's a 136 page Adobe file and it has menus/statements from all chain restaurants, plus a more specific list in certain states: New York, California, Oregon, Rhode Island, Virginia, Washington, and Washington DC. Send me your e-mail address if you want it--the same applies to anyone else. 125 of the 136 pages are chains, nearly all of which would be found in Tenn. LOL...just make sure you specify the restaurant file, since I still have a steady stream of Delphi Food List file requests :lol:

    BTW, got it from Yahoo support group, Silly Yaks.

  3. I am posting this in both the Celiac Disease in the News thread and the Celiac in Toronto News Today thread because it pertains to communion, but it's also celiac disease in the news...deserves to be in both:

    Open Original Shared Link

    Article entitled what would Jesus do? ....the question we've all been asking ourselves <_< and that I think we can make a fair assumption about.

    Also pasted below since some newspapers knock articles off the internet or make you pay after a few days:

    What would Jesus do?

    Published in the Asbury Park Press 05/20/05

    Holy Communion, a sacrament at the heart of Catholicism, begins as a joyous occasion for second-graders when they join their congregation in receiving the Holy Eucharist at the altar.

    But for a little girl from Brielle, that step has been on hold. A year ago, the Diocese of Trenton said her First Holy Communion was not valid because she received a rice-based wafer, rather than a wheat-based host sanctioned by the Church. A medical condition, celiac-sprue disease, prevents her from ingesting wheat-based products

  4. Open Original Shared Link would probably be good because while I don't know if it's anonymous, it is not accepted as formal diagnosis by doctors, nor is it accepted by insurance. However, most celiacs who have used Enterolab are satisfied with the results.

    On not being diagnosed in the first place: it's good that they not know it for what they charge you, but it's bad because how can a visit to a celiac dr. be covered if you supposedly don't have celiac disease in the first place? And if you ever needed medical treatment due to "celiac" they might not pay it since you supposedly don't have this in the first place. Your decision, though, just showing you the positives and negatives. ;)

  5. I have no clue what they taste like (for good reason :lol: ) but my dad tried Bard's when we went to Risotteria just to compare...and said it tasted exactly like regular beer. Of course, he hardly ever drinks, so I don't know if he's the best judge of it, but who knows.... The consensus on other boards is that of the two gluten-free beers: the Ramapo Valley one and Bard's, Bard's is definitely the best.

  6. Anyone can get celiac disease. Though it's generally thought to be primarily in Europeans, the highest rate of celiac is actually in certain areas of Africa. Asians are not immune from it.

    There will eventually be something for celiacs, but no time soon. Dr. Green is the undisputed celiac expert and has been researching for many years on a $500,000 annual budget...there are currently many different ways they're trying to find that could help celiacs cope with celiac disease. They're hoping to find ways to better prevent celiac disease or make that "miracle pill" that negates the effect of gluten on the body.

    Don't expect anything too soon; Dr. Green predicts maybe 10 years before a pill to deal with accidental ingestion of gluten, so a cure would be a LONG time in coming about.

    He said he will foucs on immune system related disease first.

    YEAH, celiac is immune related disease.

    He said immune related diseases are the most easy for him to cure among all the diseases.

    Hmm...autoimmune diseases easy....then why are there multiple major celiac centers in the United States, the largest of which with Columbia University that have been unsuccessful? celiac disease will not be cured in one year...

    Perhaps a cynical approach to all this, but I've gotten excited before in vain.

  7. Good ideas...I use the search feature all the time, but I think most people don't even remember that it's there, since it isn't really advertised, like you said. I found out about it only by being curious when I arrived and basically clicking everything, lol :lol: .

    I would have posted some links and stuff, but exams are looming <_<

  8. Two ways. First, if you type in Open Original Shared Link. (and then the webpage) it will automatically become a link...or you can click on the address of a page, go to edit, then copy, and then paste it into the post. The other option is to click the "http://" button, then paste the address of the webpage and give it a name (i.e. website on celiac and related disorders)

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