celiac3270

Oops...I guess I posted a bit late! I didn't see the 8th page

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The above is the website for Kinnikinnick...they sell breads and other gluten-free products online.

I think it's NBC May 10th at 7:00 A.M.

Roo

Wow...making progress

Okay. First, here's a link to where you can get safe and forbidden ingredient lists. Although the forbidden grains are only rye, barley, and wheat, they are many derivitives you need to be careful of. And, if you scroll to the bottom of the forbidden list, they give you a list of questionable ingredients. Gluten can be hidden under such ingredients as natural flavors, artificial flavors, caramel color, etc. Now, calling all the companies then proves to be a daunting task. There are a few options, though, to minimize this. First, the companies below clearly list gluten on the label. So if there's wheat in natural flavors, they would write: Natural flavors (wheat) or natural flavors from wheat or something of the sort that doesn't hide any gluten on the label.

Aunt Nelly's

Balance

Baskin Robbins

Ben & Jerry

Betty Crocker

Blue Bunny

Breyers

Campbells

Cascadian Farms

Celestial Seasonings

Country Crock

Edy's

General Mills

Good Humor

Green Giant

Haagen Daz

Hellman's

Hershey

Hormel

Hungry Jack

Jiffy

Knorr

Kozy Shack

Kraft

Libby's

Lipton

Martha White

McCormick

Nabisco

Nestle

Old El Paso

Ortega

Pillsbury

Popsicle

Post

Progresso

Russell Stover

Seneca Foods

Smucker

Stokely's

Sunny Delight

T Marzetti

Tyson

Unilever

Wishbone

Yoplait

Zatarain's

Delphi Forums is also available. Go to Open Original Shared Link ...then go to health and wellness (on the left) and then the first one should be on celiac disease. Registration is free and I'd recommend it for the terrific product lists they have. If you don't want to register, or just want the list faster, I can e-mail it to you. They just came out with a new one a few days ago that I posed about under food products. It's about 79 pages long and also shows when it was confirmed gluten-free (so you know if it's been so long that you should check again)...and often gives phone numbers. There's also another list on the internet, but it will have some mistakes--the list at Delphi shouldn't have many, if any.

Open Original Shared Link

Open Original Shared Link

So, e-mail me if you want that list, and tell me if you would like the one big document of 79 pages, or the folder of small lists (i.e. one for snacks, one for medication, etc.) I'd recommend the big list which has it all compressed into one document with the same organization, but it's up to you.

Welcome!

Delphi Forums put out their product list just recently. For those who are members, check it out--you can download the 60 page sort of master list or download a zip with individual product lists (like, medications, snacks, dairy, condiments, vitamins, desserts, etc.).

For those who aren't members, but want the list, I have both downloaded, so just e-mail or pm me with your e-mail address and whether you want the individual lists, one list, or both.

These lists are much better than the Sholland because they're updated more frequently.

Celiac News from the past few days

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What is an elephant ear?

Yeah, lol. Please enlighten me

Yes--I wouldn't want to put my trust in someone who doesn't know too much about celiac disease unless I had to.

I've had those types of celiac disease nightmares.....one about eating in a dark, dreary restaurant I had never been to. They told me a chocolate cake was gluten-free and, knowing it wasn't, I ate it--I couldn't stop myself. Then I got scared and wondered if I should try to throw it up or not.

LOL Karen about the bathroom...and imsohungry--both are really good--I like the one about gas prices

Yea...all these comments are with the presumption that you live in the US

At least it's gluten-free ...and maybe just try going to another doctor for it if your current one isn't willing to look for what might be causing these symptoms.

You might be a member of the gluten free forum if you want celiac3270 and Kaiti to run for president of the U.S.A.

L.

Awww, thank you! I'm 21 years to young, though.

celiac3270/Kaiti 2028... ha...no discprepancy over what party, anyway

Moving on, did you get that from Delphi or elsewhere? If you found it on a different website, then I'll see when Delphi confirmed it if they did.....you know

Sorry about that, Karen.....sounds painful Hey, speaking of which, I couldn't find a good emoction for pain.....we should get a smilie on pain--with how often we go through it lol.....

celiac3270- I'm 5'3....so weight wise I'm in the normal range 

Oh, okay, thanks. Sorry if it sounded nosy or something--it just sort of gives meaning to a weight...

I'm now 5'4", 97 pounds due to a multi-inch, double-digit pound gain since Feb. of this year.

My Dr. is also amazing--he's in the Celiac Disease Program at Columbia...highly recommended, but I'm trying to keep this brief, since I'm postin gin a central california topic and he's on the other side of the states

Kraft clearly lists gluten. And their marshmallows are gluten-free. Not all are, however.

Dark Choc. Milky Way is gluten-free. You will have to eat one of those next time!

LOL...I'm eating one now

Kaiti, how tall are you?

Regular Glide floss is gluten-free.

Ha! I'd recommend the Chebe mix...it's the best I've tried so far and the floury stuff is already pre-made so you don't need to worry about finding your rice flour and potato starch and xanthan gum

I was incredibly lightweight as a child, and weighed only 65 pounds in the sixth grade, and it took another ten years or so for my weight to double. It wasn't until I learned more about celiac disease and started to try the gluten-free diet that I began to put on serious weight.

Ed

Hey, that's what I weighed in 6th grade! At diagnosis in 7th grade I was at 70...barely. Since then I've gained about 27 pounds.....

What a bunch of masochists we have in this forum. What torture, watching someone make some delicious food that 9 times out of 10, you can't have!!!! 

Karen

LOL, Karen ... but you still get the excitement from watching it...and the best part is, those who are watching the show with you can't eat the food you're viewing, since it's on TV and not in a restaurant or something...

Note: I do not recommend subjecting yourself to this if you are new to the diet or still in the mourning phase.

Updated April 26.

You might be celiac if...

1. The centerpiece on your dining room table is a bread machine.

2. Your bread looks like a moon rock and tastes like dried out Play Doh.

3. Your bread weighs more than any moon rock could possibly weigh.

4. The only way you will eat your bread is toasted.

5. You've paid over $5 for a loaf of bread.

6. You make your own pizza

7. You visit a health food store at least twice a week.

8. You buy most of your food on the Internet.

9. One of your primary goals in life is to create "Fake Oreo Cookies" (and/or Cheerios)

10. There are Garage Sale stickers on all your kitchen food containers.

11. You have argued about and read articles about distilled vinegar and oats.

12. You've disinherited loved ones for putting their knife in your mayo.

13. You've ever been caught licking a discarded Twinkie wrapper.

14. At Christmas, visions of guar gum dance in your head.

15. You are a strictly brand name shopper

16. You've ever had to give a doctor a crash course in Celiac 101.

17. You weep at picnics, parties, receptions and fast food joints.

18. You weep at breakfast, lunch, and dinner.

19. You've ever "brown bagged it" to an elegant dinner party.

20. You have written "contaminated" on jars of peanut butter.

21. You have become friends with the customer service representatives at every company.

22. The customer service representatives at every company recognize your voice.

23. You know the difference between an allergy and an intolerance...and you care.

24. You have two of everything in your kitchen (pots, pans, wooden spoons, etc.).

25. You are afraid of spices and in restaurants, ask for your food "naked."

26. You are afraid of and have nightmares about bagels, pizza, and cake.

27. You make many phone calls from the supermarket.

28. You know what disodium phosphate, tartaric acid, and quinoa are...and care.

29. You know who Danna Korn, Peter Green, and Anne Lee are.

30. You bring many, many lists with you to the supermarket.

31. The first thing you do, upon reaching an unfamiliar location, is pinpoint the location of the nearest bathroom.

32. You have ever tried to explain to a waiter that "it is necessary to use clean pans for you food" and he stares back at you in disbelief.

33. You ordered a salad with no croutons and the entire time its being made you wish you could go back to the kitchen and watch them prepapre it but were afraid to ask.

34. You have taken a poop at all of your friends and relatives houses, even if you just met them...

35. You have explained to people the difference/similarities between Modified Food Starch and Modified Corn Starch at least 50 times (or you know what disodium phosphate is -- celiac3270)

36. You ask Asian restaurants if they have baked or mashed potatoes

37. You ask every restaurant if they have baked/mashed potatoes

38. You've kissed someone who just drank beer and wonder if you will get sick

39. You've kissed someone who just drank a beer and you really wanted their beer instead of your vodka/tonic, wine, spritzer, ......

40. You've responded to someone's post on a website about bowel problems and were brutally honest about your own "issues with bowels"

41. You read this post and laughed because you've "been there"

42. People think you're on the Atkins diet

43. You've asked for a bunless burger...and been looked at as if you have three heads.

44. You've asked about the ingredients of shampoo

45. You post on this board...that's not funny, though

46. You've washed your telephone after your child/spouse has answered it while eating.

47. You've checked all cups in a coffee shop for crumb residue.

48. You can say Kinnikinnick 10 times fast without making a mistake

49. With just one quick whiff, you can pinpoint the brand name and fragrance of every air freshener on the market!

50. You have had to leave the room because someone else was eating Pizza Hut's breadsticks and they smelled TOOOOOOO good!

51. Someone else complains of IBS, and you tell them to quit eating gluten!

52. Or you know someone that was dx with diverticulitis and you tell them to stop eating gluten!!!

53. You don't know what a "normal" bowel movement is.

54. You thought of (or started) a topic called "you might be a celiac if...."

55. Eating out is a "death sentence" not an enjoyable event!

56. All you eat at the church pot luck dinner is jello

57. Your tears compete with your drool when you pass a Krispy Kreme!!!

58. Carry some type of medication with 24/7 (ie Immodium)

59. At least once a day smile and say, "Sorry, I can't have that"

60. Have been lectured on your crazy dieting and told to just forget about your weight

61. Have survived for some period of time solely on rice or peanut butter

62. Physically flinch at the feel of bread or similar product

63. Feel nauseous at the sight of some gluten filled food

64. Have mastered the art of passing gas in public

65. You read this list to your SO (who doesn't have celiac) and they laughed right along with you.

66. You have ever thought you might explode from holding in a fart too long while in public

67. You have ever had nightmares about being trapped in the bread aisle in the grocery store

68. You have ever had a meltdown from actually BEING trapped in the bread aisle in the grocery store.

69. You call a dream about eating pizza and chocolate cake a NIGHTMARE!!

70. You read a topic called Cheating and you just KNOW it's not about her husband and her best friend!!

71. Your answer to this joke: "Why did the lion spit out the clown?" is something like... "Because the lion had celiac and as his fangs began to clench down he saw out of the corner of his eye that the clown's hand was holding a slice of pizza ?" When the real answer is: "Because the clown tasted funny!"

72. You pay $1.59 for a 12 oz bottle of rootbeer!

73. You

A bagel with cream cheese.

Nope, I don't go to any of those... I live in New York City, lol . Just got the list off this site...

Oh! Oops, you mean support groups in general ...I haven't. I like these online ones and most of them aren't in Manhattan--they're in some other borough, often Long Island. I thought about it in the beginning, but found this board to be a more valuable resource