celiac3270

Don't eat anything w/ wheat in the name ....except buckwheat

1.) A reaction to even the SMELL of bagels??

The other day I stopped in to Einstein Bros to pick up some bagels for my husband. While in line I watched as people carried their trays of sandwiches, panini, and bagels back to their tables to eat. I began feeling nauseated. By the time I got through the line and paid for my half-dozen, I thought I was going to throw up. I made it out to the car, almost in tears. After that it was several hours more before the nausea subsided and I could eat anything.

Inhalation -- it affects some people and not others...it probably affect you...you inhaled the flour or something.

2.) What can I expect at the start of going gluten-free?

Symptoms don't go away immediately...and sometimes take a long time...I have been on the diet for 9 months and still get sick.....your symptoms might vanish instantaneously or might stick around for awhile...it depends on the person and often, how long the celiac has been untreated.

4.) At what age do the effects of eating gluten begin to do permanent damage?

There's no age, because if you develop celiac at age 80 and find it a month later, it won't have done much damage. If you find it at 40 and have had it since a child, it will have caused a lot more damage....i don't know about the years exactly.

as for #5....just experiment...try a month, then reintroduce a tiny bit, see how your system reacts, and act accordingly.

I eat just the sauce packet (w/ rice noodles of course) all the time!! Richard, I had actually been talking to my mom a few days ago and we were saying "It would be great if Kraft would sell the chesse packets alone." My non-celiac younger brother usually ends up eating the noodles...I wonder if the company would let you order directly from them?...in great bulk? I've never seen it alone in any stores in NYC...or the surrounding cities...or states. I'll have to e-mail them about it or something. Thanks.

If it's chipped and old, definitely replace. When I got a new pot for my stuff, it was teflon, which didn't matter since only I used it. However, I recently started finding pieces of teflon in my meal--yuck!--it peels very easily and if it hadn't been a dedicated pot, I could've been contaminated. Just buy a cheap pot...preferably not telfon ...for dedicated cooking.

I wouldn't use a Medalert tag at all. If you lose consciousness and are rushed to a hospital, what if they needed to use a gluten-containing medicine to save your life? It's better to have abdominal pain...and be alive to have it, then to be dead because they didn't use medicine on you, fearing a reaction.

celiac3270--hehe--i didnt mean they arent all gluten-free, i just meant to be careful of the ones with the crumbs to stir into them--i personelly have never liked yogurt and i only eat it now because i know it is good for my tummy, BUT i do love columbo yogurt and it is made by the same company as yoplait and is so much better--of course, it is very hard to find here in my part of michigan--but on long island--it's in most of the grocery stores and yummmmmmmmmmm deb

I know...the yogurt part is gluten-free, just not the crumbs.......

I eat yogurt mostly for my stomach, too......it tastes pretty good, but it's mostly for health reasons, also

Hi...

Just adding my story to the mix.......

I'm 13...for those who didn't know and so my family trades off in terms of the holidays between spending time with my mother's parents or my father's parents. My mom's parents are REALLY accomodating--whenever they come into the city to visit us, they're always bringing something gluten-free ....mainstream products or special gluten-free products that they get at Trader Joe's.........really nice and sympathetic about celiac. To make it easier, they always come into the city for Thanksgiving or Christmas and the meal is usually mostly gluten-free, but since it's in my own house, I don't need to worry about contamination and I know what I can and can't eat. In fact, they're so nice that when my family celebrated my grandpa's b-day here, he actually said that he didn't want anything I couldn't eat -- which was when my mom first tried a gluten-free cake and we had ice cream......haagen-dazs I think (gluten-free).

On the other hand.......................

My dad's parents are......shall we say.....not quite as sensitive about it....they once sent an empty candy wrapper in the mail with a note that said something like "I tried this chocolate and it was yummy! Anyway, my parents asked if they could drive in from NJ (the way my mom's parents do from CT) for Thanksgiving. We usually go down to NJ along with the rest of my dad's side of the family and go to some restaurant for thanksgiving dinner......well, they said that they wanted us to come down to NJ so that we'd have to spend the night and they'd have us longer.............and they sent us the menu of the restaurant, even though they knew from a little research that I couldn't eat anything on it. So...when we go down there for Thanksgiving, they said, we would heat something up for me, bring it to the restaurant, then take the plate somewhere and dump my food onto it---dunno if I'm being overly sensitive, but I feel like a social outcast when I have to do that. This summer, we went to NJ for a family reunion and they had had burgers one night, we arrived the next day, and they had pizza for dinner. I would've been able to have a burger, cooked separately if they put anything special in the other burgers, and looked normal....but when everyone was eating pizza, the food I had missed most, and looking at me strangely, I felt really self-conscious of it..........and here we go again this year....just an example of someone taking no for an answer. I think the way I described this makes it sound like they're just lonely people or people who can't drive into the city or something, but there's more to it than that.......

...just venting.......

-C

And how GREATFUL I AM to live in a time where we have the internet. I probably never would have gotten a diagnosis if it weren't for the web, and I CERTAINLY would NOT have a clue about what I can and cannot eat! And I would never have met so many wonderful, helpful people as I have here. THANK YOU! What a lonely thing it would be to have to live this way without any support from people who are going through the same thing!

-donna

I know! I completely agree. My mom and I have said that all the time.....where would I be without this board. When I was diagnosed, I was clueless and this is where I learned about celiac disease. I started out thinking that if it didn't say wheat, rye, barley, or oats on a label, it was gluten-free........then I got here and got educated .

The information on the regular celiac.com site is great and the message board is an even better resource . I can't imagine not having the internet; I would either still be eating foods that had gluten, but didn't list it clearly, or I would've had to plod through stacks of books that often repeat each other.......ah, the wonders of technology

I eat Yoplait all the time......all gluten-free as the others mentioned. I like Yoplait the best because you can eat all the flavors and don't need to worry about whether it's the whips or the custard style or whatever. With most other yogurts, you can only eat the plain, which gets boring. Stick with Yoplait!

Definitely vent.

Oh, by the way, celiac and my symptoms get me REALLY emotional, as well. By all means, let it out.

I know that there are MANY with far worse than I have. I'm not going to die of celiac. I'm not going to have abdominal pains, vomiting, low weight, nausea, gas, bloating, diarrhea, and the emotions of these symptoms forever. I agree with you on the point that although there are many with worse, it isn't a competition. After all, I look at it as: there are many who have it worse than me, but there are also many who have never faced any problems at all!

Not sure if this counts --- I didn't used to eat potato chips, but since starting the gluten-free diet in February, I have had probably just as many or more than I had in my entire life prior to the diet. I still liked them before, but I had so many other options and with so much cut out...avoiding lots of sugar and acid in addition to gluten...there just isn't all that much besides potato chips that I can snack on.

I was a VERY picky eater before the diet and I have found that I am far less reluctant to try new mixes and recipes than before...probably because with many of the staple foods in my diet cut out, I need to find new stuff...again, I think I didn't directly answered the question , but just adding my two cents.

-celiac3270

You can't change your name on the board......rather, you would need to register again, which would mean that on your new login, you wouldn't have access to the PMs, address book, personal information, etc. without logging into the other....not sure if what i'm saying makes sense...basically, you need to just register again with a new name, but u can't convert your name and retain all your data.

An alternative, as I just saw Deb mentioned, is to make a signature, where, at the bottom you can say your name or whatever else you'd like to. That way you could retain all your data, not need to re-register, and still let people know your name.

To you and anyone else looking for support groups: Open Original Shared Link

-C

You should definitely replace TEFLON pots and pans. Just plain old steel is the best cause you can really scrub it and it usually doesn't retain the gluten. Teflon is hard to get completely clean and while it's okay to use for a dedicated pot or pan, you definitely should avoid it for shared pots/pans. Stick with steel

I agree...I have visited a couple other celiac forums and none even comes close in my eyes. This one has enough people to provide a steady stream of conversation, but seems small enough for me to feel like I know people.

Thank you, Scott, for creating and maintaining this for us.

I, too, found this forum to be a lifesaver when I was diagnosed and it's so convenient for getting quick answers to my questions.

Happy holidays!

-celiac3270

I have a question that you may find silly. How long is one a newbie? What makes me a newbie? Is it the amount of questions I ask or answer? Also, how do you put a picture on the left, I see some people have little pictures of things there but I don't know how to do it. Also is it possible to spell check before you post? I am also a newbie with computers!

Thank-you

a little newbie!

Hi,

You have a posts number on the left. This number includes all questions you have asked (posts started) or posts you have answered. You are called a "newbie" when you originally come to the board. Once you reach 10 posts, you are a member and 30 posts makes you an advanced member. I just saw that you're at 11 posts, which makes you a member.

There is no spell check feature on this board. If you want spell check, you need to type your post in, for example, a word document or an e-mail, spell check it there, then copy and paste it into a post on this website.

The pictures on the left near your name are avatars. I believe you can have an avatar as early as you want, though I think you need to be an advanced member before you can import your own pictures. In the mean time, you can select from the gallery on the site. You can get an avatar from going to my controls (scroll up a bit to where they show "Logged in as:" and look at the center of the page). Then I think you say "change avatar" and then you look in the "gallery" for one you like and choose it.

As for what makes you a newbie: it's just a feature that sort of divides people into groups...for example, an advanced member has the option to import their own picture......I think you need to be an advanced member to do that.

-celiac3270

I wouldn't eat it if I were you. Good chance of getting glutened.

I used to throw up every night after dinner when I was in first grade. It would build up: I would eat, start to feel sick, throw up, then be fine. It happened nearly every night.

I started getting 12-24 hour bouts with abdominal pains, cramping, and vomiting in fifth grade. I got them consistently throughout fifth and seventh grades, which is when I seriously asked a doctor about this and got diagnosed.

I knew that all V-8 Splash products were gluten-free.....but I didn't know the status of any others.

whose lisa..

Num1HabsFan

And Lisa....if you're eating gluten once a month, then the gluten-free diet is doing very little good for your body, anyway. Eating just the tiniest bit of gluten completely offsets the progress you've made during that month. The only positive thing is that there is less gluten entering your system, but it will still cause the same long-term symptoms: osteoporosis, cancers, etc. so it's not worth it!

I bet it could be contaminated.....I've heard complaints about sickness after cooking gluten-free food using non-gluten-free charcoal or something.....so if something that isn't gluten-free was on the grill before and it wasn't really well cleaned, sure it could happen.

I don't know...I think that with Balance you're supposed to find gluten on the label, so I was going to suggest you just read.......but that labelling bill has a few more years and even so, it won't force companies to list all gluten (will require wheat, etc., but not, for example, malt). I'd call the company or just avoid them for a little while. Anything else new in the diet that could've caused it?

While you're still eating gluten, your symptoms are generally less severe than after you've been on the diet a few months and then get sick again. This is because when your body constantly deals with gluten, it gets....used to it. After your body has been flushed of it, it reacts more violently to the gluten since the protein has once again become a rather foreign substance.

Hi,

This is celiac3270's mother posting...I have been on WW for many years. Congratulations on your weight loss! You may want to consider the Core Plan where you eat vegetables, eggs, lean meats (you probably know the plan) and you can eat as much as you want (until satisfied) and it's fresh and natural. If you are looking for WW frozen foods replacements you may want to look for Amy's frozen foods. You have to read the container because they are not all gluten free. They are very good and most of them are vegetarian (pretty low in points). Good luck to you.

Its also a real pain in the butt to hear people tell me how tiny I am..

I know...I hate that...I already know that I'm thin without being told......I'm making progress, though. I'm almost 14 and I used to be 5' and 65-70 lbs. Now, 8 months later, I've gained 20 pounds, grown 2 inches, and increased 1 1/2 shoe sizes .....I have a little ways to go, but at 85 pounds, I don't look too different anymore. I remember hating when people said that in the past, though.