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celiac3270

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Everything posted by celiac3270

  1. celiac3270
    Lol....the host mispronounced celiac disease. He said it like: [sell-ee-ak]. Then they went to ads, and when they came back, he pronounced it properly . It's nice, though, that we get fifteen minutes of publicity. My mom tried to call in....but I think he only did two callers. One person who was self-diagnosed--a Dave from Alaska, I think, and a...
  2. celiac3270
    I hadn't heard...thank you! If anybody calls and gets on, say hi to everyone on the board!
  3. celiac3270
    There's a lot of debate over wheat starch...here is a section on this site that has many articles on wheat starch and the CODEX standard: https://www.celiac.com/st_main.html?p_catid...-43104031536.6b
  4. celiac3270
    Momof2, I think what your doctor is suggesting is refractory sprue...when the body and the villi do not respond to the gluten-free diet. Before you can determine it is this, though, you need to look at a lot of other possible factors, such as that your daughter might be getting glutened somehow, preventing her villi from healing and making it SEEM like...
  5. celiac3270

    ARCHIVED Weight Gain

    celiac3270 replied to a topic in Related Issues & Disorders

    Yeah...I have weight gain problems, but probably not for the reasons one might expect. I can and have gained weight on the gluten-free diet, but it's difficult for me to gain more in part because I get sick so often (resulting in a 2-5 pound drop) and also, my doctor is telling me to avoid fat! Lol...how do you gain weight without fat? I really crave all...
  6. celiac3270
    I don't drink, cause I'm a young teen..... ...but I think I remember reading that some are gluten-free and some aren't.
  7. celiac3270
    I was rereading your post and I just noticed that you had trouble with your search. When you Open Original Shared Link the message board (not the webpage) use the Open Original Shared Link You can make sure that, for example, you only receive results that have both wheat and starch in them, or you want results that have starch in them, but don't have wheat...
  8. celiac3270

    ARCHIVED Pediatricians

    celiac3270 replied to Ruth's topic in Doctors

    The pediatrician I had been going to was terrific. He thought he had diagnosed me with cyclic vomiting (vomiting from migraines and all that, since migraines run in the family). Regardless, he sent me to a gastro. who, after sonograms, blood tests, x-rays, bone age tests, etc. finally found celiac! He wasn't an expert on celiac, but knew the basic principals...
  9. celiac3270
    McDonalds fries are gluten-free, but you need to make sure that they're cooked in a designated oil...or only with hashbrowns. I don't know if every fastfood joint run by McDonalds runs the same way and I doubt it, so that's something to be careful of. Fat is difficult on the system...my doctor suggested that I limit fats in my diet, as they are hard...
  10. celiac3270

    ARCHIVED Health Insurance

    celiac3270 replied to calico jo's topic in Doctors

    Yes, my family has a plan all together, as well--maybe that's why I, too, haven't been having issues.
  11. celiac3270
    Yep...oats are nearly always contaminated--and since you're ingesting gluten, of course you could have a gluten reaction
  12. celiac3270
    Hmm...from the name, I think that it would be bad , but I can't find it on the celiac.com list...hydrolized wheat starch is on it, however. I think I'd stay away from anything with wheat in the name except buckwheat.
  13. celiac3270

    ARCHIVED Health Insurance

    celiac3270 replied to calico jo's topic in Doctors

    I don't think my parents have had any issues with my celiac and the insurance companies.... Jill, yes, you need to load on gluten for at least a month before a diagnostic endoscopy...maybe longer depending on how long you've been gluten-free....you need time to tear up your intestines.
  14. celiac3270
    Wow, that's terrific! I haven't gone to China and don't plan to in the near future, but that first site has many language--a valuable resource!
  15. celiac3270
    Oh, right! I forgot that they even made stuff beyond juices! ....good to know that they're completely gluten-free
  16. celiac3270
    Remember that whether or not you have symptoms, it will still affect your body just as much to eat the rolls. Symptoms aren't always dependable or predictable--before being diagnosed, I would eat a huge bagel every morning and be fine, but if I ate a slice of pizza, I'd get really sick. The bagel still damaged my intestines just as much, but for some reason...
  17. celiac3270
    I'll be trying them . I've tried two cereals by Envirokids, both of which I've liked more than cereals made by other gluten-free brands. I've tried the gorilla munch or something, which is like corn pops or kix, i think, except that they have some sort of cane sugar on them. Then I tried a frosted cereal of some kind...taste like Frosted Flakes in my...
  18. celiac3270
    That does sound fun! I've tried that mix, but as a spice cake and it's great!...nice and fluffy.
  19. celiac3270
    That's great! You are making headway--that must make you feel good!
  20. celiac3270

    ARCHIVED Traveling

    celiac3270 replied to u396's topic in Gluten-Free Restaurants

    McDonald's gluten-free list--for the USA is here: Open Original Shared Link Many chains have gluten-free menus for us....i don't eat out or travel much so i don't remember many, but if you look around, you're sure to find five or six. I prefer to bring a lot of my own food, cause I'd rather not put my intestinal health in the hands of a stranger...
  21. celiac3270
    Well, it depends on whose opinion you get, but the general consensus is that there is no way to neutralize the effects of gluten on the body at the present time. Yesterday, someone posted about using a pill or something that claims to neutralize gluten. You take it at each meal like a pill for lactose intolerance. I would very highly discourage that you...
  22. celiac3270
    I have not and would not take this product. It sounds as if the manufacturers are claiming to have created the sort of dream drug that many celiacs desire and to my knowledge, has not yet come. Tom's evidence seems pretty strong....I would not be taking that if I were you. The part I put in red and bold doesn't sound too good, either....."other factors...
  23. celiac3270
    I don't really know how to read blood results, nor do I know what this IgA stuff stands for, but if the nurse claims it's simply allergies, what allergies are she referring to? Wheat? I can't offer medical advice on the results, but I'm wondering what allergies she suspects.
  24. celiac3270
    Sure...that sounds very possible and actually, quite likely if she's a symptomatic celiac who has been avoiding gluten for a little while. Often, if a celiac has been off of gluten for a long time, reactions to gluten, even traces, are very harsh. Additionally, the symptoms could appear worse than before since you're not used to seeing them. Anyway, her...
  25. celiac3270
    I haven't had any popcorn since starting the gluten-free diet 10 months and two days ago , but I always had trouble with it before hand--it would get me sick. I don't think it was any gluten, because I could eat a bagel every morning without severe reaction--I think it's just that it's hard to digest.
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