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jacqui

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Everything posted by jacqui

  1. jacqui
    I saw Gary Gray at the Stanford Celiac management clinic. He does all lab work including gene testing day one/first appointment. The clinic was only on Mondays in AM I think. At least he diagnosed and then I went to local docs. I was pleased with him but others weren't. I needed diagnosis because up in Sacramento doctors were and are still oblivious! SHORT...
  2. jacqui
    It may be the massage hitting a certain zone. Before I was diagnosed with celiac I saw an acupuncturist and after his treatment I would be totally wiped. I would fall asleep in car (my husband drove) and then go out cold for a few hours.
  3. jacqui
    Glutino English muffins? Really?? Where do you fnd them? I love everything Glutino but have never seen the muffins. We get Kinickkinik(sp?) and they are a bit greasy to me. Thanks!
  4. jacqui
    I agree with you. My blood sugar is low but my doc's dismiss everything. I get very shakey and irritable when BG is low. Thanks though....
  5. jacqui
    Other gluten-free cereals... Rice Chex is now. This just occurred in the past 2-3 months. Little Einsteins is but we cannot find it anymore anywhere. Fruity Pebbles too
  6. jacqui
    I slept for 5+ months for 20+ hours a day! My husband would wake me for meals and I would fall asleep while eating. I cut back on gluten because I joined Weight Watchers and carbs count as a lot of points. I did not know I had celiac until 4 months later. So when I cut back/very close to elimination of gluten I slowly stayed up more. Eventually my sleeping...
  7. jacqui

    ARCHIVED I Thought I Knew It All

    jacqui replied to daneinter's topic in Doctors

    ditto regarding insomnia. I was dx'd in Dec. 2006 and learned from here too that many C's have insomnia. Very bizaare
  8. jacqui

    ARCHIVED I Thought I Knew It All

    jacqui replied to daneinter's topic in Doctors

    I keep forgetting but I too just recently had 2 lypomas removed from each flank that they were not sure what they were until they were removed and luckily were benign.
  9. jacqui

    ARCHIVED I Thought I Knew It All

    jacqui replied to daneinter's topic in Doctors

    Sorry to hear all this but I am very interested to learn from you b/c I have many of the same symptoms. I was told by my celiac disease GI that I have leaky gut or probably have leaky gut...I can't remember. I also have had new symptoms since all this started ~2 years ago, which are the ones you write of. We are strict gluten-free for ~1 1/2 years. Do...
  10. jacqui
    Hi All!! Thank you very much for your input and your experiences. M was gluten-free for a week and then went to Santa Cruz with friends for 2 1/2 days - even I could not forbid the Boardwalk funnel cake!! But other than that and a small piece of pizza with salad and NO crutons she is back to 100% gluten-free. So far behavior waxes and wanes for...
  11. jacqui
    True, I forgot about implant bleeding. I had PAINFUL implantation, so the ER doc thought it was endo again but nope it was baby #2.
  12. jacqui
    BRAVO!!! A family member that wants to learn and help. You have no idea how great it was to read your note. I know you hate to see him this way but in do time he will improve. At least everyone that I have read about or met all improve sometimes it takes a couple weeks to a couple years but at least their is a light at the end of the tunnel. My in-laws...
  13. jacqui
    Mine was always brown. I have a history of endometriosis and my periods were probably the same as yours. I had a period my 1st pregnancy. The doc told me my due date and I told them but I had my period at this time so shouldn't I be due the following month. They told me some people have periods... Madeline was born 3 days before due date at 8lbs. 6 oz's and...
  14. jacqui

    ARCHIVED Reactions

    jacqui replied to JessieFree's topic in Coping with Celiac Disease

    After I was diagnosed my sis ter kept denying she had celiac b/c she did not have symptoms or so she thought. 10 mos. later she was + for celiac disease, anemia, osteopenia, vit. deficiences... Since gluten-free she is feeling much better and relized she did have symptoms after all but she just thought it was normal ie bloating to looking pregnant after eating...
  15. jacqui
    Hi this did not cut and paste right I don't think, so just e-mail me at home from your email and I will send as an attachment. jacqui5129@comcast.net Welcome! It does get better. I went through I guess like a drug withdrawal. I would dream about cheesy garlic bread and wake up salvitaing. Sorry, I will probably overwhelm you but I have been through...
  16. jacqui
    I hope everything worked out with your son. Is his EKG OK? Good luck and you are in my prayers. You know, come to think of it I would have that too, but never connected it with celiac disease. I was diagnosed 12 years ago with IBS and that is when I had the worse palpitaions and I would forget to how to breath, which would happen out of nowhere. I thought...
  17. jacqui
    Hi Hon Cry all you want. I'll cry too. It has been a week I could use a good bawl!! It finally hit me a couple months ago too. I can now say I am depressed b/c I have never felt this way in my life!! I feel I have no control of my life. I cannot drive so my life runs per my husband and friends schedule, which of course doesn't ever work well with...
  18. jacqui

    ARCHIVED Neuro

    jacqui replied to jacqui's topic in Doctors

    Thanks!! My neighbors son has the same as your son. He is homeschooled now b/c he can't cope with the social aspect of school. Sorry to hear about your son. My symptoms are/were: 1. Numbness tingling of extremities. Left worst than right. * I also used to get numbness starting in my right upper and lower lips that would slowly work its...
  19. jacqui

    ARCHIVED Neuro

    jacqui replied to jacqui's topic in Doctors

    Hey Carla how are ya'? I am going to get tested for Lyme's disease. The lab order is in the computer I just have to get there and do it. My do is away til Aug. something so one of his colleagues ordered it no questions asked. Well, Debra my doc's asst. probably filled him in she knows me quite well. We are all thinking lymes, but I have heard of...
  20. jacqui

    ARCHIVED Neuro

    jacqui posted a topic in Doctors

    Hi, I am approaching my 2 year mark of debilitating neuro symptoms that no neuro will say it is related to celiac disease. I have been to 5 (2 of them at UCSF and one at Stanford!!) and all my husband and I can decipher is that they think I have serious depression (one actually said PTSD - I am a normal person Mom, wife and was working in a hospital -...
  21. jacqui

    ARCHIVED University Celiac Clinics

    jacqui replied to JamiD's topic in Doctors

    Hi I saw Dr. Gray and Dr. Pyle. My experience was positive, but I am also in the medical field so I was hoping he would use me as a subject. No word yet though... Although he did talk about me without names at one of his guest talks in Sac. Well, a friend quoted him and it was exactly what he had said to me. I felt it was a very good experience especially...
  22. jacqui
    Hi I have not been here in a while so hello everyone! My question/concern is that my daughter Madeline tested negative for labs and biopsy but has both celiac genes DQ 2 and DQ 8. She also has many symptoms: constipated since birth - which led to mega colon - inability to control BM's. This has improved actually now that I am writing this since...
  23. jacqui

    ARCHIVED Im New!

    jacqui replied to a topic in Coping with Celiac Disease

    Hi Chloe, Welcome! celiac disease is not as bad as it seems, really. It will get easier. My family and I had to go gluten free (gluten-free) April 2006. At first I would dream about cheesy buttery garlic bread and wake up licking my lips, but that only happened 2x. I aslo found out just after finally finding an authentic NY pizza place in Sacramento...
  24. jacqui
    Sorry I skimmed your post you do everything we do too. And I say no need to bring enough for the gang b/c afterall it is a party, right? If his friends know about his celiac disease then they will not question or hopefully they won't - kids are kids though.
  25. jacqui
    Hi, Our 6 1/2 year old diagnosed celiac last summer brings a gluten free pizza if it is a pizza party and we have slices of cake in the freezer that we defrost for her to take with her. She has never complained or said anything about other kids saying anything. Ok, she just told me that when they see her flourless chocolate cake they wish they had some....
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