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Cam's Mom

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Cam's Mom

  1. Cam's Mom

    had to get blood in his life. My hope from r experience is that u dont listen 2 ppl online, again thy get ther info from the same drs we did,or JUST THER OPINION bt that u tak ur son 2 Immunologist who can giv u the corect info,levels of Iga, and diagnosis. rembr all drs test diff 4 diff desises. hope this helps. sucks u can only write so much in 1mail. dnt no how 2 email u priv in 1 mail. sry.

  2. Cam's Mom

    mail#4 let me giv u exmpl in my fam. my nephew hd sm problms.(stomach)went 2 doc.they found low iga (way they test) lukin 4 celiac desise.He had Low Iga levls, said oh is not celiac bt nt cncrnd with low Iga. dont worry its nthing.my mom insistd for specialist.went to Immunoligst, nephew had levels of "7". has 2 wear medical allert braclet,ALL blood has to B washed. they wud hav kild hi...

  3. Cam's Mom

    my sistr is a level 7, any blood she gets has 2B washed clean of all Iga and packd with red blood cells B4 recving. also wen iga is low u need 2B tested for all autoimmunes.igg,ige,igm ect..not tryin 2 scare u but ur sons levels are really low.u shud hav ben immed. ref 2 imunoligst. they specialize in rare an blood disorders, autoimmune.all doctrs try 2 comfort us an say oh its celiac or smthing.

  4. Cam's Mom

    all say thy hav the corect info an made us feel comfortable. but wen we finally found Immunologist said most all dr.s "no of" Iga an giv info that is nt corect. Its lik going 2 a brain surgeon 2hav a baby.lol. wen u hav vry low Iga, if u evr needed blood, 2things cud hapn.U cud get the blood an B fine or u cud die within hrs. B/c ur introducing levls of iga in2 ur blood systm u dont hav.

  5. Cam's Mom

    K..my name is wendy. i was concernd about ur sons Iga level.several ppl in my fam. have vry low Iga. which is vry rare 2 hav mor than one in fam. wen low Iga is found all immediate fam shud b tested.. A "7" means "ZERO", iga non existant. U HAV TO B SEEN ONLY BY an "IMMUNOLOGIST". NO OTHR DR. we hav seen pediatricians, dr.s who specialize in celiac, allergist, mny othr d...

  6. Cam's Mom

    im gonna test this and see if this email goes thru. tried to email u b4 and wouldnt let me...lets see..i have something really extreamly impt to comment bout yr post of ur sons extremely low Iga...

  7. Cam's Mom
    Emeril Lagasse has a show on the Plaet Green Network called Emeril Green. He has done several shows with full gluten-free menus. This was from one of them. I have tried every pre-made pizza crust including the famous "still riding" and Dr. Scharr's. And for homemade we usually use the NY foldable crust recipe from this site or the Chebe recipe. But This one...
  8. Cam's Mom
    I am always arguing with my 8 year old twins about this. They are like whaaaaaaat's for breakfast??? There's nothing we can have. I'm like oh booo-hooo cry me a river . . . what CAN'T you have? They are lucky not to have any other intolerances other than gluten (although dd is also a type1 diabetic). Here are the menu choices at Chez Short Order: Any...
  9. Cam's Mom
    I think I have posted my tortilla recipe before, but here it is again. These are by far the best tortillas I have ever had - gluten-free or not!! They take a little work and patience, but if you've got a little over an hour to spend you should be able to get about 16 large tortillas out of the recipe. They freeze well. I usually put 8 in a gallon zip lock...
  10. Cam's Mom
    My son is now 8 1/2 years old and when he hits the third percentile on the weight chart we cheer - it's the heighest he's ever gotten. He's often been off the bottom of the chart. He's so skinny that we lose him when he stands sideways. We've tried absolutely everything to bulk this kid up (and he does not have nearly the restrictions that your daughter has...
  11. Cam's Mom
    Hi! I posted a recipe about a week ago for home made ravioli. The recipe is in 2 parts, the first being (egg) pasta and the second being the filling. The pasta certainly works on its own. If you dig back about a week on this forum you should find it. If not, feel free to PM me and I will send it to you. barb
  12. Cam's Mom
    Hi! I am not a huge fan of protein shakes but finally found one that I like - Whey Factors by Natural Factors (from Canada). I am trying to get my protien intake up and so am forcing myself to get two of these shakes in per day. My stomach is not pleased (and neither is my family for that matter). The label says that the product contains "no wheat" but I...
  13. Cam's Mom
    Hi everyone and happy holiday season! I have not posted in a very long time, but wanted to share this recipe with as many people as possible. If you are into being in the kitchen for a while coming up with a masterpiece - - you will love these!! If you try them, let me know how you like 'em and if you have any questions. I use a ravioli press that looks...
  14. Cam's Mom
    You could certainly use breadstick mix instead of the pizza mix. The only one I would adjust for is if you decide to use the "plain" Chebe that comes in the red bag. That one contains dry milk and the others do not. So I guess if I were going to use that one, I'd use water instead of milk in the final product - but I have not tried it. I have however used...
  15. Cam's Mom
    Happy New Year All!! I think last year was the first time I ever actually accomplished my NY resolutions!! I lost 50 lbs. and have a great exercise routine and went gluten-free. And for the encore: 1. I am training to compete in my first triathlon in the summer of '08 2. Try to learn to travel with 2 gluten-free kids barb
  16. Cam's Mom
    Not to hijack here but - i bought some cany canes that were "all natural" blah, blah, gluten free, yada, yada at whole foods around the holidays thinking they would be safer . . . sure enough, I get them home and there is indeed fine print that says made in china! amazing. b.
  17. Cam's Mom
    Hi! I am not at all sure I can answer your question. But I certainly know where you're coming from. My son's behavior had been getting progressively worse over the course of the last 3 years. From age 4 to now 7. Parents of "typical" kids would just not believe me when I would say that this otherwise sweet, innocent, wonderful child would throw fits that...
  18. Cam's Mom
    Hi! I have posted the tortilla recipe in a couple of places but recently had an accidental change when making them that resulted in the absolute final edition of the ultimate tortilla. I really do actually like these better than the wheat flour counterpart. Here it is and I hope you give it a try: 1 package pizza crust Chebe 1 package bread stick Chebe...
  19. Cam's Mom
    Hi! I have not ever heard anything about making age adjustments. In fact I was just at my son's pediatrician discussing this very issue today. My son's total IGA is 34 (quite low) with normal starting at like 81. We had a long conversation about what it means to be IGA deficient and how that number effects tTg (as in renders it a useless indicator of Celiac...
  20. Cam's Mom
    Hi! I second the dang tocopherol acetate (vit. e). That's what got us. There are many sources for vit. e it can be from soy, coconut, etc. but can also be from wheat. We had a bottle of "pure" vit. e. oil. That's all it said on the label and we were using it to soothe our daughter's very sore chapped upper lip and nose when she had colds and during the...
  21. Cam's Mom
    Just wanted to drop a line to say that I think we got our answer. . . He got glutened last night he had a stomach ache shortly after the offending food. Then he had several bouts of D today but most telling - the nasty temper is back with a vengence. We haven't seen it for the three weeks that he's been gluten-free but he is beside himself with...
  22. Cam's Mom
    I think I can help clear up the original question: 8 ounces is 1 fluid cup. So you can use that measurement when measuring liquid but solids are a completely different matter because they have different densities. For example, 1 C. of tapioca flour weighs a very different amount than 1 C. of brown rice flour. Just like a cup of lead marbles will weigh significantly...
  23. Cam's Mom
    i love flax!! i put it in everything - cookies, breads, tortillas, pancakes, yogurt. I'll try to sneak it into anything. My kids are actually worried when they don't see little flecks in their food . It is excellent on omega 3 and good fiber. It can be used as both an egg and an oil sub in baking and makes baked goods have a wonderful rich flavor....
  24. Cam's Mom
    Hi Carla, I think the answer to your question is yes (I'm so confused!!). The test which was 36 and categorized as "low" was for Immunoglobulin IGA (that's total, right?). The normal range was 70-312. So, would that make him IGA deficient thereby rendering the tTg test somewhat useless and calling into question the high IGG? I know, I should just not...
  25. Cam's Mom
    Okay, one more question to ye of great minds (mine hurts right now!): I was just reading on-line that a person with a total IGA deficiency could present with a false negative due to the deficiency resulting in an inability to produce anti-tTg. It went on to state that in that case, IGG is a better indicator for diagnosis. So, then I extrapalate that...
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