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Cam's Mom

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Cam's Mom

  1. Cam's Mom
    Hi! My daughter's favorite food in life is steamed veggie dumplings. I have recreated these for her by starting with the following pasta recipe and then filling with all sorts of stuff: cabbage, spinach, carrots, mushrooms, tofu, soy sauce(gluten-free of course) etc. Anyway, the point is that the pasta seems to hold up quite well to an abundance of filling...
  2. Cam's Mom
    Hi! Maybe I shouldn't step into this hornets nest...but here I go. I think maybe, just maybe it is not so much about the food as it is the lack of support that one gets from ones family (sometimes). My experience is that my daughter has celiac and type 1 diabetes - my family loves her to death but when all 16 of us with extended generations get together...
  3. Cam's Mom
    my son is also very picky and more so at breakfast. He is so skinny that I am afraid he will disintegrate into a pile of dust before lunch. These are our most recent ideas: cheese & crackers envirokids rice bars rice pudding yoplait whipped yogurt bannana choc. chop muffins (he can usually get that down!) trail mix with dried fruit lots of nuts...
  4. Cam's Mom
    Kris - That is so funny, Stratton wears his underwear backwards and his shoes on the wrong feet everday (although you'd think he's got a 50/50 chance of getting it right?) but if I come up behind him and touch him or kiss him gently on the cheek he goes bizerk. Hard to understand --- I keep thinking if he'd just turn his darn underwear around he'd have...
  5. Cam's Mom
    Hi Kristen & Melissa - One small correction, Butternuts, TJ's and Whole Foods are all in Hadley, not Amherst. If you travel a little further up rte. 9 to Amherst, you will find a wonderful Chinese restaurant call Panda East. They are well educated and will happily cook for you and bring you gluten free soy sauce and the manager will visit your table...
  6. Cam's Mom
    Hi Sandy - I just posted on the aspeger support thread about my son . . . looks like we have a lot in common. Don't even get me started about the support one receives (or NOT) from ones mother - grrrr. On friday my daughter's teacher gave her a brownie (gluten-free thank goodness) for some reason, shortly before lunch and gave her no insulin (and didn...
  7. Cam's Mom
    Hi! I have been reading through this thread over the past few days and have not summoned up the energy to participate but have found the conversation so fascinating and enlightenting. My son was diagnosed/labeled as a "spectrum kid" with sensory integration disfunction when he was in preschool. We then got him right into OT and PT and it made a huge differnece...
  8. Cam's Mom
    Hi Sandy! I am so sorry that you and your daughter are going through this! I totally understand....when it comes to my kids I am the most impatient mama bear! It is just that you want to do absolutely everthing you can for your kids and when you don't have the answers we don't know where to start to help them. You are a great mom and hang in there. The amazing...
  9. Cam's Mom
    Hi! Larry Mac - we count carbs by reading the labels of all the ingredients we're using (in our case just the carbs obviously) then figuring out the right ratio for each then adding them all together and dividing by the number of slices or rolls the batch makes. Obviously not a very exact science but since my daughter is a diabetic and we have to count...
  10. Cam's Mom
    Hi! The rather vague definition regarding a disability in the ADA is that it is "a physical or mental impairment that limits a major life function". it goes on to state that it can include ailments of a gastrointestinal nature but you would have the responsibility to prove that it "limits a major life function" such as feeding yourself or caring for yourself...
  11. Cam's Mom
    Hi! Sorry this is kind of a long post but I am includng information sent to me by my brother who is a Pharmacologist, Ph.D. who owns a consulting company in the NY area that helps pharmaceutical companies bring new products to market (amongst other things). He looked into the issue of celiac and diabetes since my daughter (his neice) was recently diagnosed...
  12. Cam's Mom
    Hi! I have posted previously with my great frustration about my daughter's tTg remaining high 7 months after diagnosis. Thanks so much for all of the helpful advice!! We've now gotten rid of all of the chapstick with vit. E and even switched the dog and cat food to gluten free, made the house completely gluten free and have moved her off of the lunch table...
  13. Cam's Mom
    Hi! My daughter has both celiac disease and JD. She is 6 years old and was diagnosed almost a year ago. She complained for quite a while that her tummy hurt, even after going gluten free. My understanding is that it takes quite a while for the pain to go away (i.e. intestines to heal) after being truly, completely gluten free. When her blood sugar is...
  14. Cam's Mom
    Hi! We get the ones at Whole Foods and the brand is their house brand - "365 brand" their allergen statement is on the label that says "good manufacturing practices used to segregate ingrediants in a facility that also processes . . ." We have eaten them without incident, but then again it is extremely hard to tell when my daughter has been glutened....
  15. Cam's Mom
    I just made a batch that I can honestly say are the best choc. chippers I have ever made (gluten free or not!). I have used Bette Hagman's featherlight recipe before and my cookies just melted all over the pan and were a disaster. Today I dug that recipe out again and added 1/4 C. Flax meal to it and viola! Heaven!!! If you do not have the Bette Hagman...
  16. Cam's Mom
    Hi! Maybe you've all figured this out way ahead of me but I am still sort of new at this so these things still excite me! I had a lot of left over bread from experimenting with the flax bread recipe that has been floating around. So I decided to make bread crumbs as follows: Cut loaf into slices places sliced bread on cookie sheet spray with butter...
  17. Cam's Mom
    Hi - I made excellent rolls/buns with this recipe. I used an ice cream scoop with a spring release so that I could get a good shape and consistant size. Makes a great sandwich!!! Enjoy.
  18. Cam's Mom

    ARCHIVED Twins

    Cam's Mom replied to Kassie's topic in Related Issues & Disorders

    Hi! My children are fraternal twins. My daughter has celiac disease and type 1 diabetes and my son has neither. We have had him genetically tested for Celiac and he does not have the gene(s) at all. Go figure! b.
  19. Cam's Mom
    Great question!! My poor daughter wears an insulin pump and the infusion set is held in place for three days with a sticky bandage. It drives her crazy. We had be using an alchohol prep pad before inserting the site but that made it way worse. So we stopped using the alchohol but the bandage still itches. We are supposed to put another tegederm bandage over...
  20. Cam's Mom
    Wow - Rez, are you saying that there is info that type 1 diabetes can raise tTG and flatten villi? Is that without the presence of Celiac Disease? Or am I misunderstanding. Can you point me in the direction of that research? My daughter has type 1 diabetes and her tTG is quite high and her marsh rating for villi was 3, so the biopsy did show damage. But...
  21. Cam's Mom
    Hi! I am reading along with a lot of interest. I posted a very similar post about a month ago. My daughter went in for her 6 month follow up (actually at 7 mos.) after diagnosis and her ttg was 73 (they said under 20 is normal). This was down from her original 181 but no where near acceptable. The knowlegable ped. gi read us the riot act about how we must...
  22. Cam's Mom
    I just pulled a loaf out of the oven (my 3rd) and it got so big I think it was going to burst right out of the oven! It is now falling before my eyes. This is the first time that I made it with water instead of milk and the first time that I am having the high rise/flop problem. Anyone else notice this difference between milk vs. water or do you think it...
  23. Cam's Mom
    I think this is what they call a "teaser" now we're all hooked and I for one would buy any cook book of yours. Thanks again!
  24. Cam's Mom
    I think this has been modified enough to be called mine! It is soooo good we make it every week and often bake it in muffin tins for a really yummy breakfast treat. Here it is: 1/2c brown rice flour 1/2c white rice flour 1/2c tapioca flour 1/4c potato starch flour 2/3c sugar 2t baking powder 2t baking soda 1t xanthum gum 1/4t salt 1/3c shortening...
  25. Cam's Mom
    First of all I must say, "Lorka" is a godess amongst celiacs!!! This bread is awesome! I have made it 3 times in the last week because it goes so fast as the novelty of having bread again has not worn off. The last time I made it I made it into rolls that came out really well. One tip for making a good shaped consistant sized roll is to use a ice cream scoop...
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