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lovegrov

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Latest Celiac Disease News & Research:

Everything posted by lovegrov

  1. lovegrov
    If your doctor wants to do the endoscopy to check for other things as well that would be between you and him. A warning that the small bowel biopsy isn't always accurate either. Doctors take too few samples or the samples they do take miss the damage or the lab can even misread what they get. richard
  2. lovegrov
    Actually, a DH diagnosis might be less expensive, easier and less invasive. According to all the celiac experts, if you have DH you have or will have celiac. The recent NIH consensus conference on celiac even wrote into its report that a biopsy is not necessary for anybody diagnosed with DH because that in itself is a diagnosis of celiac. And the prescription...
  3. lovegrov
    If you're avoding distilled vinegar at all costs then you're avoiding a lot of good things needlessly. First, every scientist who has weighed in says the distilling makes the product gluten-free even if it comes from wheat. All the major dietician asscoiations agre and so do the major celiac organizations (although CSA sort of qualifies their agreement; but...
  4. lovegrov
    The only vinegars you need to avoid are malt vinegar and some flavored vinegar (for example Heinz makes an apple cider FLAVORED vinegar that isn't gluten-free -- their regular apple cider vinegar is gluten-free). Regular or distilled vinegar is gluten-free because of the distilling process (and because hardly any is ever made from wheat anyway). richard
  5. lovegrov
    I would continue giving him gluten and keep an eye on him watching for symptoms. Then when he gets old enough (I've heard 2 but others have done it earlier), have him tested even with no symtpoms. richard
  6. lovegrov
    I had a lot more headaches when I was eating gluten but not migraines. Some people report relief after going gluten-free and some don't. I can only assume that gluten is the trigger for some but not for others. richard
  7. lovegrov
    I don't know Florida specifically, but most "health food" stores or co-ops carry more specialty gluten-free foods. You can find them in the phone book's yellow pages. Most of the fast food places now have a page on their web site that eiher has a gluten-free list, lists the major allergens in each item, or has complete ingredients for each item. Outback...
  8. lovegrov
    Conagra clearly lists the major allergens, although this does not include barley. Distilled vinegar is safe no matter what the origin. I would probably use this if it doesn't say wheat somewhere but it'sa personal choice. richard
  9. lovegrov
    Are you sure it wasn't glutenous or glutinous rice? If so, that's gluten-free. However, the wasabi snacks I've seen in the past have had gluten. Not wasabi itself, but the snacks with wasabi. richard
  10. lovegrov
    We've been fighting those little moths off and on for two years. You need to clear out and closely examine EVERYTHING in any cabinet. Look not just for moths but their little eggs and also little fine spiderweb type things. Throw out anything that has any of that in it. They can even be in unopened plasitc bag containers. We've found them in crackers (a real...
  11. lovegrov
    Virtually every cut of pork is now "injected" because we've made it so lean we've taken most of the flavor out of it. If there's something like wheat or barlely in there it's supposed to be clearly listed. Are people violating that law? I can't tell you. richard
  12. lovegrov
    I saw the same delhpi post but if you go back and read it it says that this particular manager worked with a nutritionist to come up with hiw own menu, not a national one. richard
  13. lovegrov

    ARCHIVED Fair Food?

    lovegrov replied to momof2's topic in Gluten-Free Restaurants

    Everywhere I've been the smoked turkey legs have been OK but I'd still ask questions. Most sausages are also OK but you'd need to ask the brand or check it out in some way. Some fairs, depending on where you are, also have steamed shrimp. richard
  14. lovegrov
    Probably an uninformed person. From the Starkist site: Q. Does StarKist
  15. lovegrov
    I know the seeds are gluten-free. richard
  16. lovegrov
    Which company was this? I'm curious because I've always gotten the gluten-free OK from tuna makers. richard
  17. lovegrov

    ARCHIVED Applebee's

    lovegrov replied to pegom1's topic in Gluten-Free Restaurants

    The list you found is more than two years old. Applebee's has been telling us not to eat there for quite a while. richard
  18. lovegrov
    What you are experiencing sounds like a contact dermatitist reaction to wheat. This has nothing at all to do with celiac. richard
  19. lovegrov
    Every tuna I've ever checked -- with or without broth -- has been gluten-free. Chicken of the Sea, Bumble Bee, Kroger -- all gluten-free. In fact, some brands even address it at their web site. The vegetable broth is just that. Let me say this again -- to determine if a raw chicken, turkey, pork, or beef has wheat in the broth or flavoring, simply read...
  20. lovegrov
    Let's settle down. The legislation passed and the companies have to comply by 2006. That battle is over. richard
  21. lovegrov
    FreyaUSA, As others said your daughter's reaction is not a gluten thing. Gluten on the skin doesn't even cause DH outbreaks, much less go through the skin. But some people simply cannot abide the adhesive on badaids. I suaully have no problem but the adhesive they used when I had hernia surgey caused awful dermal problems, including blisters. For some...
  22. lovegrov
    If your blood tests were positive AND if you were having symptoms (I don't remember about this), you almost without question have celiac disease. Problems with the biopsy: Did they take enough samples? Did they just miss the damaged spots? Did the person reading the sample have the necessary expertise? Did you stop eating gluten before the biopsy and if...
  23. lovegrov
    Maybe bacterial overgrowth? Try probiotics? richard
  24. lovegrov
    Dennison's is a ConAgra product. ConAgra will clearly list any wheat if it's there, but not barley, rye or oats. Personally, I don't think you'd find those three hidden in a product like that. Soy flour and soy protein are soy. Caramel color, despite what you hear, really is not a major threat. Hormel chili WITH beans is gluten-free. Without beans is...
  25. lovegrov
    But why wouldn't you trust a vodka made from corn? richard
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