Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed And Need Advice!


alib91

Recommended Posts

alib91 Newbie

Hello everyone,

 

I got diagnosed with coeliac disease about 2 weeks ago and have pretty much been gluten-free ever since, but I am still feeling really nauseous all the time, which gets a lot worse after eating/drinking anything. I also feel really bloated and after I eat, I look like I'm about 6 months pregnant, which isn't good for a 21 year old!

 

I was just wondering how long it should take before I start to feel better and if anyone has any advice to help with the discomfort in the meantime?

 

I have been eating less dairy since I was diagnosed, but haven't cut it out completely. I'm not sure if this is the right way to go in order to recover quicker?

 

Also, I gained a lot of weight before I was diagnosed and wondered how long before I starting losing and getting back to my old weight.

 

Finally, I am feeling really disorientated and my brain just feels like it isn't working at the moment, and I wasn't sure if this is normal!

 

I would ask my doctor these questions, but I'm in Spain for the next 5 months so unable to get much medical help!

 

Thank you!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

You recover at the rate you recover. There is no way to really speed it up.

 

Some people have issues with dairy while healing, others do not.

 

More than likely is that you are still going through the withdrawl period from the Gluten.

nvsmom Community Regular

Yep, withdrawl can last a few weeks if you go through out... sounds like you are. Wait it out and then things should start getting better.

 

You might want to drop dairy or just lactose for a while in case it is causing you some issues. Try coconut or almon milk for a few weeks.

 

L-glutamine can help with intestinal healing and might speed up the process for you a bit. Others around here have found probiotics to be a great help. It is pretty generally accepted that eating whole foods, with as little processing as possible, also helps you feel better a bit sooner too.

 

Good luck... enjoy Spain. (I'm so jealous!)

alib91 Newbie

Ok, I will give L-glutamine a try and see if it helps!

 

Thank you both for your help! :)

LauraB0927 Apprentice

Welcome to the forum!  Expect to have your ups and downs before finally feeling better - it unfortunately doesn't happen overnight.  I was gaining a ton of weight too before my diagnosis, but sticking to a whole foods, low carb diet (read about the Primal diet) has helped me lose about 17-20lbs since my diagnosis.  It also helped my gut heal as I was adjusting to a gluten free diet.  Remember, the gluten free replacement foods (pasta, breads, cookies, etc) are actually loaded with more carbs/calories than the regular gluteny stuff.  Probiotics and digestive enzymes will help decrease the swelling and bloating in your tummy (which made me feel very self-conscious too in the beginning).  If you're going to Spain, they have these cards (I believe they're called Gluten Free Passports) that you can print out in Spanish so that you can take to restaurants and present it to your waiter (unless you speak Spanish).  It will let the chef know what foods in that culture you can and cannot eat.  I'm printing them out for my honeymoon in June.  

 

The brain fog (being disoriented) that you're also talking about will also clear up more as you stay gluten free.  Good luck and have fun in Spain!!!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,243
    • Most Online (within 30 mins)
      7,748

    Maya Baum
    Newest Member
    Maya Baum
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.