Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed And Need Advice!


alib91

Recommended Posts

alib91 Newbie

Hello everyone,

 

I got diagnosed with coeliac disease about 2 weeks ago and have pretty much been gluten-free ever since, but I am still feeling really nauseous all the time, which gets a lot worse after eating/drinking anything. I also feel really bloated and after I eat, I look like I'm about 6 months pregnant, which isn't good for a 21 year old!

 

I was just wondering how long it should take before I start to feel better and if anyone has any advice to help with the discomfort in the meantime?

 

I have been eating less dairy since I was diagnosed, but haven't cut it out completely. I'm not sure if this is the right way to go in order to recover quicker?

 

Also, I gained a lot of weight before I was diagnosed and wondered how long before I starting losing and getting back to my old weight.

 

Finally, I am feeling really disorientated and my brain just feels like it isn't working at the moment, and I wasn't sure if this is normal!

 

I would ask my doctor these questions, but I'm in Spain for the next 5 months so unable to get much medical help!

 

Thank you!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

You recover at the rate you recover. There is no way to really speed it up.

 

Some people have issues with dairy while healing, others do not.

 

More than likely is that you are still going through the withdrawl period from the Gluten.

nvsmom Community Regular

Yep, withdrawl can last a few weeks if you go through out... sounds like you are. Wait it out and then things should start getting better.

 

You might want to drop dairy or just lactose for a while in case it is causing you some issues. Try coconut or almon milk for a few weeks.

 

L-glutamine can help with intestinal healing and might speed up the process for you a bit. Others around here have found probiotics to be a great help. It is pretty generally accepted that eating whole foods, with as little processing as possible, also helps you feel better a bit sooner too.

 

Good luck... enjoy Spain. (I'm so jealous!)

alib91 Newbie

Ok, I will give L-glutamine a try and see if it helps!

 

Thank you both for your help! :)

LauraB0927 Apprentice

Welcome to the forum!  Expect to have your ups and downs before finally feeling better - it unfortunately doesn't happen overnight.  I was gaining a ton of weight too before my diagnosis, but sticking to a whole foods, low carb diet (read about the Primal diet) has helped me lose about 17-20lbs since my diagnosis.  It also helped my gut heal as I was adjusting to a gluten free diet.  Remember, the gluten free replacement foods (pasta, breads, cookies, etc) are actually loaded with more carbs/calories than the regular gluteny stuff.  Probiotics and digestive enzymes will help decrease the swelling and bloating in your tummy (which made me feel very self-conscious too in the beginning).  If you're going to Spain, they have these cards (I believe they're called Gluten Free Passports) that you can print out in Spanish so that you can take to restaurants and present it to your waiter (unless you speak Spanish).  It will let the chef know what foods in that culture you can and cannot eat.  I'm printing them out for my honeymoon in June.  

 

The brain fog (being disoriented) that you're also talking about will also clear up more as you stay gluten free.  Good luck and have fun in Spain!!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

    2. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

    4. - Scott Adams commented on Scott Adams's article in Gluten-Free Grains and Flours
      18

      Cricket Flour Makes Really Good Gluten-Free Bread


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,542
    • Most Online (within 30 mins)
      7,748

    CC324
    Newest Member
    CC324
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.