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Celiac Disease And Miscarriage


jamer

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jamer Apprentice

I've been doing some research on this topic and wonder if anyone has any input on the subject.

 

I started my gluten-free diet two days before my official diagnosis of celiac disease. That was January, 20. What I didn't know is that I was almost four weeks pregnant at the time. I've stuck to the gluten-free diet very well. I'm still trying to discern my syptoms as to if I have been cross contaiminated and I believe my first clue was reflux but with pregnancy, it was hard to determine which was which.

 

Sadly, I lost my twins this week. The doctors think it was a fluke and something went wrong in the dividing process in the very early days. I'm trying to figure out was this due to untreated celiac disease and then only knowing to start treatment after becoming pregnant. :(

 


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GottaSki Mentor

Welcome Jamer.

 

I am so very sorry for your loss.  What I can tell you is many with undiagosed Celiac Disease have lost all their children and my wish along with every expectation is you will have many healthy children in the future -- not that this helps right now.

 

Hang in there.

rosetapper23 Explorer

I had three miscarriages but still gave birth to two healthy children.  

nvsmom Community Regular

I'm sorry to hear of your loss.  (hug)

 

i have heard that having untreated celiac disease can possibly cause miscarriages. I wouldn't be surprised if the withdrawl and body changes that one would experience in the first few weeks could throw a mother's body into enough of a tailspin to make pregnancy difficult.  Another problem could be that those with celiac disease may also have other autoimmune disorders that make a pg difficult; thyroiditis is oneAI that is quite common and often affects fertility too. It might be a good idea to have yourself checked for anyother health issues you might have (and hypothyroidism as it mimics many of the celiac disease symptoms.

 

I have heard (but I can't remember where) that those with treated celiac disease have their fertility improve. There is a chance that your miscarriage was unrelated to celiac (most untreated celiacs are able to have children).  I wish you the best with your gluten-free diet and with the expansion of your family.

Celiac Mindwarp Community Regular

I am so so sorry for your loss.

I had early miscarriages, and 2 healthy kids.

I did a lot of research, and miscarriage is much.more common than people think. It may or may not be related to the celiac, but it is extremely unlikely you could have done anything differently.

Once diagnosed and on the gluten-free diet pregnancy outcomes are virtually the same as for non celiacs.

Take time and get support if you need it.

Very best wishes for the future, and for each day.

1desperateladysaved Proficient

I had one miscarriage and the safe birth of 5 children over about 10 years when I had untreated celiac.  Since then, I didn't conceive and my last biological child was born in 1997.  My age is 49.

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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