Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Disabilities Act And Celiac


Ciel121

Recommended Posts

Ciel121 Apprentice

I read an article recently about a woman who could not attend college because of her allergy to peanuts...and I learned that Celiacs are officially considered disabled. Check out this web site:

 

Open Original Shared Link

 

I know when I studied for my second Masters (in secondary education) they covered this act and I thought of Celiacs, but I never thought we are officially included. The law does not allow someone to be excluded because of a disability...

 

How does this work with restaurants? Are they not forced by law to accommodate Celiacs then? Hmmm....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

It doesn't appear to work in restaurants. Here's why:

It's a choice to purchase a product at a restauraunt. And, Just as a grocery does not have to stock gluten-free bread or a boutique does not have to have a size 16, we are physically able to choose where to shop.

A college is a bit different. If the student is required to purchase a meal plan, they have to be able to provide it safely. If they cannot, they have to make it a " choice" and offer to release the student from the mandatory meal plan ( as an example ).

In the end, the " law " is only as good as the legal interpretations and lawsuit outcomes. I fear a ruling that all restauraunts must provide gluten-free food will not be as helpful as we hope. Many places will just offer some pre- made gluten-free option that they can microwave and serve in the container. For most businesses, people willing to pay for a product, be it gluten-free bread or a size 16 or Celiac safe menu options, will fuel the variety of options offered.

shadowicewolf Proficient

Yep, we're covered under it. But like it was already said, its only really useful for school situations.

 

For example, some colleges require their freshman (and sometimes sophomore) to live on campus in the dorms. With the disability act, that student can have accommodations in the school's cafeteria.

Ciel121 Apprentice

Hmmm...hopefully as progress comes they restaurants will be required to fully fulfill proper meals for Celiacs. I mean they provide ramps for wheelchairs... I'm also concerned about airports and flights because that is a highly limiting situation with no choices and I'm pretty sure airlines receive federal funding. Travel has been really hard for me, so I hope that one aspect changes.

 I love that this is considered a real disability! I always joke that I'm food disabled, but now I realize I am literally food disabled, ha ha.

shadowicewolf Proficient

Hmmm...hopefully as progress comes they restaurants will be required to fully fulfill proper meals for Celiacs. I mean they provide ramps for wheelchairs... I'm also concerned about airports and flights because that is a highly limiting situation with no choices and I'm pretty sure airlines receive federal funding. Travel has been really hard for me, so I hope that one aspect changes.

 I love that this is considered a real disability! I always joke that I'm food disabled, but now I realize I am literally food disabled, ha ha.

That would be nice actually. I don't see actual restaurants being able to do this, too many risks. However, if there was a good section of food in airports that would be nice.

kareng Grand Master

That would be nice actually. I don't see actual restaurants being able to do this, too many risks. However, if there was a good section of food in airports that would be nice.

 

 

Some airports are stocking the GoPicnic boxes in the "gift shop".  Mostly the gluten-free ones and at least one vegan one (that's what GoPicinc told me the other day).

shadowicewolf Proficient

Some airports are stocking the GoPicnic boxes in the "gift shop".  Mostly the gluten-free ones and at least one vegan one (that's what GoPicinc told me the other day).

I looked at those. Looks like a great option for some.

 

But other things as well, like salads, meats, and fruits. It doesn't have to be anything fancy, just an area that was dedicated to it i guess.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ksee Rookie

For disability status you must first file for the legal determination. Celiac with treatment does not qualify unless there was damage caused to a severity that does not allow a return to work within a year. Disability determination for adults has to do with ability to maintain a job. Excessive medical costs or inconvenience may be covered by state organizations such as Medicaid. 

If you have severe impairment caused by celiac disease and go through the process of disability determination (up to two or more years) it does not mean everyone has to accommodate your disease.

If you identify a situation where a company or organization could offer "reasonable accommodation" but refuses, you can hire an attorney who may be reimbursed if your claim is valid. Reasonable accommodation is that which does not put excessive physical or financial demands on the company or organization. In other words, small restaurants may not have financial means or physical space to add facilities for preparing foods while assuring no contamination and maintain the education of staff required. 

Because the resulting damage is the reason for disability determination, not the celiac disease causing that damage, you may get better results by advocating celiac issues rather than finding yourself at legal odds with a business or organization.

I'm not saying this is as it should be. 

My disability determination is much more definite and direct, my problems with mobility and sight are clearly spelled out, but I still have problems that are not addressed. I'm sorry, I wish I could offer a prettier picture.

You should look up all these terms at socialsecurity.gov. If you feel you might qualify most attorneys will offer a free consultation. If an attorney takes your case it will be because they believe you will win and they will only request payment from a judgment you receive.

kareng Grand Master

For disability status you must first file for the legal determination. Celiac with treatment does not qualify unless there was damage caused to a severity that does not allow a return to work within a year. Disability determination for adults has to do with ability to maintain a job. Excessive medical costs or inconvenience may be covered by state organizations such as Medicaid. 

If you have severe impairment caused by celiac disease and go through the process of disability determination (up to two or more years) it does not mean everyone has to accommodate your disease.

If you identify a situation where a company or organization could offer "reasonable accommodation" but refuses, you can hire an attorney who may be reimbursed if your claim is valid. Reasonable accommodation is that which does not put excessive physical or financial demands on the company or organization. In other words, small restaurants may not have financial means or physical space to add facilities for preparing foods while assuring no contamination and maintain the education of staff required. 

Because the resulting damage is the reason for disability determination, not the celiac disease causing that damage, you may get better results by advocating celiac issues rather than finding yourself at legal odds with a business or organization.

I'm not saying this is as it should be. 

My disability determination is much more definite and direct, my problems with mobility and sight are clearly spelled out, but I still have problems that are not addressed. I'm sorry, I wish I could offer a prettier picture.

You should look up all these terms at socialsecurity.gov. If you feel you might qualify most attorneys will offer a free consultation. If an attorney takes your case it will be because they believe you will win and they will only request payment from a judgment you receive.

 

 

i didn't think she was applying for disability payments.  Just the ADA protections.  That is how I took it, as she was asking about restaurants.

 

edited to add:  I know getting on disability is a real pain in the a$$.  I know a few people with very real disabilities who keep getting denied.  Then they show some idiot on Disability for a back injury,  movng furniture or chopping wood on the News!

Ksee Rookie

i didn't think she was applying for disability payments.  Just the ADA protections.  That is how I took it, as she was asking about restaurants.

I understand but those protections are only given to those with legal determinations. Children can be determined to have disability if their illness or injury is judged to prevent future ability to work, obtain education to work and of course for life threatening conditions.

It was not something I understood before my disability. For instance, lots of people have autoimmune diseases and continue to work. These people are only considered disabled when illness prevents any productive income and there is not medical expectation of a return within at least a year.

Medical limitations are the basis of disability but "Disability" is a legal status, along with legal protections.

But please don't take only my word for it. Research the website. :) 

kareng Grand Master

Not trying to argue, but there have been several articles on here about how the ADA works for GI illness and reasonable accomadations.  Mainly, this has been legally applied to schools and the recent ruling against a college that refused to serve safe food for students, forced to buy a meal plan,who have Celiac and food allergies. 

 

Wheelchair ramps are for all people in chairs or with walkers, etc, even the ones not on disability.  ADA covers people who are not on disability and want to work. (as well as people who recieve Disability payments and other goverment aid). A person in a wheelchair, as an example, could easiliy be a computer programer but needs some "reasonable accomadations".  Things like an office doorway that is wide enough , a desk a wheelchair can pull up to, etc.

 

I think we are talking about 2 different things here. 

Ksee Rookie

I understand and I'm not trying to be discouraging but I have found real world application of the law is not uniform. I don't doubt your statement of recent rulings but to obtain that ruling someone had to go through the process I described, identify a problem and go through the legal hurdles to resolve it.

Everyone who is wheelchair bound, either from illness or injury, either has or is in the process of getting a determination of legal disability but even then, all buildings are not required to be accessible. I know, I live in one, so I am allowed to have mobility devices installed in my building but I have to pay for the installation.

If someone uses a wheelchair or uses a white cane their disability is more visible to others. Those of us who have less visible disability are asked to prove those limitations. Again, please don't take my word, do your own research. I'm only saying how these things happen in actual situations so anyone who thinks they need to follow this road can do that with the information they need.

Nikki2777 Community Regular

This is interesting.  I'm trying to get my cafeteria at work to start making some gluten-free options available.  Technically, they're available now (salads, baked potatoes, etc.), but no care is taken to prevent or lessen the chance of cross contamination so I rarely eat there since my diagnosis.  I've considered raising the threat of ADA action with them to get them to do something.  I'll be watching this for ideas.

kareng Grand Master

This is interesting.  I'm trying to get my cafeteria at work to start making some gluten-free options available.  Technically, they're available now (salads, baked potatoes, etc.), but no care is taken to prevent or lessen the chance of cross contamination so I rarely eat there since my diagnosis.  I've considered raising the threat of ADA action with them to get them to do something.  I'll be watching this for ideas.

Go to human resources and mention ADA. See the look of dread and terror or annoyance that will spread across their face.

But, you can bring a lunch? Them providing a safe lunch isn't really a requirement to help you do your job.

Nikki2777 Community Regular

Go to human resources and mention ADA. See the look of dread and terror or annoyance that will spread across their face.

But, you can bring a lunch? Them providing a safe lunch isn't really a requirement to help you do your job.

Thanks  - yes, I'm hoping to resolve this without HR, but I'll go to them if I can't.  I believe I'm the only person with Celiac in the company, but a very senior exec is following the SCD so I might enlist help from him (I'm pretty sure his meals are prepared privately - I'm just lowly middle management).

 

I've been bringing my lunch most of the time, but we have many impromptu lunch meetings in the cafeteria and it would be nice to be able to eat something so I don't end up derailng the agenda with discussions about Celiac.  

 

I'm confident I'll talk them into doing something.  It's just going to take some time and a few well-placed threats.

Ksee Rookie

Thanks  - yes, I'm hoping to resolve this without HR, but I'll go to them if I can't.  I believe I'm the only person with Celiac in the company, but a very senior exec is following the SCD so I might enlist help from him (I'm pretty sure his meals are prepared privately - I'm just lowly middle management).

 

I've been bringing my lunch most of the time, but we have many impromptu lunch meetings in the cafeteria and it would be nice to be able to eat something so I don't end up derailng the agenda with discussions about Celiac.  

 

I'm confident I'll talk them into doing something.  It's just going to take some time and a few well-placed threats.

Oh I see this as solvable. In your case (if it were me) and I could not get any consideration, I would find a way to gently urge the discussion toward diversity in the workplace. I get the sense they may be way ahead of you but embrace the agenda derailment just a bit and subtly.

Your point is at least as strong when looking at it as a discriminatory issue as a disability issue and maybe stronger. Your company is large enough to have a cafeteria and HR department and since you describe yourself as middle management I'm guessing there are more than 100 employees. That puts your company in a category of having greater responsibility to accommodate varying employee needs.

Googles Community Regular

I registered with my universitie's students with dissabilities office for protection. My department was insane and I actually had a professor ask me if I should be in our area of study given that I was asking how to bring up my Celiac with my internship. It helped because I had someone to talk to about my trials around dealing with my professors incase anything came up. Luckily that was the worst of it. I was worried most of all of getting sick during class and needing to leave possibly in the middle of something important (like a test or presentation). Luckily I made it through all 3 years of classes. I only had a few problems at my internship where I had to leave for a short period of time to get more Imodium as I had run out of what I had with me. :mellow:  My internship was actually really awesome about it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.