Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nerve Pain In First Few Months Of Recovery?


ruthie-ray

Recommended Posts

ruthie-ray Newbie

Hi,

 

I was diagnosed with Celiac disease on March 10, 2013, so I'm a nubee.   Since that time, I've adhered to a very strict gluten-free diet.  I've had to recreate meal times, but my excema went away as did my arthritis and many of my tummy troubles.  My anemia is slowly getting better.  In the past week or two, I've started to experience moderate nerve pain in my feet (mostly), but also my lower back and legs, with some mild tingling and numbness associated with the pain.  It was consistent with the type of pain I experienced before with the arthritis, only with more nerve pain.  I do not think I ate any gluten, as I am very careful, and careful when cooking gluten for my family and careful with other products such as cosmetics, etc.  Is it possible that celiac could cause the nerve pain and is there any reason this would "flare" up after I have been gluten-free, except for the accidental gluten I ate on May 2nd.  :-)  It's been 6+ weeks, so I don't think that would cause the nerve pain this far down the road.  Anyone else experience this.  Thanks.  Ruthie 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frieze Community Regular

could be an unknown glutening.....perhaps a B12 def.

nvsmom Community Regular

Could it be a bulging disc and sciatic pain? I had a lot of sciatic pain for years until a disc finally burst and pinched off a nerve. The pain, and now numbness, started in my big toe, over the top of my foot, to my shin and then up the side of my thigh and into my buttocks. If it is something like that, you might want to get it checked so you don't end up with any permanent damage.... I don't have much experience with nerve pain but I thought I'd mention that just in case.

 

I hope it feels better soon.

pricklypear1971 Community Regular

If you are cooking gluten for your family, and have it in the house..,inevitably you're going to get a hit. The nerve pain may or may not be gluten...but you'll never know since gluten is in your house - especially if you're playing with it.

At 6 weeks gluten-free it is impossible to predict how your body reacts to a glutening. Oops, just rerread - you've been gluten-free for 3 months. That's still very early....things will keep changing.

I'd try getting the gluten out of the house. See what happens. It's the most likely culprit.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,225
    • Most Online (within 30 mins)
      7,748

    Vickie Rogers
    Newest Member
    Vickie Rogers
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.