Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nerve Pain In First Few Months Of Recovery?


ruthie-ray

Recommended Posts

ruthie-ray Newbie

Hi,

 

I was diagnosed with Celiac disease on March 10, 2013, so I'm a nubee.   Since that time, I've adhered to a very strict gluten-free diet.  I've had to recreate meal times, but my excema went away as did my arthritis and many of my tummy troubles.  My anemia is slowly getting better.  In the past week or two, I've started to experience moderate nerve pain in my feet (mostly), but also my lower back and legs, with some mild tingling and numbness associated with the pain.  It was consistent with the type of pain I experienced before with the arthritis, only with more nerve pain.  I do not think I ate any gluten, as I am very careful, and careful when cooking gluten for my family and careful with other products such as cosmetics, etc.  Is it possible that celiac could cause the nerve pain and is there any reason this would "flare" up after I have been gluten-free, except for the accidental gluten I ate on May 2nd.  :-)  It's been 6+ weeks, so I don't think that would cause the nerve pain this far down the road.  Anyone else experience this.  Thanks.  Ruthie 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frieze Community Regular

could be an unknown glutening.....perhaps a B12 def.

nvsmom Community Regular

Could it be a bulging disc and sciatic pain? I had a lot of sciatic pain for years until a disc finally burst and pinched off a nerve. The pain, and now numbness, started in my big toe, over the top of my foot, to my shin and then up the side of my thigh and into my buttocks. If it is something like that, you might want to get it checked so you don't end up with any permanent damage.... I don't have much experience with nerve pain but I thought I'd mention that just in case.

 

I hope it feels better soon.

pricklypear1971 Community Regular

If you are cooking gluten for your family, and have it in the house..,inevitably you're going to get a hit. The nerve pain may or may not be gluten...but you'll never know since gluten is in your house - especially if you're playing with it.

At 6 weeks gluten-free it is impossible to predict how your body reacts to a glutening. Oops, just rerread - you've been gluten-free for 3 months. That's still very early....things will keep changing.

I'd try getting the gluten out of the house. See what happens. It's the most likely culprit.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    2. - Margaret Wheatley replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      53

      Supplements for those Diagnosed with Celiac Disease

    3. - Jmartes71 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Nateral remedies

    4. - Known1 replied to Known1's topic in Introduce Yourself / Share Stuff
      13

      Diagnosed Marsh stage 3C in January 2026

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,541
    • Most Online (within 30 mins)
      7,748

    Payday
    Newest Member
    Payday
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      @Margaret Wheatley Thank you and welcome to the forum.
    • Margaret Wheatley
      I have been diagnosed with Refractory Celiac disease Type 2. Which is quite a shock because my Gastroenterologist has been performing gastroscopy & colonoscopy's - 4 in 2025 & a gastroscopy on the 20/3/26 and they didnot tell me how bad my Celiacs disease is and has been. It was my haematologist that checked more of my symptoms and came up with the result. So I am trying hard to get some nutrition into my body. All of this info on supplements and nutritional diets is very helpful.  Regards Margaret. 
    • Jmartes71
      Im very big on nateral remedies and just read that my go to herb is a no no and was wondering if factual or fiction. I read on Google, I know don't read or take to heart, however it stated that Echinacea isn't good for those with compromise autoimmune because it can cause inflammation. Has anyone else heard of this?Ive been battling sibo so wondering if any connection though haven't been religious on my vitamins these last several months because of testing ect.Sibo medications im allergic,the last few prescribed. Gi  dr dropped me but took me back.Im frustrated too but its the autoimmune part .
    • Known1
      Pardon me, I stand corrected.  I did find yet another blood test for thyroid function. TSH W/REFLEX TO FT4:  2.91 mIU/L  (Range: 0.40 - 4.50) As you can see, I was within the acceptable range when the test was performed.
    • Known1
      I am curious: What was your initial level at? How many daily IUs were you taking via supplements and for how long? What did your level drop to? How many daily IUs are you taking now via supplements? Regards, Known1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.