Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pre Diagnosed, Ibs Diagnoses


mr120

Recommended Posts

mr120 Newbie

Hi all,

 

I'm new to these forums but have been a member of IBS forums for a long time.

 

I have suffered with what is diagnosed as IBS for around 7 years.

I resonantly started a FODMAP diet which includes part of a gluten free diet and is the first time I have actually seen a bit of improvement.

 

I did a liver test at home a month ago which indicated I had elevated bilirubin at quite a high level (normal, +, ++, +++) and I sat between ++ & +++, Urobilinogen was elevated too. This test probably means nothing but I have read a lot of doctors who see elevated bilirubin and use it as a good indicator of celiac disease..

Until the FODMAP diet I was always soft small BM's, I now see normal BM's on some days.

 

I guess my question lies within my main trigger/symptom(s):

 

But I really want to ask - My biggest issue is when I have big stresses such as :

 

Leaving the house,

Having somebody come over,

Waiting for postman with parcel,

Waiting for an answer to a question that might define something important etc (like emailing the boss, is my absence gonna get me fired..).. 

 

I will have strong urges to use the toilet, even if I don't really need to go (usually the first visit, I do)

These urges only go away when I have had the event pass by usually.

 

Did anyone else before going full Celiac diet have this problem?

 

 

 

Many thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

If you want to be diagnosed with Celiac Disease, you need to continue eating gluten until testing is completed.  

mr120 Newbie

I understand that, ATM I'm doing the diet with the idea I have IBS as that is what I was diagnosed with many years ago.

But I was curious if the symptom I mention was one someone with celiac had experienced and remedied by complete removal of gluten products and possibly how long that symptom took to go away.

 

 

Thanks

nvsmom Community Regular

Liver problems, IBS like symptoms and anxiety are all possible symptoms of celiac disease. I did not experience those, but there are others around here who have.

 

Welcome to the board.

HavaneseMom Explorer

To me it sounds like you are having a stress/anxiety response. I have this too and joke with my husband that I am a "nervous pooper".

I have Celiac and while my anxiety related issues have slightly improved on a gluten free diet, I still do often have this problem in similar situations you described. I am constipated most of the time, so it is a real change in my pattern when this happens. If I know I am going to be really anxious about something and have the urgency problem in a social situation where it would be inconvenient, I will take a little Xanax to calm my nerves and it does help. Otherwise, I just accept the fact that I am a nervous pooper :-)

notme Experienced

'ibs' ought to be 'i.bs.u' - it's like a catch-all phrase that means 'i don't know what's wrong with you' in doctorspeak.  a symptom of what is really wrong with you.  i was told that for years:  you have irritable bowel syndrome.  sounds fancy, doesn't it?  of course my bowel is irritable!  WHY is it irritable?????????????????   

 

havanesemom, i also take a (quarter dose) of xanax when i am handed upsetting news or i am unusually nervous :/  helps immensely and if i take it at the first sign of "freakout mode" i can usually lessen the number of bathroom trips lolz ^_^

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Shellly posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      New labs are now very elevated

    2. - Scott Adams replied to Elena1234's topic in Gluten-Free Restaurants
      3

      Is Cracker Barrel`s gluten-free menu safe for kids with celiac disease?

    3. - trents replied to Elena1234's topic in Gluten-Free Restaurants
      3

      Is Cracker Barrel`s gluten-free menu safe for kids with celiac disease?

    4. - Russ H replied to Elena1234's topic in Gluten-Free Restaurants
      3

      Is Cracker Barrel`s gluten-free menu safe for kids with celiac disease?

    5. - Elena1234 posted a topic in Gluten-Free Restaurants
      3

      Is Cracker Barrel`s gluten-free menu safe for kids with celiac disease?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,175
    • Most Online (within 30 mins)
      7,748

    Wendy K
    Newest Member
    Wendy K
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Shellly
      Hello, I was very stick,  with flu like symptoms, but my virus panel came back negative and we couldn’t figure out what’s going on. The doctor then added a celiac panel.  Has anyone ever had such a dramatic change?  What are the odds this is true celiac I am going to have an endoscopy, but it’s expensive and I just feel like why can’t the labs be enough? 
    • Scott Adams
      Eating out in general is full of risks, but this article may help:  
    • trents
      This kind of question is always difficult to give a definitive answer to because of so many variables. One such variable is the sensitivity of the individual celiac to small amounts of gluten cross contamination. An amount that causes a reaction in one celiac many not in another, or at least not be discernable which, of course, does not exactly equate to being "safe".
    • Russ H
      I don't live in the US, but based on this thread, I wouldn't risk it:   https://www.reddit.com/r/glutenfree/comments/1n2ehw8/cracker_barrel/   This app is helpful: https://www.findmeglutenfree.com/
    • Elena1234
      I see that Cracker Barrel restaurants have a gluten free menu (not all locations, but one confirmed that they do). I was wondering if it is safe for my 5 year old son with celiac disease? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.