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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

For Parents Of Children That Are Over Emotional
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4 posts in this topic

I know that Celiac messes with our systems so bad and can cause emotional stress.  That being said, I need some advise from parents that have celiac children.

 

My 11 year was diagnosed with Celiac about a  month ago. On the advise of her doctor we had her go gluten free from the get go, wish I would have waited until we saw the Ped's GI but I can't take it back and we don't see him until June 18th.

 

Today, I received a call from her school at 4 p.m., she is usually home on the bus by that time.  I received a call from the school letting me know that they had her there because she had went to the school psychologist and had told them she was having problems with some kids at school and was thinking of harming herself. They had the cops there as well.  I am floored!  I can't drive right now ( just had surgery a few weeks ago - I have celiac myself) and her father went and picked her up and took her to another appointment with a therapist that deals with children.

 

I know that this disease messes with our bodies from head to toe.  I know she is an 11 year old that is also getting hormonal so that adds to the emotional side.  We are setting her up to talk with the therapist for the summer and are hoping that since summer is here ( last day of school tomorrow) and she can get away from the problem girls that hopefully we can get it worked out.

 

I really don't want her on any meds this early in her life and I was wondering if any other parents had any suggestions.  I am at a loss right now.

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Poor thing. I have an 11yo and 9yo and they are tough. We have a family psychologist we see, but I think you're at a good time at least. Summer is here, time to adjust to the new diet and figure things out a bit. Maybe talk to the school counselor or psych and have a plan in case it starts again next year.

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That's tough, and I'm sorry you're having to go through this. My daughter is much younger (diagnosed a year ago and just turned 5 recently), and she used to be super emotional. She was clingy, irritable, and would cry at the drop of a hat. She'd sometimes start crying when a friend just said hi or smiled at her. Everything started improving immediately upon eliminating gluten, and within a few weeks there was a huge change in her behavior. Things just kept improving steadily for the next few months, until at some point (maybe after 6 months or so gluten free?) she was squarely within the normal range for kids her age in terms of being emotional. The clinginess and outbursts of crying for no reason were mostly gone, etc. So it may just be that your daughter needs more time to heal, and a lot of problems may improve on their own. It sounds like counseling and other intervention is needed to help deal with the immediate issues right now - I don't really have any advice or recommendations about that - but hopefully you'll find that her overall outlook and well-being is greatly improved after more time gluten free. Hang in there!

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Maybe she was having serious problems with the other kids and she was telling the school official what she thought she needed to get something done about it.  I would talk to her to figure out what's going on.

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    • Continued Symptoms
      Try keeping a food and symptom diary.   She could have allergies or intolerances.  But, again, I am not a doctor!  I am healed from celiac disease, but I still react to certain foods and have allergies.  Those will probably never go away as I have been plagued with them all my life (as my siblings have too).  She could have a milk protein intolerance and not just lactose.  Eliminate all dairy too see if it helps.   Speech really normalizes by the age of 8.  I can not say if your public school will evaluate her.  My home-schooled friends are still monitored by the state and receive state funding.  So, I would assume they would receive all the same benefits.  Try calling.  
    • Weeks in and feeling no better
      Let me tell you that based on what people post on this forum, it takes MUCH longer to heal.  In theory,  it should just take a few week on a gluten diet to promote villi healing.  Your body is constantly regenerating new cells in your gut on a daily basis.    Why the delay?   First,  it takes a long time to really master the gluten free diet.  So, in the beginning, dietary mistakes are often made which can delay the healing time.  Second,  celiac disease is an autoimmune disorder triggered by gluten causing a "flare-up" which can be measured by the level of antibodies in your system.  Antibodies can take weeks, months or years to come down.   Third,  there's the type of damage done to your body to consider (e.g. bone damage, depleted iron levels).  Usually anything neuro takes much longer to heal. Has your doctor checked you for nutritional deficiencies?  If not, ask.  You might be really low on a vitamin or mineral.   You could be low on digestive enzymes (actually they can not be released in a damaged gut).  So even when eating gluten free foods, your body is not digesting and absorbing the necessary nutrients.  You could help the healing process by taking gluten free supplements and enzymes.   But it is best to see what you are actually deficient in.   Most of these deficiencies resolve with time. Finally, my parting words of wisdom (as passed on by many of our members), is patience.  I know.  Hard to be patient when you want to feel well, but it will happen.   Hang in there!  
    • Gluten and panic attacks
      Now if everyone out there who probably has a gluten problem adopted your attitude, they would be having a much better life.  After over 10 years gluten-free myself, who really cares about gluten pizza? I go months without gluten free pizza, which is very good by the way, and I am not an emotional wreck.  Imagine!  Glad you feel better and yes, it was the wheat!
    • Generic meds
      Your best bet is to contact the manufacturer (as Squirmingitch suggested).   My doctor has no time to worry about medication containing gluten.  My pharmacist admitted that she does not have the time to help me, but recommended that I take responsibility and always contact the manufacturer.  My pharmacist did help by insuring that my thyroid replacement medication (Armour) is ordered in a full bottle, sealed and direct from the manufacturer.  I have to give her credit for being honest with me.  I also see her running around non-stop, so I believe that she is super busy.   Why did your doctor switch your medication?  Can you go back to your old brand?  How is your thyroid?   This is a bit off topic, but I subscribe to the Bicycling magazine.  I found this article fascinating about the impacts of cycling, swimming or running on ADHD.   http://www.bicycling.com/culture/people/riding-my-ritalin-how-one-cyclist-gained-control-over-his-adhd I hope you figure it out!  
    • Abu Dhabi Gets its First Gluten-free Bakery
      For an indication of just how quickly gluten-free food products are revolutionizing the food and beverage industry across the globe, look no further than the United Arab Emirates (UAE). View the full article
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