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Reactions That Hospitalize Treatment


beachbel

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beachbel Apprentice

I am wondering how anyone else with really bad reactions is treated in case of gluten exposure.  I was on vacation with my family and got a "gluten free" sandwich but the deli meat was not gluten free even though we asked.  I was then vomiting for 2 1/2 hours, became delirious, had severe pain, dehydrated, asthma attack (I have asthma) and went into shock.  I needed to be taken to the hospital by ambulance where I was then treated with nausea med, pain med and a large dose of steroid.  The doctor there then told me to take 10 mg of prednisone per day for a week (I take 5 mg daily for adrenal insufficiency as it is).  This is the second very serious reaction I have had but I think the steroid has made a big difference for me in that last time I was in the hospital for a week - this time I went home the next morning.  I am still not feeling great but at least stable.

 

Long story short I have learned to never eat out, even on vacation.  My question is: what has worked for other people who have severe reactions?  What have you been treated with?

 

Thanks,

beachbel


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Gemini Experienced

I have severe GI reactions to gluten hits but do not go to the hospital.  I do not have asthma and I think that is why you ended up there and needed prednisone. That's a game changer.  I just treat dehydration with Pedialyte, which is for kids but works well for adults also.  It will re-balance electrolytes.  I find that once the offending food is out of your system from vomiting and diarrhea, things stabilize for me.  I have been gluten-free for a long time so I recover faster these days on the rare occasion that I do take a hit.  That's rare, though.....the longer you do this the better you get at avoiding it.

 

Hope you feel better soon!

dilettantesteph Collaborator

I don't eat out anymore either.  I get too sick when glutened to take that chance, though I haven't been hospitalized.  I found out recently that I get exocrine pancreatic insufficiency when glutened.  Digestive enzymes make a big difference to recovery.

  • 4 months later...
beebs Enthusiast

Yes, I started getting episodes of small bowel intussusception (which is a life threatening emergency) the last time I had it was after going gluten free for 6 weeks and then going out to dinner with friends to a Vietnamese and deciding I didn't want to be "one of those people", so I shared the same food as everyone else, and within 45 minutes I was projectile vomiting was in agonising pain and was rushed to hospital with intussusception again. I have never eaten gluten again (4 years) and never had intussusception since that night. 

mommida Enthusiast

My daughter has been hospitalized for dehydration for glutenings.  She has Eosinphilic Esophagitis too.

 

Really it is a trip to the urgent care and getting anti nausea drugs quickly.  Usually a shot as she can't keep any fluids down.  If we miss that window of time she has needed an I.V. for about 3 to 4 days.  The recent release of the anti nausea drug wused for chemo patients has helped a lot.

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