Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Barrett's Esophagus & Celiac

mbr22m

By mbr22m
in Coping with Celiac Disease

Recommended Posts

mbr22m Rookie
mbr22m
Posted

Hi all,

I was recently diagnosed with barrett's esophagus. I'm wondering if anyone out there has this and celiac that can calm my nerves? Everytime I've googled it, cancer comes up and I'm having panic attacks. . I've been gluten free for several years after a celiac diagnosis. I'm also lactose, soy, corn free. I'm so surprised by this new diagnosis as I rarely have reflux or heartburn.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Renaye Contributor
Renaye
Posted

My previous GI doctor thought I had this but the biopsies came back negative.  He wanted me to have an upper gi every year to watch it.  Now he is not practicing in my state any longer and went to a new doctor. He said there was no need to scope me every year if it came back negative but he is scoping me every 2 years.  So I am wondering who is right.  If you are being seen by a GI doctor and are taking something for reflux then you are doing all you can do to stay healthy.  Sometimes people have "silent reflux" and don't have any symptoms.  I would also suggest elevating your head at night and keeping a low fat and low spicy diet.  Going gluten free did not help my reflux. Hope this helps.   

mbr22m Rookie
mbr22m
Posted
  • Author

Thanks for responding. I just started seeing this GI. My other GI diagnosed me with gastritis and hiatal hernia. I'm waiting on biopsies from New doc but he told me I must take PPI, which oddly enough make me feel worse. He's also testing for h pylori and addtl food allergies We don't eat a lot of spicy food; mostly fish, chicken, steamed veggies. I'm hoping everything will be ok now that I'm taking PPI.

cap6 Enthusiast
cap6
Posted

My partner, who has been "sort" of gluten free (at home but not when she was out) was just diagnosed with this and I too freaked when I read about it. She is now 100% gluten free, which I might add, has not helped with the bad reflux. She is also dairy free. She had a scope in Feb and is scheduled for a re-check in May so we shall see. The info I find is sort of confusing on this disease

  • 3 weeks later...
JodyM75 Apprentice
JodyM75
Posted

Hi all,

I was recently diagnosed with barrett's esophagus. I'm wondering if anyone out there has this and celiac that can calm my nerves? Everytime I've googled it, cancer comes up and I'm having panic attacks. . I've been gluten free for several years after a celiac diagnosis. I'm also lactose, soy, corn free. I'm so surprised by this new diagnosis as I rarely have reflux or heartburn.

Yes, they work hard to make it very scary.  Let's be clear here, though.  According to the National Institute of Health, about 1.5-7 people out of one hundred have Barrett's Esophagus, and the risk of them getting Esophageal cancer is .5%.  That's it.  That's pretty low.

 

If your diagnoses was just visual it does not count.  You can only get diagnosed via biopsy.  My previous GI diagnosed me with Barrett's without a biopsy, and when I found out that was a no-no, I switched doctors, got the biopsy and it came back negative.  For several years my mother was terrified about the cancer risk for no reason.

 

Keep in mind....a lot of this is the PPI and H2 drug manufacturer's pushing the fear....

 

I have had a hiatal hernia since I was 17 with really bad reflux if left untreated (I do take a PPI, but am weaning off because I don't want the eventual side effects).  I went unmedicated for 9 years.  Total, I've had this problem for 23 years and I'm frankly surprised I DON'T have Barrett's.  Going off gluten didn't help me, either.

mbr22m Rookie
mbr22m
Posted
  • Author

I have a hiatal hernia as well and I think the reflux is a result of that rather than too much acid. I've tried 3 different PPIs and they all make me feel awful (everything from really sore muscles to jaw and throat pain, to extreme dizziness and feeling of fullness after eating only couple bites of food). I'm on Nexium now and that isn't as bad for me as protonix or omeprazole. I'm starting to wean off now because they're just making me feel much worse, not better. I've been trying to manage it through diet and portion control now. Also Taking aloe, honey and DGL. Hopefully that will help. Thanks for responding

JodyM75 Apprentice
JodyM75
Posted

Yes, lifestyle changes helped me a lot.  Not eating big meals after 7:30...not drinking a lot of water or having a lot of soup all at the same time...I think those are my biggest two.  Oh, and I'm 40lb down from my heaviest, that helps.

 

I have recently had good luck with heartburn control using - don't laugh - an essential oil blend doTERRA produces called DigestZen.  I wasn't expecting much, but two drops in water, drink it down, the heartburn was gone in less than 5 seconds and didn't come back that day.  I used up the sample my friend gave me and bought the whole 15ml bottle.  I'm very surprised.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mbr22m Rookie
mbr22m
Posted
  • Author

thanks, I will have to check the digestzen out. I take digestive enzymes and those help some, especially the Enzymedica brand.

gilligan Enthusiast
gilligan
Posted

I was diagnosed with Barrett's by endoscopy and was given a script for a ppi.  It took trials to find one that didn't make me sick, and I didn't have any reflux symptoms, either.  A year after being gluten free, I was told that if I had it, it was minimal.  A year later, another endoscope, and I was told that there wasn't any evidence of it.  

 

I was told the same as an earlier poster - it puts you at a higher risk for esophageal cancer, but the chance of actually getting it is very small.  

Celiacandme Apprentice
Celiacandme
Posted

My reflux was silent, too. I was diagnosed with Barrett's at the same time I was diagnosed with celiac disease. In November 2013. You mentioned you were waiting on biopsies - did those results come in yet?

frieze Community Regular
frieze
Posted

anyone with a hiatal hernia should elevate that HOB not just your head, ie not extra pillows.  a brick or 2x4 under the legs at the head of the bed should do it.

mbr22m Rookie
mbr22m
Posted
  • Author

I finally got my biopsy results back. My doctor kept rescheduling my appointment.. He said the biopsies came back negative for barrett's, but I have hiatal hernia, gastritis and esophagitis. On the report he gave me after endoscopy, it says 'irregular SC junction indicates barrett's esophagus'. I only have to take ppis for 4-6 weeks. I bought a wedge pillow too and that helped. I really would like to manage this without the ppis. I find Gaviscon helps with the throat irritation, which I thought was allergy related all this time.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      22

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      That is the goal, after all.
    2. Wheatwacked
      - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine. Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years. Doctor recently said to not stop. My 25(OH)D is around 2...
    3. Known1
      - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Thank you for sharing your thoughts. I respectfully disagree. You cherry picked a small section from the page. I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on ...
    4. Wheatwacked
      - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

      Here is a link to the spreadsheet I kept to track my nutrition intakes. Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/...
    5. Wheatwacked
      - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

      Hello @catnapt, That's so true. Every person with Celiac Disease has different symptoms. There are over 200 that it mimics. Too many still believe that it is only a childhood disease you outgrow. Or it's psychosomatic or simply a fad. Idiots. It's easy to get angry at all of them. You just have to pick at the answers until you find...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,411
    • Most Online (within 30 mins)
      7,748
    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      That is the goal, after all.  
    • Wheatwacked
      Blood results

      By Wheatwacked · Posted

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Known1 · Posted

      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.