Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diagnosed W Both Celiac And Anklyosing Spondolitis


amejia111

Recommended Posts

amejia111 Newbie

Hello, I'm new here and my first post. I was wondering if anybody else has Ankylosing Spondolitis also? Just diagnosed w Celiac but have had A.S. for 15 years now. Trying to figure out what symptoms are what now. Great site.

 

 

Angie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Welcome! I do not have A.S., but I would encourage you to check out our Newbie 101 section under "Coping":

https://www.celiac.com/forums/topic/91878-newbie-info-101/

It includes valuable tips for staying gluten free as cross contamination is huge issue for those with celiac disease.

I wish you well!

LauraTX Rising Star

Welcome to the board, Angie!

 

A lot of us also have autoimmune disorders along with our Celiac Disease.  I have lupus as well as Celiac, and the advice I can offer is to let you know that you have to take care of all your conditions at once to be healthy.  So, dive on in to gluten-free eating and take it seriously, and you may see improvement overall and in things you thought were from your AS.  It will take some time to tell, but you are on the right path to healing :)

 

Feel free to ask any questions!

janpell Apprentice

I do have arthritis in my spine which is thankfully in remission. I have to expand my diet restrictions to beyond just gluten. One of my biggest offenders are tomatoes. I also have to avoid dairy, potatoes, most vinegars, most legumes, citrus, most corn chips and corn (there is still one brand I can have, yay) high sugar, soy, fermented foods, and a few gluten-free grains. I am hoping to reintroduce these but after eliminating for 6 weeks I noticed once reintroducing they are bringing back cervical pain so they are off the list again. I have been gluten free for three years and it took a long time to really see results and I do elimination diets here and there. Nothing was immediate but it results were certainly there so I am glad I stuck it through. I hope it is just a gluten thing for me and maybe in another year I can reintroduce some of these foods I have to avoid.

amejia111 Newbie

Thanks for input everybody! I'm hoping as I get completely gluten-free the rest will settle too. I've had my arthritis for almost 15 years now and meds never work for me so I've gotten off all meds to see how things shake out, and sadly now that I'm off everything I feel no different which kind of irritates me becuase I have taking all of these horrible meds for nothing but my $.

janpell Apprentice

I know what you mean about the meds not working. I used to go to support groups (online) before the diet change and many of us were/are in the same boat. Just take one step at a time, be aware and research other avenues, and you will notice results. I was gluten light for the first year before I gave it up completely. It just takes time and commitment and then habit change will happen.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Haugeabs replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - trents replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    4. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,414
    • Most Online (within 30 mins)
      7,748

    Donna Shields
    Newest Member
    Donna Shields
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Haugeabs
      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
    • trents
      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."
    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.