Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Board . . .


Guest Rad

Recommended Posts

Guest Rad

Have been reading your message board for the past day, and joined last night. Was diagnosed in Nov. 2005, and gluten free since. Feel like I've learned more from you folks than my doctors. Found out I also have the malabsorption issue, along w/ osteoporsis. Not a lot of energy right now and have gained 10 lbs. the past 2 1/2 months. Prior to stress fracture in Sept., and getting sick in October was riding my bicycle 8 miles or walking 2-5 miles daily. Now don't feel like going to the gym, and am not feeling real socialable. Actually my real estate career is on hold -- again the energy thing. I know that this too shall pass and bright days are ahead. Again thanks for all your informative, as well as supportive posts.

Dianna


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

Welcome to the board! And who better to learn about this new way of life than from people who live it every day? Dr.s really don't know enough about this yet... there are some that do get it, but they are very rare and you are very lucky if you get a Dr. that is educated enough about this.

Feel free to ask ANY questions here... no question is too stupid or too gross or too whatever! LOL!

Guest gfinnebraska

Welcome Rad! Let us know if you have any questions, etc. I hope you get your energy back soon!! :)

I had surgery over Christmas and can not walk on my treadmill for 6 weeks. That is killing me!!! I know what it feels like to be active and then not be able to. It isn't fun... feel better soon! :)

minibabe Contributor

Welcome to the board! Everyone on here is so wonderful and understanding, its like and online family :D It is really an amazing support group. Good luck

Amanda NY

kevsmom Contributor

Welcome! I know everyone on the board will be here to support you. There are so many people that have put in a lot of time to investigate all kinds of issues. When you have questions, feel free to ask them, someone is bound to have the answer.

Cindy

jerseyangel Proficient

Hi Rad--welcome in! Glad you found us here. These boards and these people have been such a help to me since I stumbled on this site shortly after I was Dx. I can relate to the lack of energy--and I also gained 10 lbs. in the first 2 months. Currently, at 7 months, my energy level is better and I've begun exercising again. It'll get better! :)

Canadian Karen Community Regular

Hi Rad!

Welcome to the board! If you have been reading through the site, perhaps you have already figured out that there is no topic we shy away from, no question that seems to gross to ask.....

Welcome!

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lizzy Apprentice

welcome dianna i hope you find all the help on here it will take time but things will get better. i have been gluten free for 3 months and i feel so much more alive than i did 3 months ago. they are some wonderful people on here who can answer your questions. liz

Guest Rad

Thank you for making me feel at home! Think I'm going to like, and learn a lot from this board!

Forced myself to get out of the house today, AND feel so much better for it ! ! Went to the gym and rode the stationary bicycle 5 miles in 30 minutes; that's really slow for me. Usually I do 10 miles in 30 minutes, but realize my energy level is "temporarily" on the back burner, and eventually I'll be back to my old self. Can't force it, but on the other hand need to do my best not to wimp out.

Following gym, went to a Pastel Society meeting. The past couple of weeks haven't felt like getting out and that's not like me. An old art teacher of mine was instructing the group today about painting night scenes. The room was packed with 100 people because of her reputation. Realized how much I had learned from her. Have been a member of this society four years now, and am finally noticing a core group of friends are developing.

While on the way home from the meeting stopped by a food co-op that is usually out of the way. What a treat to find serveral of the suggestions you folks have suggested on this this Board. Felt like a kid at Christmas. All products are listed as Gluten Free. Cereals: EnviroKidz Gorilla Munch, Health Valley Rice Crunch-Ems, and Nature's Path Mesa Sunrise. Picked up Kinnikinnick cinnamon buns, and Bionaturae pasta. Also found Cascade Fresh yogurt to labeled gluten-free. A box of Arrowhead Mills brownie mix found its way into my basket, as well as Ener-G egg replacer (a product Bette Hagman uses a lot in her cook-books). Do have a question about a San-J soy sauce. It says Wheat Free, but it doesn't say Gluten Free. And if I recall, have seen on this Board where that doesn't necessarily mean gluten-free. The ingredients are: water, soybeans, salt, and alcohol. Now that I've typed it out; is it the alcohol I should be concerned about?

Let me sing praises again regarding JUICING. With the malabsorption issue, just think it can't help but to drink fresh vegetable juice. It is SO refreshing ! ! !

Dianna

tarnalberry Community Regular

Welcome to the board! It is full of fabulously helpful people. :-)

bknutson Apprentice

Hey Rad

Just want you to know that the people on this board long befor I came along are great and wonderful people.. I dont get to get on here very often because I am always at work or have my grandkids but when I have they have always helped me. Beverly sent me 80 pages of stuff once and it was a life saver. And then I was about to just quit and just be in pain cause I felt like an idiot cause my memory is so bad and they all jumped on here and encouraged me to hang in there and they would help me. It is like have twenty or more best friends right there when you need them most who really understand. And it doesnt matter how personel the question we have all had it or done it so just ask. These are great people and I love them all even though I dont get to talk to them much. So you make sure you do. Good luck. And it will get better.

Barb

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to science enthusiast Christi's topic in Coping with Celiac Disease
      2

      Sugar intolerance 10 years into gluten-free diet

    2. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Insomnia help

    3. - catnapt replied to xxnonamexx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten Free Sugar or Starch known to increase gas?

    4. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Insomnia help

    5. - hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,465
    • Most Online (within 30 mins)
      7,748

    Dferares
    Newest Member
    Dferares
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • cristiana
      PS... I help care for someone in their 90s, albeit part time, but have just been in hospital for a while with him and it has reminded me, even for someone in better physical shape, which I am now, thankfully, it can be very tough on one's health/sleep/mood.  I think what I am trying to say is you are going through a lot all at once, it is not surprising that you are not feeling 100 per cent. Even if we love our relative to bits, and they love us, they often can't understand that we too have lives, and need to keep our houses, families and jobs in running order. Something has to give, but it's often the carer!  When an elderly loved one is resistant to change, it makes things even more exhausting.  Often it has taken a crisis for me to be able to introduce the help that has actually been needed for so long.  It sounds as if you are doing an amazing job but can you get any support from any carers associations or other groups where you live, which might help?  
    • catnapt
      hmm you got me curious as I have suspected that certain foods with sugar may be an issue for me so I googled this and came up with this: " Key Compounds Causing Reactions in Gluten-Free Foods: Fructans: Often found in foods that are gluten-free but high in fiber (e.g., inulin, chicory root), acting as a trigger for digestive issues similar to gluten. Fructose (Fructose Malabsorption): A sugar found in fruits, honey, and high-fructose corn syrup. Some individuals cannot properly absorb this sugar, leading to fermentation in the gut. Sugar Alcohols (Polyols): Examples include mannitol, sorbitol, and xylitol, commonly added to gluten-free, sugar-free products to maintain sweetness. Lactose: A disaccharide found in dairy that frequently causes issues in individuals with damaged gut linings, a common occurrence in celiac disease.  These reactions are often classified as dietary intolerances (such as fructan intolerance or fructose malabsorption) rather than allergies. They are commonly found in packaged "gluten-free" products like bars, cereals, and processed snacks. " hope this helps.    
    • cristiana
      Hi @EvieJean I was delighted to read @hjayne19's comments about A LIfe at Last as the book definitely helped me to understand how anxiety works.   You may be suffering from vitamin and mineral deficiencies which will can contribute to and even cause anxiety. Have you had any tests done?  If you have and 'normal' results , do take a second look at the levels.  Low normal, for instance, in iron and B12, may still be causing you anxiety, so you may need to consider supplementation.  (If you do this, best talk to your GP, particularly regarding iron, as it needs regular monitoring. - too much in the blood can be dangerous) When I was first diagnosed, my GP was happy when my ferritin levels were c. 11 n/gL (just on the cusp of our local normal lab readings) whereas a consultant I saw some months later for continuing mouth issues said, 'Far too low! and told me my levels should at least be at 40.   Another example is B12 -  in some countries a reading of 500 is considered the start of normal levels, in the UK normal range starts at 180 n/gL.  I feel much better when my B12 is at a higher level. If you are feeling depressed and generally stressed I'd also consider reading Dr Steve Llardi's book The Depression Cure which looks at how incorporating a combination of physical exercise,  omega-3 fatty acids, natural sunlight exposure,  restorative sleep and social connectedness in your life can help you feel better.  I have given this book to many people who found it helpful, and a relative of mine who is a doctor thinks it is fantastic.   The run up to my diagnosis and for some time afterwards I had terrible brain fog, insomnia and intrusive thoughts.  In time, with the supplementation, and also with the help of the above books, I did feel so much better.  I really hope that you can find some of these tips help you too, and remember, try to keep your diet as gluten free as you possibly can.  Also, please come back to us if you have any further questions. Cristiana    
    • hjayne19
      @EvieJean Im sorry you’re going through that. I also find it frustrating to navigate different medications. However, it sounds like you have some bad anxiety - I went through and am going through the same thing. One of the posts in this chain recommended a book to me called “a Life at Last” by Paul David. I can honestly say it changed my life. Once you stop trying to think and fix your way out of anxiety it can bring a lot of peace. I found by taking these methods and suggestions into my daily life it did in fact improve my sleep! I also did a full blood panel and found my vitamin d was on the lower end. So currently taking vitamin d and feeling alot better. It sounds like you’ve had repeated gluten exposure so your gut may be delayed in healing. I’m no expert by any means but I really suggest reading the book and hopefully it’s a start!  @EvieJean Im sorry you’re going through that. I also find it frustrating to navigate different medications. However, it sounds like you have some bad anxiety - I went through and am going through the same thing. One of the posts in this chain recommended a book to me called “a Life at Last” by Paul David. I can honestly say it changed my life. Once you stop trying to think and fix your way out of anxiety it can bring a lot of peace. I found by taking these methods and suggestions into my daily life it did in fact improve my sleep! I also did a full blood panel and found my vitamin d was on the lower end. So currently taking vitamin d and feeling alot better. It sounds like you’ve had repeated gluten exposure so your gut may be delayed in healing. I’m no expert by any means but I really suggest reading the book and hopefully it’s a start! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.